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  1. kiltubrid

    C Diff - no fever and no cramps?

    I ended up getting diagnosed with microscopic colitis, in addition to Crohn’s. I’m taking Budesonide to treat it, and that is working well. My doctor said it’s not common to have both, but it’s not unheard of. It took a long time to diagnose because we assumed it was a Crohn’s flare initially...
  2. kiltubrid

    Remicade / Renflexis Cough

    Has anyone had any luck with a remedy for the infamous Remicade cough? Or is it something you just have to live with as an unpleasant side effect? Otherwise Remicade has worked really well for me and I don’t really want to switch to something else that is less effective with both Crohn’s and...
  3. kiltubrid

    Who Here Hates Colonoscopy Prep as Much as I Do?

    Prepping tonight for what will probably be about my 30th lifetime colonoscopy. Still haven't developed a taste for the electrolyte solution, although I have finally developed a method for keeping it down. Man, is that ever nasty stuff! :ywow: My older sister just had her 2nd lifetime...
  4. kiltubrid

    Ankylosing Spondylitis in the Ankles

    I have had bad pain in my ankles for several months that my GP thought was plantar fasciitis. The stretching exercises for that didn't help so she sent me to the rheumatologist, and he pretty quickly diagnosed it as Ankylosing Spondylitis. I know most people get this in their hips or back...
  5. kiltubrid

    Swelling/numbness in hands and feet

    I'm been on remicade since Sept 27, 2013, and since then have had swollen fingers with numbness and tingling (like if feels when a limb falls asleep). I also have the same to a lesser extent in my feet. It's especially bad in the morning when I first wake up, but it never completely goes away...
  6. kiltubrid

    Starting Remicade tomorrow: what will it be like?

    I have my first infusion Friday at 3:00 pm CST. When I made the appointment, they told me to plan for 3.5 hours. I know I'll be hooked up to an IV, but I'm curious about what people do while they ae hooked up. Do you read? Sleep? Are there a lot of interruptions, or are you pretty much left...
  7. kiltubrid

    Bruise at injection site with Cimzia

    I had my 3-month injection today and one of the two left a huge purple bruise at the site. A little drop of blood came out after I removed the needle, and I didn't much of it because that happened when I first got trained with a nurse. But a few hours later I noticed a big purple bruise about...
  8. kiltubrid

    Cimzia Kicked in for me today (just after 2nd loading dose)

    I got really sick with the flu right before my 2nd loading dose and was feeling miserable for a few days, but am happy to report that the flu is clearing up, and today for the first time since I took 40 mg of Prednisone last summer, I am feeling better than I have in ages. No joint pain and my...
  9. kiltubrid

    Cimzia and the flu or a cold

    I took my first loading dose of Cimzia two weeks ago with no problems or ill effects (no good effects either, for that matter). Yesterday I took my second loading dose, and just prior to taking it (a few hours before) I started developing what I thought was a head cold with sore throat, runny...
  10. kiltubrid

    Does Cimzia Help with Joint Pain?

    I am starting Cimzia very soon, and am wondering how effective it is with joint pain. I have bad inflammation in my lower back and knees due to moderately to severly active Crohns (few digestive symptoms, but it shows as active up in biopsies and is really doing a number on my joints)...
  11. kiltubrid

    Starting Entocort and Have Some Questions

    I have lived with Crohns for for 30 years, and most of that time it has been in remission (knock wood!). About two years ago, it flared up and I have had a hard time finding the right drug to keep it under control. I develop allergies to nearly every drug over time, including sulfa, asacol, and...
  12. kiltubrid

    In remission for almost 30 years

    I was first diagnosed with Crohn's back in 1982. Although I had been having the symptoms for years, none of the doctors back then knew what Crohn's was. I ended up in a hospital emergency room, malnourished, with a high fever, unable to keep even water down, weighing just 83 pounds. Luckily...
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