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Recent content by smallfry

  1. smallfry

    Tips

    Hi all, I've posted this a couple places today in hopes that it is helpful to someone! http://crohnic-crohns.tumblr.com/post/51837611793/perianal-abscess-fistula-setons http://crohnic-crohns.tumblr.com/post/50725863127/what-to-do-when-you-live-in-a-shoe-or-when-your-vag Maybe we can get a...
  2. smallfry

    Simponi/Golimumab

    Hi everyone, I have been approached to switch my Humira to Simponi for my perianal crohn's. Does anyone have any experience with Simponi for Crohn's? I don't seem to see it approved for crohn's online for me to do research. ugh, I hate anit-TNF drugs!!! Thanks in advance.
  3. smallfry

    Thoughts on biologics and abscessing

    Hi everyone, I also posted in the Humira thread but thought I might get more replies here. A quick rundown... I have perianal crohns with fistula and seton with multiple sinus tracts that abscess. I also have a temp. loop ileostomy to help rest the area yet am still having abscessing. I have...
  4. smallfry

    Humira and constant abscessing

    Hi everyone, I have perianal crohns with fistula and seton with multiple sinus tracts that abscess. I also have a temp. loop ileostomy to help rest the area yet am still having abscessing. I have been on humira since Dec 2011 and have only been taken off it once while in hospital for abscessing...
  5. smallfry

    Humira and constant abscessing

    Hi everyone, I have perianal crohns with fistula and seton with multiple sinus tracts that abscess. I also have a temp. loop ileostomy to help rest the area yet am still having abscessing. I have been on humira since Dec 2011 and have only been taken off it once while in hospital for abscessing...
  6. smallfry

    Is my bum hole shrinking?

    Hey, Been thinking about this for a couple weeks now. During my rectal exam last appt. it seemed he had a hard time getting his finger in there. He actual pushed my seton knot back into the fistula trying to get in (this I noticed after the appt and am still trying to get it out). I see him...
  7. smallfry

    Free puppets called the Gastronauts to childern undergoing ostomy surgery!

    I love this non-profit organization :) They are called Join The Bowel Movement and I just wanted to spread the word how AWESOME they are!!!! They are sending one to my friend who has a 9 year old that just had surgery yesterday. Thank you guys!!!!!!! Check them out...
  8. smallfry

    High dose prednisone and surgery

    Hi everyone, I have a friend who has a 9 year old boy (brave, smart boy) who is on a high dose of prenisone (along with 6 or 7 other meds) and needs to have surgery but they are refusing at this time due to his high dose. I am not sure of his dose at this time as I am waiting for her to get...
  9. smallfry

    New rash after wearing hollister for almost 2 months???

    New rash starting at the same time on my PICC line and stoma? Hi everyone, I've been wearing hollister for almost 2 months now and have all of the sudden broken out in a huge rash around the edges of the flange and now moving under the adhesive. I also have had a picc line for almost 2...
  10. smallfry

    Welcome Angus the Anus!

    Hi All, I've posted a few times about abscesses and fistula... I recently went in for an 11 day hospital stay to try and IV antibiotic called meropenum (not sure of spelling). So after things not really responding we decided on a temp. loop ileostomy, thus Angus the anus! Surgery was done...
  11. smallfry

    Has anyone had a temp. ostomy help heal their fistulae/abscessing?

    Hi everyone, I have had CD since 2001, was on remicade for 6yrs or so and had a reaction. Waited a few years but bit the bullet and started Humira back in Dec 2011. I have been having problems with tracts and abscessing in my rectal vaginal septum since about 2006. I currently have a seton...
  12. smallfry

    Approached with ostomy to rest fistulae

    Hi everyone, I have had crohn's disease since 2001 and been dealing with abscesses and fistulae in my recto vaginal septum since 2006. Started remicade in 2002 or so and had a reaction and stopped in 2008. The reaction scared me and it took me a while to bite the bullet and try Humira but...
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