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Well..this medicine is really hard for me to withstand it. I was on the routine dose of 25 mgs.i ended up in the hospital for 4 days be side my whole mouth and throat were covered with these deep craters. So I was taken off that and humira for a week and restarted humira and methotrexate at...

Julie..you're a strong mama and woman!!so happy to hear Baylee got the infusion and they are reevaluating her care..you rock!!:rosette2:

Oh Julie!i hate that Baylee has to suffer because some nurse is too lazy to follow up and GET the blasted paper work! I agree with what's been said..we visit if you can't get this resolved quickly! I am chronically anemic and get iron infusions too. When I need one, I feel horrible..so tired...

Ihurt..hey girl!(: I completely agree..big pharm rules the world of medical care. It's disgusting!and the biologics are that expensive without health insurance. I couldn't do it if I didn't have the insurance I have. Snd humira is $4000 a dose..I take it once a week so that's $16,000 a month...

Hi jessasha! Thanks for the suggestion.i have been on humira alone for about 3-4 years and it began losing its effectiveness so I was having symptoms. I also take it once a week. So that's why they thought to add methotrexate because its supposed to increase humiras potency by 30%.i had also...

I was on 25 mg each week which is the standard dose for crohns but clearly I couldn't handle it. So this Friday I restart it at 12.5 mg along with 40 mg of humira. I understand not wanting to take the high powered biologics. The potential side effects are very scary. I wrestle with my decision...

I know right?! Those mouth ulcers are brutal. I have had a few shallow one during flares and the corners of my mouth crack. But this was on a whole different level...deep oozing ulcers all thruout my mouth and throat, on my lips. I couldn't eat either..just drink really cold fluids!the skin in...

Well gut doc..thanks for the positive message!(: I have had crohns probably for 30 years.first trouble was a ruptured appendix in 1983 but I was undiagnosed until 2000.and honestly?if I had a wee bit of peeling skin on my lips I think I could have tolerated it...oozing deep ulcerations not so...

Hey KWalker..I took methotrexate subcutaneously usually in my abdomen. It was a scary thing for me to consider going on it but I do think it has some merit. It is a sad thing that I'm willing to go through the chance of getting this ill again but with the dose cut in half I'm hoping I can...

UnXmas..I really do understand the predicament. I am a recovering addict..with a very painful illness that requires narcotics when I'm flaring or have a bowel obstruction like right now(I'm in the hospital). So I get plenty of judgement from health care providers. I even had one horrible gi...

Hi all.. I just wanted to post some experiences I have had on methotrexate as I started on it along with humira recently.. I have had many side effects. The first ones were flu like at toons with low grade fevers, severe muscle aches, night sweats and chills, nausea and vomiting. Then came the...

Thank you all for so much support and kind words! It does get hard sometimes..and I think I cannot go on one more step. But again..SOMEHOW..I can. It's really beyond me how I do it!(: Acceptance really is a process. I felt crushed when I became incontinent. I felt dirty and soiled, smelly all...

UnXmas..you know, I completely can commiserate with you!i cannot even tell you how many times health care givers have labeled me and blown me off and I have a very clear diagnosis of crohns and have been resistant to most treatments. I have a huge chip on my shoulder about this issue..and I know...

UnXmas..thank you so much for your kind words and thoughts!im actually in the hospital right now.. I had a bad reaction to methotrexate causing huge ulcers in my mouth and throat. It was hard to even drink fluids unless they were really really cold!i also had a partial bowel obstruction so had...

UnXmas..I agree with most of what you say but wanted to point out that stress can definetely affect structural changes in the body..with the chronic release of potent hormones such as adrenalin and catacholamines,not to mention the release of cytokines with the inflammatory process. These...

Unexmass..oh did you strike a cord with me! In an earlier posting in this thread I spoke about the 'second brain' which is our gut as others have pointed out as well..tons of neurotransmitters..makes sense when there is that flight or fight reaction of the sympathetic nervous system and its...

Hi foolish harvest!i am going to a pain management clinic too.ive had 6 bowel resections and 10 abdominal surgeries mostly related to crohns so I know it's tough sometimes! My doctor prescribes norco 7.5mg three times a day. I am also on tincture of opium due to the number of stools I have...

Thanks David..they did a biopsy on egd and its not h pylori..(:

Not really other than to start back on nexium. I've never had ulcers other than crohns so this was new to me although I have dealt with gerd. I'm just glad it wasn't a new spot for crohns!(:

Thanks David! The other gi docktrs I recently saw we're not impressed one bit by the duodenal ulcer by cat scan. They said basically that a cat scan is a poor test for this particular ulcer. My mre and colonoscopy didn't reveal a duodenal ulcer(strange indeed) bu did show a few creations in the...