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Recent content by thike1966

  1. thike1966

    Hotel Crohn's Forever, The Return Of The Fistula

    Please keep an open mind to these thoughts. I do, by no means, intend to offend. So if you are willing to not have any hateful or mean responses, read on. I am not here to fight with anyone but myself. I thought I was on my way to getting my ileostomy reversed, when a sudden anal roid popped...
  2. thike1966

    Coming Out -- A Gay Man's Journey with an Ostomy

    Fred, Hello and thank you for your posts. I have an ileostomy and I am nervous about posting how a recent roid led to a discovery of an anal fistula, or an extra hole in my anal wall. When putting medical cream on it, I too felt my extra hole and my gloved finger went in and rubbed my prostate...
  3. thike1966

    Christmas Eve, my car was lost, later found

    On Christmas Eve, I was so excited, I got to a Denver Bronco Game. My good cousin gave me two free tickets. I had a friend who bailed at the last minute. Luckily, I met a nice young lady near the gate and told her, "I have an extra seat I will trade you if you buy my a Sprite soda. We had a...
  4. thike1966

    I am now in remission

    https://www.paleomedicina.com/en/crohns-disease-successfully-treated-with-the-paleolithic-ketogenic-diet I want to thank you for the inspiration. I for one know my diet is UBER IMPORTANT and am open to learning more to benefit, since for the last 6 years, between C-Diff 7 times, bad care from...
  5. thike1966

    The Man Who Laughs, a Wonderful Film

    I watched a fantastic movie tonight about a boy who gets cursed with a permanent smile. It goes through his life as a man, who on the surface is just a circus attraction. The silent film say more about humanity than any movie I have ever seen. It was at the time considered a monster movie, but...
  6. thike1966

    Can it be Crohn's disease?

    A low CP, means no liver enzyme showing swelling. Crohn's can happen anywhere from the mouth to the anus. Do you get Cold Sores often? An Endoscopy might be in your future, it looks at the small intestines. I had both and Endoscopy and colonoscopy at the same time. All clear in the colon, I had...
  7. thike1966

    Stelara vs Skyrizi

    Scipio, I have had great success with Skyrizi, after failing Ramicade, Humira, Entyvio, and Stelara. I wish you the best and hope you soon find what works best for you.
  8. thike1966

    Better than Last Year

    Hello to all the Wonderful People who are better than any physical condition that they deal with. Skyrizzi is the best drug I've been on. no flare for nearly a year for the first time since diagnosed 6 years 372 days in the hospital since, is enough. And I went through losing my father and also...
  9. thike1966

    Trying to ignore on oncoming flare

    I may be fooling myself, the cramps are pretty bad tonight and they are unlike any I've ever had. Last October I had my ileum and part of my colon removed. It seemed we vacated the troublesome spots that have haunted me for 5 years and 378 days in the hospital. Over 20% of my life in three...
  10. thike1966

    Trying to ignore on oncoming flare

    Thank You, My dad is improving and that eases the stress which has been a trigger for many, many, many flares. I’ve had 378 days in the hospital in the last 5 years and now I’m flare free for four months, a record for me that I need r to keep growing. I feel back in control and my guts are...
  11. thike1966

    Trying to ignore on oncoming flare

    I’m in an ICU with my father, yesterday, he had most of a tumor removed from his spine with two areas of his spine. L6 and L7 now have acflexible cage filled with fluid, six screws and two rods. His spine was straitened and he is a 1 inch taller now. There was s cancer in his liver bile ducts...
  12. thike1966

    Skyrizi

    Skyrizi is working great for me right now. With my past doctors, wanting me to be on Stelara from the beginning, I suspect many of my other drugs were working too, but when I got C-Diff 6 times, it didn't matter what drug I was on, I flared. When a close family member or friend passed away, I...
  13. thike1966

    Skyrizi

    I had my third infusion of Skyrizi today it it is going well. I find it is about the same amount of taxing feeling as Stelara was. A few moths ago I had surgery where they took my ileum and part pf my colon when they initially went in to repair a hernia around my ileostomy. Thinking I was going...
  14. thike1966

    All Summer Long

    I spent most of June and July going four times to the hospital for one flare that just wouldn't go away. Then on August 15, I had surgery to repair a hernia, that was causing 4 hour blockages underneath my stoma. What I thought was to be an hour long procedure took four hours and part of my...
  15. thike1966

    Refused Care

    Every time that I go through extreme stress, When someone I love dies from natural causes, I flare from stress. My mother, than my brother, then my sister and a week ago Monday one of my dear friends was murdrered which was compounded by other stresses too, have a major flare in my esophagus...
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