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Bethany that's just so not cool! I can't believe the staff at your doctor not only doesn't report test results to you but actually OMITS the tests you so need for treatment! It's a real dilemma since you have such a great relationship with the doctor. I hope you get good news tomorrow at your...

Hi Bethany and I'm so glad you found this amazing forum of the most loving and supportive people who know what you're going through!i know this illness can't be easy to deal with at your age and to have been dealing with it since you were a tadpole! I'm so sorry! I was about your age when I had...

I love reading everyone else's whine fest! It makes me not feel so alone!that and I've posted so many times on this forum today I have lost count!LOL! Oh those prednisone days!ug!i remember them well..I gained 70 pounds on freckkng steroids and that was water weight AND fat!i had the lovely moon...

Hi Dave!surgery is always a formidable undertaking that's for sure.ive been through 6 bowel resections and 10 abdominal surgeries related to crohns. I didn't really have a choice on most of the bowel resections as they were emergent for complete obstructions due to adhesions(scarring outside of...

Crohnschicago..I'm surprised really that there are no support groups in Chicago especially with the ibd clinic at the university of Chicago. I thought that only happened in small cities like mine in Kentucky! I'm much like you..I'm very social and the face to face support would be nice. I attend...

Ok..I'm putting in a lot of threads today!(: thanks for reading them!my question is: I know I have roids bit I get some amazing pain in my butt with radiation into my left cheek..like into the muscle. I've never had fistulizing crohns, have no redness or swelling down there,just the bad pain. In...

Yeah..I sure do!:) so many things but right now I wish my crohns would sit up and have a huge sign saying 'HERE I AM!!' my crohns had never presented in a textbook fashion whatever that is! But my inflammatory markers have always been nil, the only thing that shows up occasionally is...

ILcrohnsgirl..I can so relate to your frustration and sadness at wanting to have a fuller life but just not being able to because of this illness! I'm so sorry you are having such a rough time but you have found a great place to get support and not feel alone! The past few months have been rough...

I think I've been having these tOo but connected to either hemmies and of diarrhea,I don't know. The pain also radiates into my left cheek which is weird and new..anyone else have that?

Thanks everyone!i actually had to be admitted to the hospital and stayed for 4 days. I went to a different er and they actually listened!i also was under the care of a new dr who is a colorectal surgeon and oddly also medically manages IBD. He seems pretty good but my trust level is still low so...

Nogutsnoglory..I was hesitant too about Indian food but seems the tumeric and ginger help digestion a lot.. I steer clear from the hot spicy things though.and also the cream laden things usually denoted by 'something korma'

Hi michelle!thats wonderful that ayurveda helped you so much!i tried it soon after being diagnosed but not at a center. It was through a western doctor who had studied it and applied his western medical model with Ayurveda. It wasn't so successful for me unfortunately at the time but I am...

Scl..fantastic!!i so want to do this pilgrimage too so I can't wait to hear your stories!i have a close friend who has a retreat house at the beginning of the journey in France near st jean de pied du port.her brother in law also has a hermitage there. I was there this past spring and it's...

Hi all!i just wanted to share whats been going on with me. I was just discharged from the hospital with a flare up and kidney stones..that was new and fun!:frown: But I passed the stones and my flare has calmed down for now.i went to a new hospital for me and saw a different doctor who seems...

Oh wow..I have the same problem!i have tried various diets which haven't really helped at all. I even get diarrhea with fluids. The only time it slows down is when my intake slows down. I'm tolerant of lomotil or immodium.. I have just begun a very low dose of questran as the full dose causes...

4peace..oh sweetie!such a difficult position for you! I have no children and couldn't since I had a hysterectomy when I was 25,probably thought now to be a consequence of my crohns. I always wanted...very badly but now,knowing what I know and having been through what I have been through, I'm...

Gawd..I feel like all I do is come here and gripe!I'm sorry if I come across that way..I'm just at a loss of what to do now.

Hi! I haw restless leg syndrome. It annoying isn't it??i have had seizures but was due to tramadol(yes..a rare side effect but I had two)..no seizure disorder thank goodness!

Ok..needing to vent!i just got copies of my records from my gi doctor because I wanted a referral to a colorectal surgeon. I'm a nurse so can interpret data pretty well. My labs are and have always been normal..always. But my colonoscopy showed crypt abscesses and moderately active crohns in the...

I'm so glad your diarrhea is under control!thats pretty awesome!!(: The calmoseptine is OTC. You may want to ask the pharmacist or call around as I had a hard time finding it. But believe me, it's worth the search and not pricey at all! I'm not sure why my d is so bad right now..but I have two...