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Recent content by vz101

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    Nervous about Entyvio

    I've done both Remicade and Humira. My Dr wants me to move to entyvio but I'm really nervous about the side effects and that it won't work. I'm getting blood and iron infusions due to blood loss. blood tests indicated an increase in inflammation but CT Interography didn't detect any problems...
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    Mayo Clinic - ?

    I have been feeling terrible lately. Less gut symptoms and more fatigue and joint pain. After complaining to my GI he suggested I see a Hematologist for ongoing anemia and with my PCP for joint pain. He also suggested I am depressed. Which to some extent I maybe, but I don't think depression is...
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    Tired - Joint/Bone Pain - Frustrated!

    In September I had a GI bleed resulting in three hospitalizations and the infusion of 8 units of blood. I have not felt the same since being discharged from the hospital. I'm exhausted, and have terrible joint pain in my elbows, knees, and kneck. Plus my legs swell at the calves every night...
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    Prednisone & Joint Pain

    I spent a week in the hospital less than a month ago due to a GI bleed. They found ulcers in my small bowl during a colonoscopy which lead to adding prednisone to my regimen. Starting at 40mg a week, then reducing the dose by 5mg, every week until done. Over the years I have been on prednisone...
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    Bleeding Ulcers in the Small Intestine

    I had a GI bleed two weeks ago requiring 8 units of blood over three days, and a few tests. During a colonoscopy they discovered many ulcers at the bottom end of my small bowl. The working theory at this point is there are more up higher that were bleeding. Treatment is a high dose of prednisone...
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    Crohn's Friendly Constipation Relief?

    Last week I needed two units of blood due to low CBC levels. The NP also started Cypro. After a few days of it I was extremely constipated. Constipation is a common problem for me I think due to scar tissue and strictures forming. I stopped the Cypro on day 3 which was last week, but I'm still...
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    Dr Wants a Dietitian Consult

    My check up last week didn't go well. Fatigue, nausea, and cramping have slowly been getting worse. My CBC was down to 6 so they ordered 2 units of blood. Ever since the infusion I have been feeling a little more off than usual. While at the appointment the Dr asked for a consult with a...
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    Difficulty Passing BM

    I have had issues throughout the years with full/partial strictures and scar tissue. Typically my issues have been in the small bowl but the large bowl has some narrowing as well. It seems like anytime a stool is formed it causes me problems. Stomach cramping, nausea, sometimes dry heaving...
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    For The Guys Out There - Crohn's and Sex

    I have the stricturing type of disease mostly in the small bowel which has resulted in five surgeries. After a surgery I typically have up to six months of surgical remission. During which time everything seems to work ok. However once things start to get bad again in addition to the normal...
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    Best Treatment Facility for Crohn's treatment in the US.

    What are your thoughts on the best place for Crohn's treatment in the continental United States?
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    Mayo Clinic

    Has anyone been treated at the Mayo-Clinic for Crohn's disease? I was treated by the Indiana University Medical Center without any luck, but a GI Dr. that was horrible. My symptoms are out of control, and my quality of life is non-existent. Any feed back would be greatly appreciated!
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    Will my life ever be "Normal" again?

    I was diagnosed about 13 years ago, and in that time have had 5 surgeries. 3 of them in the last 5 years. Currently I am on Humira but don't judging from my increased symptoms, it must be losing its effectiveness. I get weekly venifur infustions, monthly b12 injections, plus daily I take...
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    Cymbalta Withdrawal Symptoms

    Two years ago I was being treated by a GI doc at IU Medcenter which is a research facility. My GI felt he had used everything at his disposal and was unsuccessful at preventing 3 stricture surgeries in 3 years. It turned out to be an unpleasant experience and I eventually decided to end the...
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    5 Surgeries with no end in site

    Well I was officially diagnosed about 12 years ago but had symptoms my entire life. About 2000 I was mis-diagnosed with a swollen prostate, appendicitis, appendicitis again with an appendectomy, and then an ulcer. The appendectomy led to abscess. In an attempt to relieve the swelling the...
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