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Recent content by Sef0912

  1. Sef0912

    Accuracy of Prometheus

    Does anyone know how accurate the IBD panel from Prometheus is considered? Can it give different results at different times during the progression of IBD? (I am really confused about some recent results.) Thanks for any help.
  2. Sef0912

    Biologic Question

    Has anyone ever changed biologics when their doctor says that their current treatment seems to be working and that there is no new inflammation seen with colonoscopy or endoscopy? I have a gut feeling (no pun intended) that my Humira is no longer working properly, but since there are no signs...
  3. Sef0912

    EnteraGam

    Is there anyone out there on EnteraGam and if so, what do you find is the best drink/food to mix it with so it doesn't taste so powdery?
  4. Sef0912

    Medication not working

    For those of you who have "failed" a medication, when/how did you know it was not working? I have tapered off of prednisone, and since that time had more bowel symptoms associated with my Crohn's, but I wonder if my medication has not had long enough to work, as most say Imuran takes 6-8 weeks...
  5. Sef0912

    Prednisone and WBC count

    I have read that the use of corticosteriods can cause an increase in your WBC count, however, I am tapering off of prednisone and my WBC count has increased over the past four weeks. Is this something y'all think I should be concerned about? (Yes, I have called my GI but he is on holiday...
  6. Sef0912

    Foot/leg cramps

    I am having horrible cramps in my feet and legs that come on instantly and usually end within seconds to minutes (sometimes I feel like I am having a charlie horse in my foot or in my thigh, which seems abnormal.) I know that cramps can be a side effect of taking prednisone, which I am...
  7. Sef0912

    Humira and...

    Just wanted to seek out some advice. My Dr. wants to start another medication along with Humira, in order to help me taper off prednisone and to try to get me into a long remission. (Note, I just started Humira earlier this month and this is a new GI.) I was wondering if anyone has had more...
  8. Sef0912

    Hipaa

    Does anyone know if it is considered a HIPAA violation for a Dr.'s office in the US to share your personal information with a pharmacy which you have not approved them to share the information, even if it is regarding helping you to get the medication you need (Especially when your own pharmacy...
  9. Sef0912

    Humira Question...

    I am about to start Humira, as Delzicol has not worked for me and Pentasa was one of the worst experiences of my life since my CD diagnosis. I cannot metabolize 6 MP or that class of drugs, according to my Dr., so biologics are where we go next. My question is once you started Humira, how long...
  10. Sef0912

    FMLA/Employment issues

    :sign0085: I may not be posting in the right place, but I was wondering how some of you started the process of applying for FMLA? I understand that an employee is eligible for FMLA for 12 weeks out of 12 month period for a serious health condition that makes the employee unable to perform the...
  11. Sef0912

    My Story

    Hi, my name is Sarah and I was diagnosed with Crohn's disease last month by a new G.I. after struggling with its symptoms for many years and being treated for many other ailments and being told, at times, that there was nothing wrong with me. Since May 2013, I have had 7 surgeries and been...
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