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Recent content by soretum

  1. soretum

    Appetite problems

    Hi All, Just wondering if anyone else out there has ongoing problems with their appetite? A very quick background on my goings on! I was diagnosed with severe Crohn's colitis last June, had been pretty sick since last January....initially had a 4 month course of prednisone when diagnosed...
  2. soretum

    Stem cell therapy trials

    stem cell therapy trials Hi All, Has anyone had any experience with this? I'm currently making a decision between remicade (humira has been a big fat fail for me as was azathioprine and pentasa) or enrolling in the stem cell therapy trial. Quite a big decision, these are my last two options...
  3. soretum

    For those on weekly humira

    for those on weekly humira Hi all, I started fortnightly humira back in September, felt really quite good until beginning of December when in hindsight things slowley started to turn pear shaped...last few weeks been very ill, CRP highest it's been at 70, nasty dose of erythema nodosum (even...
  4. soretum

    Erythema nodosum

    erythema nodosum Hi All, I had a nasty case of this last year, mostly on my legs but a few on my arms and torso....currently in a flare up with very odd and random EN, mostly on my lower, outer arms, the odd one or two on my legs. Last couple of days the outer aspect of the soles of my feet...
  5. soretum

    Humira failing, feeling defeated :-(

    humira failing, feeling defeated :-( Hi fellow chronies, havent been around these parts much lately, started humira in october and had been doing reasonably well on it until xmas, been gradually declining ever since.... New and exciting symptom...needing to vomit when I'm having a bowel...
  6. soretum

    Ankylosing spondylitis

    ankylosing spondylitis Hola fellow chronies! Looks like this is my latest diagnosis! Makes perfect sense of 10 years worth of problems with back, hip, shoulder, achillies tendonitis, planter fascitis, sore fingers and elbows etc etc ETC! I've had a eureka moment at the doctors today! Not too...
  7. soretum

    Starting Humira

    CANT WAIT!!! So fed up with feeling like crap ALL THE TIME! Feel like I shouldn't really be pinning all my hopes on it just yet but definitly dreaming of soild poo and having enough energy to stay up past 8pm :D To all you seasoned Humira kids, how long before it started working for you?
  8. soretum

    This has probably already been asked but...

    ....how long did it take everyone to lose their moonface after the joy that is prednisone? I'm down to 10mg, nearly there!! Have really ballooned in the last couple of weeks though and also have a buffalo bump to boot! Have only put on 3kgs of the 9 kgs I lost but am beginning to feel like the...
  9. soretum

    MRI and diarrhoea?

    Hello fellow chronies, Had an MRI today, just wondering if anyone else has suffered from an...ummm...'laxative" effect following all that vile contrast they make you drink? It really is quite disgusting! And had 4 lots of D since...:applause: Really hoping its that and not the prednisone...
  10. soretum

    Prednisone questions!

    Hi all, Just wanted to ask you all how long pred has taken to work for you? I'm on day 10, felt not too bad for the first few days apart from insomnia and heartburn, had the first taper from 40mg to 35mg on Friday and felt like complete and utter shite Saturday and Sunday....so dissapointing...
  11. soretum

    The verdict is in

    the verdict is in I'm a chronie.... Colonoscopy today showed severe inflammation. Obviously still have to wait for histology but consultant is confident it's chron's colitis....so lucky I get to have both! Am being started on prednisone 40mg tapering 5mg a week and pentasa 4x500mg twice a day...
  12. soretum

    Colonoscopy

    colonoscopy Hi All, Well I finally have a date for my colonoscopy, 8th of June is D day (pun intended, with the bowel prep I'm sure there'll be plenty of D!!) I'm a nurse and have prepped many people for scopes, bit weird being on the other side! Dreading it but also looking forward to getting...
  13. soretum

    Awaiting chrons diagnosis - need advice!

    awaiting chrons diagnosis - need advice! Hi there, I'm not yet diagnosed but with a 5 month history of constant diarrhoea, 5kg weight loss, extreme fatigue, erythema nodosum on my lower legs, borderline anaemia and raised white cell and CRP, scleritis of my left eye, anal skin tag and boils...
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