• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Recent content by steffers27

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    Question for IBD parents about Humira and Children.

    I have recently been put on Humira, i'm 28 and have had a lot of procedures, injections etc over the last 21 years none of which have really borrowed me. But I had my first dose of Humira a few weeks ago. It has been of course amazing in reducing my inflammation markers which came down to normal...
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    Something called phosphate

    Apparently I am deficient in something called phosphate? Anyone else experience this? Almost 2 weeks in hospital now. Told my consultant I wanted to speak to a medical doctor about medical management and he's now suddenly got his act together and brought my MRI forward. Lost 3 kilos in 3 weeks...
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    Elemental diet and blood sugar

    Does anyone else on elemental 028 have their blood sugar checked or would they only do this if they thought I had/or was at risk of diabetes? I've been on this diet twice before and no-one tested my blood sugars or even suggested it. But I'm on it again and suddenly the nurses are checking...
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    Dietitian on the ball

    I am currently in hospital getting supportive treatment for my Crohn's. The doctors are a bit useless but my Dietitian is amazing. -She checks my bloods everyday even after the doctors have said "your bloods look fine" and has picked up on a number of problems. For example, she has made them...
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    New Perspective

    :Karl: Currently in a hospital bed with a NG tube in my nose and IV fluids in my arm. Feeling a little bit sorry for myself...then, new patient arrives in my bay this evening. She's doubled over in pain and weeping on the floor and when another patient asks her what's wrong she replies "I have...
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    21 years later and still none the wiser...

    The story of my crohn's is long and depressing...so here's a bullet point account. - Toxic Mega Colon age 7, diagnosis of Crohn's, 3 months in hospital where I suffered multiple seizures and I had an emergency, permanent illeostomy. Weeks of rehabilitation learning how to talk again. -6 weeks...
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    Crohns/ and Crohns treatment related pancreatitis!!!

    I was recently admitted to hospital with severe de-hydration, an elevated heart rate and extreme rapid weight loss. I had been throwing up bile and had terrible back and abdominal pain. Now, I have had Crohn's disease for 21 years, had 4 major surgeries and been through all the treatments. But...
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