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Recent content by Toni68

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    Coronavirus/Covid-19

    Thanks rose... no not at the min.. just had bloods done today before small Bowel mri on Monday (though why they’re not including upper tract I just don’t know) start date is down for 10th of April (have to wait 4 weeks cos they told me to take Simponi this month) ... well I was dx last august...
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    Coronavirus/Covid-19

    Hi forgot to mention,I was also dx with esophageal Crohn’s last august, with no bowel involvement,(which is VERY rare)after 7mnths of being on 120mg daily of nexium and fixidine and topically treating (swallowing)flixitide(2puffs twice daily)... now being told HAVE to switch to infliximab...
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    Coronavirus/Covid-19

    Hi I’m in ireland where cases now stand at 20, all related to people who’ve been to Italy. I am on Simponi(100 mg monthly) for 5years.. I rang IBD nurse re taking this months and advice was to carry on as it will be in your system for 4 weeks anyway... I pointed out I also have asthma and high...
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    Anyone wondering about chest pain and heart burn etc.. read this !

    Hi I know this is a REALLY old thread... but I too have recently been told I’ve Eosphageal Crohns... background- diagnosed October 2013 aged 45 with crohns( ileum)..March 2014 2 feet bowel removed (ileum,caecum and appendix)..put on Humira but after a year was allergic.... did a pillcam study...
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    Trouble Swallowing

    Hi wildbill... not sure if the above reply was for me??... if so I actually get b12 injections every guarter And also take folic acid daily as terminal ileum was removed+appendix
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    Trouble Swallowing

    Hi again received blood results today (taken day of diagnosis of esophageal crohns) and guess what????..... as I suspected... absolutely fine ... no raised esr or crp????.... answer me that.... asked nurse how that could possibly be?????.... answer.. no idea
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    Trouble Swallowing

    Hi again everyone.... meant to say earlier,.. I’ve been put in an inhaler, Filixitide 200...4 puffs twice daily (to be swallowed)and nexium 40mg twice daily... I’m on inhalers already for asthma( salamol and seritide 250)... very strange trying to swallow rather than inhale I can tell you... but...
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    Trouble Swallowing

    Thanks again trysha.... annoying thing is, in May of this year I asked was I in remission and answer was yes???.albeit medically reliant 🤷‍♀️
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    Trouble Swallowing

    🙏
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    Trouble Swallowing

    Hi honey & trysha.... well attended appointment today, I have esophageal chrons and s stricture.... very rare ,on investigation apparently... 2% of the chrons population are effected... would love to know if there are many on here diagnosed with same?... are going to start me on an oral steroid...
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    Trouble Swallowing

    Thanks for reply Trysha..... have an appointment in Tuesday (thank god) will give you update
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    Trouble Swallowing

    Hi I’m having a strange time ... resection 2014 ..diagnosed 2013.. 51 yrs young now... last 6 months random choking ... always takes 3 hrs stuck in throat (meat)1 trip to a&e for me to swallow it upon reaching triage( mouth filling with saliva I can’t swallow)... endoscopy last year had a result...
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    What Might be Causing this Lower Left Abdominal Pain?

    Hi it's 2 years since my first resection(dsx oct 2012 resection march 2013 2 feet removed )was on humira for 9 months but then had an allergic reaction so have been on simponi for the last 9 months and 1 3mg if entocort a day,also have AS, asthma and high bp I'm 46. Over the last 2 years I've...
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