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Recent content by soupdragon69

  1. soupdragon69

    Helllloooo Everyone!

    To those of you who know me - I made it back! - to you those of you who don't it's good to see you found us - welcome! Well its been an eventful few months to say the least.... Have had huge flare - they think - ended up going through all my tests again and they threw in a pill cam test for...
  2. soupdragon69

    ALERT for specific type Aloe Vera in UK

    Hi folks, Thought I better post something about this.. We have had an alert from the Health Protection Agency and its all on the news locally in Leicester where I live but thought it best to flag up to all here in case anyone has come across it!! The drink is called GAYATRI brand aloe vera...
  3. soupdragon69

    Allergy and Gluten Free Show London

    Hi everyone, Just thought a link for the Allergy and Gluten Free show at the Olympia in London from 21-23rd May 2010 might be useful. I have tried to go at least every other year and some of the seminars have been excellent. All the major charities are there for advice and there are lots of...
  4. soupdragon69

    Elemental here I come again!

    Hey folks, Well here I sit longing for my bed even though its 11am. Was up until 2am running to the loo yet again. The only time my stomach and the rest of my gut doesnt complain is either when I dont eat or just have my elemental drinks. Have been on Augmentin/Co-amoxiclav since last...
  5. soupdragon69

    Scalded mouth feeling and ulcers etc

    Hey everyone, Thought I would mention I was chatting to my gastro nurse yesteday during my remicade about having a sore mouth alot more of late. Was telling her I was getting ulcers but also that my mouth in general felt like it had been scalded. Toothpaste burns no matter how mild I have it...
  6. soupdragon69

    My Dad

    Hi Everyone, Just a note to say I am off to Ireland asap as my dad is currently in surgery having an abcess drained. He had his gall bladder removed (some of you will remember my going home a few weeks ago because he had a gall stone stuck and was very ill) and when having the clips taken out...
  7. soupdragon69

    Off into hospital

    Hi everyone, Just a quick note to say I wont be around the coming week (from 9am monday morning) as I am off into hospital under rheumatology for hydrotherapy, physio and rehab to try and sort out my arthritis better. Will get home again next weekend then back into hospital the following week...
  8. soupdragon69

    Some Good News Overall!

    Where do I start? Work: Due to start back at my current job this coming Saturday on a phased return of reduced hours whilst receiving full pay. Occ Health want me to spread it over 8wks. HR will only allow 4wks phased return (which is the normal time span). I am happy with 4wks. If I take any...
  9. soupdragon69

    Says it all I guess

    I got a copy of a letter my GI sent my Occ Health Cons in the post yesterday.. It reads as follows: Thank you for your letter dated 19th March regarding this patient. I certainly believe that her current occupation is aggravating her condition and that she would be far better from the disease...
  10. soupdragon69

    I am giving up now

    Hey guys, As some of you well know I have asked 4/5 times now about a GI appointment since my last scope 2nd Dec where I gave my consultant a hand written letter asking some questions that he said he would discuss with me in clinic. I got an email from one of my gastro nurses last friday...
  11. soupdragon69

    Shellshocked

    I went to see my GP this evening because my blood tests are climbing again liver function wise and the Rheums nurse on the phone has told me to stop my Methotrexate, keep doing blood tests and restart Metho when my levels are below 50 again at 5mg less than I have been taking. Problem.. this is...
  12. soupdragon69

    Tired of feeling crap

    Hey folks, Well here I am down to 10mg pred last monday and my guts have played up badly since wed night. I spent yesterday in bed sleeping in between running to the loo again with bad pain constantly. Back to feeling like I have a fist sitting in my right lower quad too. Yesterday was...
  13. soupdragon69

    Never Rains but it pours!

    I have had a series of emails from my gastro nurse this morning that have left me feeling really really down to the extent the tears are tripping me now and I cant stop. I mailed her early this morning to let her know about my chest/gut infection and the 60mg pred and antibiotics my GP had put...
  14. soupdragon69

    Vitamin D

    Ok... Last Tues at Rheumatology Clinic the Registrar told me that I had very low levels of Vitamin D in my blood tests last August (no one felt it important to tell me between then and now which I am not one bit happy about either!!) I checked the level ranges for blood tests... mine was 10...
  15. soupdragon69

    Methotrexate

    Well here I am about to take my third dose of methotrexate this coming monday. Rheumatology have me on 10mg once a week and say it may go as high as 25mg as a max dose. Was put off work for a week as I nosedived again coming up to my remicade infusion. It and commencing the metho were like a...
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