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Recent content by Sumayya

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    Gaining too much weight

    I have Crohn's disease however at the moment I'm in remission. During a flare I lose weight rapidly however this is my first time in remission after being diagnosed 2 years ago. Currently I'm nearly 57kg- I'm only 16 and as I'm short I'm concerned. I really just want some advice on how to...
  2. S

    Good news and small query

    Just a little background so u can understand my story... Had surgery in September 2015- right hemicolectomy and illiostemy. Was very ill. Then came dialated loops is my bowels so another surgery took place October 2015. It wants great as the rest of my bowel was inflammed so I was on TPN for 6...
  3. S

    It's my birthday and update

    I'm 16 today... Currently in remission however only on tpn and 500mls of modulen per day... Got an appointment on Wednesday to finally introduce a little solid in my diet as I've not eaten in 6 months... Hope everyone is well
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    May be introducing solids

    Hello all! Hope you're all well. As I've been on TPN for 5 months now my 6 month "sentence" is near completion! Tomorrow I have my first ilioscopy but I have had endoscopy and colonoscopy before. This will help my GI to have a look at how everything is going on inside. I'm hoping to get my...
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    Recession soon after asthma flare

    So I had 2 operations in September 2015 and October 2015- one a recession and the other to clear adhesions. Recovering well on the crohns side of things but realised my asthma has bagan flaring up. Last time my asthma was serious was when I was 8 and it hasn't been back since except recently...
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    Crohns op then asthma

    So I had 2 operations in September 2015 and October 2015- one a recession and the other to clear adhesions. Recovering well on the crohns side of things but realised my asthma has bagan flaring up. Last time my asthma was serious was when I was 8 and it hasn't been back since except recently...
  7. S

    First time in reimission

    Hello all! Hope everyone is well and having a great start to the new year. As I mentioned in my previous post- TPN for 2 months, starting feeds soon. Well just last week I got a call from my GI and he said to begin drinking modulen- 100mls per day to see how it goes. I've now increased the...
  8. S

    Nervous

    Today I have a inflixamab infusion and along side that I am going to me my GI discuss possibly beginning to feed again. I had an operation 3 months ago but due to complications I was left on TPN for a sum, given to me, 6 months - I'm nervous about eating because the last time I ate it sent me...
  9. S

    Mood swings

    Recently I've been getting a lot of mood swings- at times I'm happy or ok and then out of the blue I just get upset and cry for every little thing. I am a 15 year old teenager so it might be as I'm growing and hormones etc. But as a CD patient I just want to know any one experienced this? Or is...
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    Living with crohns as a teen

    Hey everyone, my name is Sumayya and I'm 15 years old, I was diagnosed with Crohn's disease a year with symptoms of dirreah, pains in abdomen, weight loss and loss of appetite. I was hospitalised as soon as I was unable to take the pain and the doctors did a colonoscopy and confirmed crohns in...
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