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    Flaring question

    Everyone is different. I had luck with stopping a flare with just a 7 day prednisone course, and sometimes it took switching to another biologic to go in to remission. You must be "on something" all the time to keep inflammation down.
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    Turmeric drink?

    Turmeric did nothing for me and actually made my dria. a bit worse. After researching more about - it helps with inflammation if turmeric is a permanent and a life time part of your diet - like people in India use turmeric as soon as they stop breastfeeding.
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    Using Stem Cells To Treat Perianal Fistulas

    Update on my stem sell clinical trial - it was a double blind study, donor stem sell injected along the fistula track and suture closure of internal fistula opening. Unfortunately, it did not work for me - lots of swelling and pain followed with increased draining. I do not know if I receive a...
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    Stem Cell Therapy

    Update on stem sell clinical trial - it was a double blind study, donor stem sell injected along the fistula track and suture closure of internal fistula opening. Unfortunately, it did not work for me - lots of swelling and pain followed with increased draining. I do not know if I receive a...
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    Stem Cell Therapy

    I am in the process of getting a stem sell plug If all goes well It will be done on Feb 28. https://newsnetwork.mayoclinic.org/discussion/promising-application-for-stem-cells-crohns-complications/
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    Can I Have a Pet?

    Love my dog - can't imagine my life with out!
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    New no knot seton for comfort

    I am happy to report that my new no knot seton has been put in and I am very happy with it. The place that distributes this seton is in Boston area. I was able to get a free sample and my surgeon replaced the old rubber band seton. The company name is AMI and contact # is 781 990 1806.
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    New no knot seton for comfort

    I just received a new no knot seton - it;s a brilliant idea -instead of a knot its a smooth tube with female to male connection. After a year finally convinced my surgeon to put it in. It;s so uncomfortable with the knot moving up and down there and tearing my fistula skin.
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    Draining Seton -- lots of pain normal?

    I am having a no knot seton put in in a few weeks - it has no knot - just smooth tube with male to female connection. Leaving with a seton knot is so uncomfortable!
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    Lump next to seton

    I have had pockets like lumps near seton on the outside. Its a collection of the draining from fistula. Sometimes if the fistula output is a bit thick -it's possible to happen,. Sit's baths as many as you can will do can help, if they do not help, you may need to see a colo rectal surgeon to...
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    Cholestagel Colesevelam to treat Diarrhea

    Cholestagel off label use is not a good idea - pancreatitis reported after use. Concentrate on reducing colon inflammation - inflamed colon - not absorbing liquids - Diarrhea.
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    LIFT procedure/advancement flap/Crohn's - head's a bit of a mess!

    Do you have a definite Crohns diagnosis? This procedure involves total fistulectomy, with removal of the primary and secondary tracts and complete excision of the internal opening - poor success in patients with Crohn disease or acute infection.
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    LIFT procedure/advancement flap/Crohn's - head's a bit of a mess!

    The lump may mean you are developing an abscess. CT scan maybe needed and exam by a colorectal surgeon. I had a LIFT procedure - did not work, fistula re opened. Advance flap has a very low success rate.There are a lot of research going on. Stem cell, and the regenerative medicine will begin...
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    Why Don't GI Doctors Take The Role Of Diet Seriously?

    I did a lot of unconventional stuff to see if something might help. Things like homeopathic remedies (which I now realize is just expensive water), dream analysis, a Aervedic diet, acupuncture, Probiotics, prebiotics, gum mastic, licorice, special fiber, glucosamine, L-Glutamine, flax oil, S...
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    Diet Help and Advice

    I did a lot of unconventional stuff to see if something might help. Things like homeopathic remedies (which I now realize is just expensive water), dream analysis, a Aervedic diet, acupuncture, Probiotics, prebiotics, gum mastic, licorice, special fiber, glucosamine, L-Glutamine, flax oil, S...
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    Ayurveda for crohns disease

    I did a lot of unconventional stuff to see if something might help. Things like homeopathic remedies (which I now realize is just expensive water), dream analysis, a Aervedic diet, acupuncture, Probiotics, prebiotics, gum mastic, licorice, special fiber, glucosamine, L-Glutamine, flax oil, S...
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    Bioprosthetic fistula plug

    knot‐free Comfort Drain sounds like a winner! I need to talk about it with my doc - current seton with a knot is very uncomfortable. Is it being used in USA?
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    Update - 6 month's Filgotinib stage 2 clinical trials

    I am participating in Filgotinib stage 2 clinical trials. My hope was to close complicated rectal fistula - draining seton in for 4 +years. Seton removed the day of trial start. After 3 month's, I developed an abscess in the external opening (it closed up)and had to have draining under...
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    Bioprosthetic fistula plug

    I had it done. No luck... Abscess formed around it and fistula got infected.
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    6 month's update on Filgotinib

    I am participating in Filgotinib stage 2 clinical trials. My hope was to close complicated rectal fistula - draining seton in for 4 +years. Seton removed the day of trial start. After 3 month's, I developed an abscess in the external opening (it closed up)and had to have draining under...
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