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Recent content by silvermander

  1. silvermander

    Swollen Foot, But No Answers!

    I have struggled with my ankles swelling - related to Crohn's Disease - for almost 40 years now. It used to be that when my ankles started swelling, I was in for a terrible time with my gut very soon. The first time this really presented was when I was 6, and has continued to happen into my...
  2. silvermander

    Swelling, maybe due to missed Cimzia dose?

    I developed my very first perianal abscess - yay me - after 30+ with Crohn's, and my GI told me to push back my Cimzia shots for a couple weeks until we got the abscess 'handled' in some way. Well, I had it drained - yay me - and actually it's still draining, so my GI told me to give it another...
  3. silvermander

    My very First Perianal Abscess, Yay Me!

    Up until last summer my Crohn's was always in my terminal ileum and the start of my colon. I've had a number of resections (starting at age 8), but always at the same spot. Last summer I had my first fistula with a lovely abscess on the end - the whole thing was poking out my side. Also, I...
  4. silvermander

    Post-Op Open Wounds?

    I don't want to tweak out anyone who's going into surgery for the first time, but I have to ask about open post-op wounds and healing. I had a SBR with the removal of a fistula and 6X8cm abscess as well as my surgeon needing to 'untie' my intestines as they were 'tied up in a big mass' - all...
  5. silvermander

    Sil Update...

    I'm sorry I've been gone for the better part of a month, but I was gone getting my guts fixed! Last time I was here I wrote about my BP being 60/40 with a temp of 103.7. After being in the hospital for a week I strong armed myself out as they weren't finding anything. About a week later I was...
  6. silvermander

    Trying to keep it in is hard...

    Sorry about how long this is! It's been long and convoluted. Anyone willing to read this, I thank you. I've been out of reach for a while here due to some serious Crohn's issues. While I have been dealing with a very serious flare and a partial blockage for the better part of two years, so...
  7. silvermander

    A Strange New/Recurring Symptom...

    A little back story - Diagnosed age 8 - sbr. Remission for 8 years, flare at 16 - sbr. Back and forth on an on since then. All through high school I had serious problems with my hips. My orthopedist told me to take Advil for the pain. Of course it ate a hole in my stomach and he swore up and...
  8. silvermander

    Is 16 the age?

    I keep reading over and over here about 16 being the year that Crohn's reared its ugly head in so many. For those who were diagnosed very young, it seems as though 16 is the year it came roaring back in a huge way, but in others, it seems as though 16 is the year it really hit them hard for the...
  9. silvermander

    Sodium Problems...

    I've stated a number of times that my mother also has Crohn's Disease. She's 68 years old, was diagnosed at age 12. While she doesn't deal with most of the issues I have and really doesn't have anywhere near the problems I have with it, she's at a total loss over what her body has been doing...
  10. silvermander

    Metallic taste?

    I've been having something very strange happen lately, so I have to ask if I'm alone or it's related to something else, or... Okay, I started on Cimzia last Friday. My father injected me with my first two loading shots. He also gave me my B12 shot. Monday I had a colonoscopy. Not completely...
  11. silvermander

    Cimzia Questions...

    Is anyone actually on Cimzia for Crohn's around here? There's lots of talk about Humira, Remicade, Prednisone, etc, but I haven't really seen much on Cimzia. Even funnier is that half the pharmacists in my area have no clue what it is or what it's for. I started the wonderful Crohn's drug...
  12. silvermander

    Bleeding Question

    I was surfing the web and came across this article. http://www.people.com/people/article/0,,20472886,00.html Basically a young man, Casey Abrams (20), is on American Idol, but he wasn't on Thursday's elimination show because he was in the hospital getting a couple pints of blood. He has...
  13. silvermander

    Service Dogs?

    I've searched through the forum and haven't been able to find anything about this. I'm sorry if it's been addressed before and I just haven't found it. I'm wondering if anyone else here has a service dog? I hadn't thought that there could be such a thing as a service dog for a Crohnie, until...
  14. silvermander

    30+ Years With Crohn's...

    Hello everyone, I'm Kendra, but usually go by Ken. I was officially diagnosed when I was 8 years old, but had been suffering symptoms since I was born. When my symptoms went from my joints to my gut, it was pretty easy to diagnose as my mother has been struggling with Crohn's since she was 12...
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