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PS..if you have it, they will find it!and if it's not an IBD, they will also find out what it is..they see weird cases there all the time!their rns are also especially trained in a fellowship for IBD along with their residents..it doesn't get better IMO!

I'm going to see dr Russell Cohen at the university of Chicago in the IBD clinic. He originally diagnosed me in 2000 and they were fantastic then!spent a few hours looking at all my history and tests. He is a specialist not only in gastro but in crohns and uc. Since you live in that area,I would...

Hey everyone..I was in the hospital last week with a flare and passing kidney stones. I left feeling pretty good. Now I'm starting to spiral down again): low low energy to the point of not wanting to get out of bed, take a shower,etc. this is crummy in general!crohns has hitch hiked my body and...

Oh poor you! It's bad enough to feel bad from the illness then to feel bad from the drugs!): I felt pretty bad on rEmicade and after about a year was taken off because of antibodies..my face swelled up,I vomited as soon as the remicade hit my blood system. I hope it's just your body getting used...

Please don't give up or think you're completely bonkers! It's a hard disease to diagnose. I didn't get a firm diagnosis until I was 40 and they think in looking at my history that I first had crohns when I was 20 and had a ruptured appendix in London. I had many surgeries in my 20s then was...

Hi Liz and welcome!i can't address working out..wish I could but I'm not in a physical condition to do that right now. I have been on humira in the past and although the injections weren't pleasant, they weren't horrible or incredibly painful. I always took the med out of the fridge for about 20...

Wow. I'm not in a relationship and there are times when I'm very grateful for it. I couldn't imagine being sexually active right now. And I can at least care for myself a bit. Just going to the loo several times a day and smelly like poo no matter how much I wash or how good my hygiene is would...

Hello and I'm so sorry you are going through so much. The er can be a frustrating place for sure. I'm also a frequent flyer and until recently, wasn't really taken seriously even though I have had several resections for bowel obstructions. It's demoralizing! I finally decided to go to a...

I just wanted to share a book I am reading called The Chronic Illness Experience by Cheri Register. Although not specifically for IBD, this book is the best I have read concerning issues dealing with having a chronic illness. It covers all sorts of specific areas in our lives that are hit hard...

I get it morning, noon, and night! At night, when it's bad, I have noticed even in a horizontal position if I bring my knees up a bit I have the same urgency as if I were standing or sitting. In a flare up, I also have fecal incontinence which just started about a month ago. I also have poor fat...

Sarahbear..I feel it's never a bad thing to seek other views in regards to treatment options. I did it when crohns was first mentioned to me and I went to u of Chicago then. I had basically been undiagnosed for 25 years and as I've probably mentioned, my crohns presentation wasn't fitting into a...

Hi khashayer and welcome!i just joined the forum myself in the past month and have found it really great. I don't know that much about AS so I can't help you there. Remicade affects certain immune cells called tumor necrosis factor which seem to cause muc of the inflammation in ibd. It is not a...

'just snap out of it'! I love it!thanks for sharing this!!

Hi colinJ..ivehad several partial bowel obstructions and they seem to cleAr with bowel rest and supportive care like Iv fluids, ng tube, and pain meds because they are so painful! If you can, limit intake to liquids. Mine have usually cleared in a week. Taking immodium/lomotil may not be a great...

AuntieEm..I'm so sorry that youre going through it right now!:rosette2:It's frustrating enough to deal with feeling badly and then to find out your doctor left without having proper coverage is adding fuel to the fire!i just wanted to send you s big hug and let you know you aren't alone!I hope...

I'm glad to hear your doctor is listening to you and that he's willing to treat your symptoms. Good for you for pushing through and trying so hard to take those horse pills too! I don't know what pentasa looks like these days but mine had these granule type things in them. Does yours have the...

I was on pentasa years ago and can't remember the pills being so large as the NUMBER of them being ridiculous!i think I took 16 pills of pentasa a day!jeez! It was just too much with very little effect. Your doctors sure aren't making your illness any better are they?! It can be frustrating to...

Beccalynn3,I am really sorry you are having such a rough time of it!david offers some great suggestions! I've been on all the routine crohns meds; biologics including first remicade(caused a serious reaction from antibody formation),humira(wasnt that effective),and now changed to cimzia. I was...

I am a cigarette smoker and have started chantix to stop. It's by far the hardest drug I have d er tried to come off of and I'm a recovering addict. After my surgeries I noticed when I went for weeks without smoking and restarted, the pain in my right lower and mid quadrant of my abdomen were...

Emily2..got that right!ouchie!(: it's a new pain that I have..happy happy joy joy!:rof: