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Recent content by sunflower

  1. sunflower

    A rant and a question (not for the weak)

    First the rant. So, this flare took me by surprise. I knew I didn't feel good, but Saturday night I landed in the bathroom crying, and basically, okay - screaming. Inside I was passing stool, but it was not coming out at all. It felt like the old intestines were blowing up like a balloon...
  2. sunflower

    Guts on fire

    Do you guys think I may have an infection of some sort? This doesn't feel like a Crohn's flare, but my gut is having problems. Off and on for almost two weeks, I will have burning - like my colon is on fire. It isn't in my stomach like heart burn, but it feel sort of like that. Then a couple...
  3. sunflower

    Just need to vent!

    So, I had a follow up colonoscopy a few weeks ago. Doc said everything looks great! I am healing, no ulcers, no sign of inflammation - though I did not request a copy of my path or report, which I didn't do. He said, if the constipation gets worse, we can look into it farther. Well now, what...
  4. sunflower

    Is it important that your records are correct?

    I ask this because I got the follow up letter from my doctor about my colonoscopy that I had a couple of weeks ago. He said that I will probably continue to have frequent and watery stools due to the amount of scar tissue in my colon. Well, that is all fine and dandy - except those are Not My...
  5. sunflower

    No surgery

    And I don't know if I am really excited about it. Doc thinks that I probably have scar tissue on the outside of the lining somewhere that is causing my intestine to not expand properly - rather than having a stricture on the inside. So that would explain why no one has ever seen anything - but...
  6. sunflower

    Mixed feelings about news from scopy

    I had my scopy on Friday. Only took four tries to get the IV's in-sigh. But, I like this place because they use Propofol and it is excellent! Anyway, when I woke up, doc said that Humira is doing great for me!! Yay!! I am much better than I was. I know that my uclers are better. There...
  7. sunflower

    Good news for those of us on anti-TNF's

    JAMA has published a new study that found that MOST people on anti-TNF's do not have a higher incidence of serious infections than the general population! Yay!!! Here is a link: http://jama.ama-assn.org/content/early/2011/11/02/jama.2011.1692.abstract I read it on another board and wanted to...
  8. sunflower

    I was doing so well with Humira

    Then suddenly the horrible fatigue came back. Now my stricture seems to e clampig back down and I am in pain and cannot get things moving wihout miralax or dulcolax Ugh I hat this. But, my"arthruits relted to bowel disease" is responding well! I may be facing surgery due to the stricture...
  9. sunflower

    Very helpful Pain Chart

    I know some of us keep symptom journals. I use one of the stool charts in mine, and found this pain chart on another forum. I think this is a very good explanation of what can be described on each pain level. You can repost this elsewhere, leaving the attribution intact. This pain chart...
  10. sunflower

    Can they just take part of the large intestine?

    I am pretty sure I am facing my first resection. Yippee!! I have a stricture about 10 cm in from my rectum. I would really like all of that area removed. It has hurt for years, and I have begged the doctors to take it out for a long time. They keep saying it will come back. But, I am hoping...
  11. sunflower

    My tummy hurts again

    Darn it!! I know it always does because I have Crohn's. But, it had been getting better, so I am sad. The Humira has been helping - or so I thought. My swelling had gone down and I was feeling so much better. Now it is starting to feel all swollen inside and it is getting hard and...
  12. sunflower

    Possible skin infection

    Well, it IS a skin infection. And I am due for a shot tomorrow. Do I need to call the doctor or muddle through? I had what I thought was a bug bite on my arm, but it just didn't seem to want to go away. I have had it for two weeks. It was red and felt like a bruise more than anything - not...
  13. sunflower

    I am bad

    I baked a cake. A chocolate one, with chips. Now I want coleslaw to go with my sweet n sour chicken legs. :voodoo:
  14. sunflower

    Well, guess I am joing the club!

    I called the doctor's office today to report my non-progress - thinking they would put me on Pred for a while. The nurse FINALLY called back at about 5:30 and said the doctor wants me on Humira. And, did he talk to me about that?? No, he didn't, so I am a bit surprised. I had been thinking in...
  15. sunflower

    Ankylosing Spondylitis?

    Who do you talk to about this particular condition?? I am fairly certain I have the symptoms and have had them for years. When I talked to my GP about it, he said it can't be because you only have symptoms while you are flaring from Crohn's. Well, I don't think that can be true, because you...
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