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Thanks auntie em!it seems drastic but I'm about feeling out of options right now..I'm also getting rather close to the cut off age. I'm 51 so theres no time to lose!(:

This has been such a great thread to read! I have been wanting to actually lobby for an ileostomy as I am just TIRED..tired of bowel obstructions,bowel resections,wondering when the next one is going to strike. I was recently told that for all 6 of my resections I have a surprising amount of...

I got it last week!its the bomb isn't it?! The only thing missing is Craig but I guess you can add that in extras.

I know..I post a lot on this site so please excuse another one!i can't seem to find what I can eat without having pain and diarrhea. I've tried it all.. High protein, low carb; extremely health and clean diet from all processed food; processed food, fast food, no meat, meat,no veg,veg thats...

Gustaff..I'm not sure how 'mature' I am in handling my crohns!some days,even at 51,I want to crawl into my bed and just veg!and actually I do just that! I feel the same as you..there are so many here that have it worse off than me and seem to be able to handle jobs,children,and their crohns! I...

Trying to figure out what works and what doesn't is a chore isn't it??i wish budesonide worked for me as those nasty side effects from prednisone suck big time!but it just doesn't really work for me even though my disease is mostly in the terminal ileum or what's left of it!

Lulubelle..I've done the same thing..antibiotic ointment and a and d..I have tried everything for the corners of my mouth with no success..anyone find anything to help?ive done all lip ointments you can think of!

So sorry!for some reason I thought you were incchisgo!my mind must be going as well as my intestine!(: I experiended your nhs system twice..1983 in university hospital in London in which they misdiagnosed me and my appendix ruptured): and just this past spring on the isle of wight..much better...

I'm just wondering..am I even sick enough to be considered for stem cell transplant? I've had crohns formally diagnosed since 2000 by full thickness biopsy and have had 6 bowel resections and 10 abdominal surgeries all from crohns. I've failed remicade and humira stopped working. My inflammatory...

My mom also went trough a bout with ibs and a stomac bug..when I told her I felt pretty bad when she asked me..after being discharged from the hospital with kindney stones and a flare..she said"I know how you feel"..oh dear!

Poor you!😥i so understand the frustration!i am going through a similar thing.. Even though I have well documented crohns. The doctors tell me different thugs and right now, they seem to think my crohns is well managed even though I'm spending my life either near a toilet or on it! I'm tired of...

Ouwie!!i hate to cough after surgery!! Hope you are feeling better soon and you heal quicker than lightening!:hang:

Osci- my thoughts are with you! Pain is so difficult to withstand and I know you want some clear answers to why you're having it and why you feel so fatigued. Have you tried any other bulking products? Like citrcel or psyllium? I just feel for you! Please keep us updated!

I've been on all three biologics so far..remicade was the hardest for me. It lasted for me maybe a week and a half? Humira did great with very little side effect until it stopped being effective. I just started cimzia and I felt horrible after the injection for a few days..like walking...

Omg!emily!!it so does! I do love my mother.so do! She has ibs and recently had a stomach virus. Now, this woman has lovingly been there for each of my several surgeries even in a different country.. However..I have just been released from the hospital with kidney stones and a flare, feel like...

I have been on both medicines too. While I love budesonide as it has relatively very few side effects for me, prednisone worked so quickly and made me feel tons better. Right now it seems where I am I practically have to beg for prednisone now..take about a bitter pill to swallow!(pun intended!)...

Having severe fatigue is no fun and a part of my experience in flares as well. I also am chronically anemic requiring an iron infusion every three or four months. I also have restless leg syndrome which is so annoying!but when my iron dips down,my legs and even arms feel like I can't stretc them...

Glad to hear you made the decision yo did..it sucks for now but in the log run you'll probably be grateful!(:

What do you know??i was pretty sure the inflammation at the corners of my mouth were related to crohns as I always get them when flaring. But I've also had fissures in my nose at the same time with sores that are a big bother!

I'm with everyone..I had one of my worst flares on Celebrex..the only time I had to go on tpn with a central line that got infected and was treated for a whopping three weeks. Don't risk it!i know codeine isn't OTC I the states but maybe you can get a fee days of it or hydrocodone for your ear...