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I just wanted to reach out and ask for some support. I have been feeling lately that there is little hope in my life..feeling better,having a sense of purpose or joy. I we t to Chicago last month to get into the stem cell transplant program which I am still being evaluated for. I am not ill...

I really do understand your frustration!i just started methotrexate with humira a month ago. I had been on humira which had stopped being very effective about 6 months ago. So now for the past month, with the methotrexate shot, I get fevers, horrible muscle and joint pain, and ulcerations all...

I know,right atomb? Calmoseptine changed my life for the better!..I love it..crack for your crack!LOL!(:

Effdee..what an amazing journey you have had with sct!thank you so much for sharing the process. I had no idea this treatment even existed until I came to this site and read the blog by mr ziggy. It was a week or so before I was making a trip from ky to Chicago to see a doctor at uni of Chicago...

I think this is an exciting alternative to the plethora of toxic drugs we usually have to take for crohns. We all know the horrid things prednisone can do..and many times I feel the treatment for this illness is far worse than the symptoms for me sometimes.not to mentio the ridiculous number of...

To be honest,I wish it were legal in Kentucky because I'm tired of taking toxic drugs. I know it sounds cynical, but I wonder how much the big pharm companies control through profits from incredibly expensive biologics.And the drugs we are offered seem so toxic.if they change DNA and the whole...

Hey crabby!wl that one does suck!i have also been through all the oral agents with no side effects but no he'll either so was placed on remicade. I built up antibodies which caused angioedema which is swelling of the face and throat,a potentially early side effect. From what I understood the gi...

Hello everyone!i feel like you are my crohns family!thank goodness for you all!well I have met dr Burt who does the stem cell transplants here at northwestern. I am still being evaluated and will send him pathology slides/reports from some of my surgeries from resections. He believes that I may...

This is all good information as I am going on methotrexate today along with humira which has lost it's effectiveness. This is kind of the last effort for coventional treatment before I do or are eligible for a stem cell transplant. We shall see what works!

That's a good idea!i am sure they will have me doing the combo treatment first although dr Barrett understood my reluctance as other treatments may work for a brief time then a big fizzle! I am beyond impressed at how quickly they got me into the initial evaluation..I am having an mre...

Haha!i meant mr ziggy!!autocorrect sucks!!(:

Thanks auntie me and mr soggy!i actually ended up being admitted to northwestern in a flare up so I'm waiting to hear about we're i go from here. They may want me to try combo therapy with humira and imuran/methotrexate/azothiprine first before consideration of the stem cell program.i have yet...

Well,I thought I was basically out for even being considered for a stem cell transplant from what the doctor at university of Chicago..but I have a go light!i meet with dr Barnett on Tuesday then dr Burt on Wednesday with a colonoscopy on Friday! Whoa..that was quick work!i only called them...

Oh that's funny!you can imagine the whole waiting room having reflexive vomiting!!i do hole you get feeling better quickly!

I know right?! And listen..if you're a frequent flyer in one place they judge you in another state even!i came to Chicago and went straight to the er..having about passed out on two flights..I got reamed out by the er doctor who said leave..put my clothes on and he said..no stay..I...

That's the only way we can change things not only for ourselves but for others who deserve appropriate care!

Oh the love/hate relationship I have with western medicine doctors!i absolutely see their place in the world. They help us to navigate through the web of confusion,assisting us in finding just the right concoction that will give us a better quality of life. Most are compassionate,going into...

I don't have issues with my weight right now mostly because I've been on steroids off and on since mar h. It's more of a love/hate relationship.im kind of a goodie and love gray ingredients. I've been vegetarian in the oat but can't do it now..it hurts way too much and I end up having jut...

Mr ziggy..I talked with Paula today and am faxing my initial evaluation in the morning. They are going to set me up for a colonoscopy and an mre!that fast. I can't even believe it that they are willing to slot me in while I'm in Chicago for a week, originally only to see the doctor who diagnosed...

Thanks Abby..the laws in Kentucky on marijuana are very harsh. There's no medical marijuana here legally. So for me its just not an option. I'm also a recovering addict so there's that concern although I would consider it if it were available in this state and under a doctors care. I tried it...