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Dear Crohn'sParent, I have the exact same disease as your son. I am middle-aged, though, but wanted to respond to say that you are not alone with your worry about getting started on that drug. The GI team at my clinic wants me to take both 6MP and Remicade together... I have hesitated and...

TracieD—hope Alex is doing okay?!! Give him a big hug. I am taking 1,000 mg of L-Glutamine daily ON AN EMPTY STOMACH. For probiotics, I take first thing in the morning, on an empty stomach also. Oh, I use the powder b/c it gets the best action.... 1/4 teaspoon (or sometimes 1 teaspoon, depends...

She is a pit bull/lab mix... much bigger now! Re. turmeric/curcumin... I am not having any problems with that at all! well, maybe just a bit of gas :) Everything else he is taking sounds good! I think the L-glutamine is really good for us Crohnies . . .

Sarah, sounds very good! My dose is 3mg, and I also take Glutamine....seems to be working, but (as you know from this forum) everyone is different. Are you taking a good probiotic? Keep us posted.... And hang in there!

Oh, sorry to hear this! Can you tell me what CRP and Sed Rate mean? Is he doing a lot of other supportive things, like diet-lifestyle? Keep me posted! I added L-Glutamine, and other supplements recommended by my naturopath.

I am so glad to have found this group! First of all, this forum is amazing....second, I feel much more supported now, since starting LDN treatment was a bit scary for me. Been on 3mg since December 7, 2012. I'm also taking L-Glutamine, probiotics, and high potency turmeric (curcumin). So far so...

Dear Gracifer, You are young to be going through this, but you have the maturity to reach out and get the support you need! I wish I had been as together as you are now at 21. When I was your age, I was always secretive about having an I diagnosed intestinal disorder that no one knew about (this...

HB, Helen!!! Have a great birthday ... you are doing so well!

Hi Helen, and welcome GuitarJamie03 & All, :lol: when Helen mentioned the big dent in the sofa! ....speaking of which, last night I watched the best movie! It is called "Fat, Sick, and Nearly Dead," about an overweight Australian man who has an autoimmune disease called Chronic urticaria....he...

Heather, wow, I feel so badly for you and Zachary! I am all stressed about having to go On Remicade and 6MP, AND read your post and thought, look what that little guy has to go through! I wish I knew someone on this drug. I looked it up and it sounds like an immuno modulator. If this doesn't...

Oops, twingy pains.... I just remembered....make sure you are not constipated (try ground flax seed at night mixed with a powdered probiotic ;)

Hi Helen, So glad to hear you are doing well! I had surgery with a big incision 6-1/2 years ago.... I remember feeling those thingy pains, too. Once, I moved a laundry basket with my foot, and ouch!!! Take it easy—you had laparoscopic, but they still go through the wall of muscle. Talk to your...

I, too, am sending prayers and thoughts your way and for Mariah's uncle. I was glad to read that he can be at home. My dad was at home at the end of his life, just as he wanted it. Hang in there! Your support is such a gift to him.

Dear Helen aka Grumbletum, I was following along and commenting (I am fairly new to this forum...), and I just wanted to see how you were doing, post surgery. My resection was a 6-month recovery in all, with a slow return to normal life and work. Hope you are good!

Hi Helen, aka Grumbletum, I had the same ileo secal resection surgery, in 2006, and I'm still in remission! Hang in there.... Mine was vertical incision, which was six weeks of recovery, so you will hopefully get over the chest infection with antibiotics, and get on the road to recovery! Listen...

Hi there, I had a similar fistula, but mine had gone around the large colon—I'll be thinking of you tomorrow, Grumbletum, and good luck! "Think positive," that is such a good mantra.

Hey David, I am so glad to hear from you! I had a doc in the ER tell me that I "didn't present as a Crohn's patient." I asked him what he meant, and he said, "well, many patients with Crohn's are depressed and malnourished, anxious, etc." I really challenged him on that! We are usually at our...

Hey David, first of all. This a forum is amazing...I keep reading the stories! Also, I don't know how you keep up with it... It looks like a really good site for people with Crohn's—I wish I had known about it earlier. But, I am still getting tons of info as I read. I have a book blog that I can...

Hi Dana, Thanks for mentioning my book! It is nice to see that people are reading it, and it is helping them. Sometimes Iget emails from people, and they tell me that it has helped. I just joined this forum, and it is excellent!