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Recent content by Tesscorm

  1. Tesscorm

    Anyone have a Normal Fecal Calprotectin Level but diagnosed with IBD?

    When my son began to show symptoms, they came and went... started in December for a couple of weeks, some diarrhea and that was about it. Started noticing some paleness, weight loss and fatigue in February but he's fair skinned, had started new phys.ed. classes which were 2 hrs /day plus...
  2. Tesscorm

    School or college reopening Fall 2020 immunosupressed

    I've been following this thread just out of interest, I guess??, and I have to say I feel for all the parents whose kids are still in school! Such a big added worry on top of everything else we worry about. I just want to pass on hugs and my wishes that no complications from school come to any...
  3. Tesscorm

    Sibling being evaluated

    We also reused ours. Rinsed it well every morning and night. I can’t remember if I used any soap?? but i agree w MLP... less infection risk if you can get more supply.
  4. Tesscorm

    School or college reopening Fall 2020 immunosupressed

    That is absolutely nuts!!! If all tests are like the one I had, no one can do that to themselves! I can't believe the school expects accurate test results when expecting kids to self test! I think you should tell the school strongly that all tests should be professionally administered...
  5. Tesscorm

    Heard from Doc today

    So tough for her to decide and equally tough for you to wait for her decision. There's so much going on in her life and she's fought this for so long, I'm sure she's thinking she's sacrificed enough! :( I'm really hoping she can hang in there till December and still avoid an emergency! Lots...
  6. Tesscorm

    Heard from Doc today

    I can only offer you hugs and good wishes as well! I'm so sorry that after all this time and effort, it's come to surgery. :( But, O's lucky to have you supporting her all the way! And, glad she has connected with someone as well. Sending lots of hope and prayers that surgery will run...
  7. Tesscorm

    Silent Crohns

    Amazing news! I'm so happy she's recovered and is able to get right back into her life! Really great!! :D(y)
  8. Tesscorm

    Heard from Doc today

    Kim, all I can do is send hugs and good wishes. I really am so sorry that O and you are facing such tough decisions. She's been so great with all of this, for so long, I wish an easier recovery had come for her. :( Thinking of you and praying for the best, I wish I had more to offer...
  9. Tesscorm

    My 10 year old Boy - prescribed Humira for life before any diet assessment

    Way to go Jack!! What a great story! So happy he had the opportunity to play at college!!
  10. Tesscorm

    My 10 year old Boy - prescribed Humira for life before any diet assessment

    It was hard for me to accept that my son needed biologics. As I explained above, his only treatment for two years was EEN and PEN, which I was ecstatic about!! No risks!! The exclusive period did indeed take him into remission... after the six weeks, he felt great, had gone back to playing on...
  11. Tesscorm

    My 10 year old Boy - prescribed Humira for life before any diet assessment

    Welcome to the forum! It is a great place to find advice, support and information! But, I'm sorry you had the need to come here. It is heartbreaking and hard to accept when our kids are diagnosed. My son is an adult now but he was diagnosed at 16 yo. His initial treatment was exclusive...
  12. Tesscorm

    Keeping me on my toes...

    ha, just read through my other thread and some is so similar, at points, like deja vu!... in addition to seeing an eye specialist, he was also tested for HLA-b27 last year... It's just S... I'm not going to complain, because so far, all turns out ok but he just gets all these weird things...
  13. Tesscorm

    Keeping me on my toes...

    Thanks MLP! I appreciate that and will let S know for sure. As it's been so long, I'd have to go back and read my other thread (I'm sure I put more detail there! ;) ), but I remember now S telling me that the specialist at hospital checking his eyes, on more than one occasion, doing more than...
  14. Tesscorm

    Keeping me on my toes...

    Thanks CIC :cool:
  15. Tesscorm

    Keeping me on my toes...

    eye crustiness - it is mostly near the eyelash line. I'll suggest he try the baby shampoo... easy thing to try. This time it's not affect his actual eyes but, thinking back, last year, it did affect his eyes... I remember at his birthday in July, they were really red and, we were outside on...
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