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I'm the only one in my family with IBD. My mom and older brother have ibs but have tested negative for an IBD. No one can be identified as having it in the lineage.

Wow..being aware but not able to do anything during a colonoscopy sucks!!i have woken up during them and seen the procedure but not really caring so much because it wasn't painful..except one time it woke me up when they took biopsies and I felt the scope pinch when the thing took tissue. The...

Hi Abbie..I haven't had a flat duodenum but do have chronic diarrhea and malabsorption probably from all the bowel resections Ive had. I try and eat a high protein diet and if I do a liquid one. I make my own chicken brothy soup with organic chicken thighs, Chicken broth and a few vegetables...

Oh you sweet people!!after having read various recommendations for lotions and potions for the back side, I followed two of them and I think my life has just changed!! 1)..procto foam..my new BFF!! In the states it's very expensive but right now I have no co pays so you better believe I'll be...

GRATEFUL..not fateful!

PS..I'm so fateful I have somewhere to talk about this stuff!!

Thanks so much! I did have someone look at it and it seems that it's only from severe diarrhea and my hemmorrhoids which prolapsed and were really painful. I think the stuff I was using to help my roids kept everything really moist all the time so it caused some major irritation and erosion...

I've just never had ulcerations Xeon there or any real perianal problems.I became used to hemmorrhoids and methought painful, I can live with them for the moment..

Thanks smallfry! I'm seeking a sown one open from a colorectal surgeon and an IBD specialist. Ecsuse I feel as compassionate as my gi docktr is, she has reached her limit with me and tends not to take much of anything seriously anymore

PS..it's at the outer aspect of my anus..more anal than vaginal if that makes sense!:yfaint:

Smallfry..how did you know when you were developing a fistula?was it just obvious!thanks!

Hi all..and thanks for your kind replies. I don't have an std since I'm not sexually active. I can't tell if there's a hole or not. I took photos( a new low!) on my iPhone so I could have a looksie myself. All I can see is an ulceration and there does seem to have pus. It could be from the...

Hi ladies.. I have a question. I have seen some ulcerations between my anus and vagina. This has been going on a few weeks now and no matter what butt cream I put on it, they don't heal and hurt! I do have hemmorrhoids which also seem to have a couple of visible ulcerations. I don't know what to...

@cara..I was on remicade in the beginning when all the oral agents failed. It absolutely wiped me out and I finally had built up anti oldies which caused my face to swell even after being premedicated with different things. So off remicade I went. Then I waited until humira was finally ok'd for...

The us system just doesn't work.period. I was in an nhs hospital on the isle of eight during a vacation this year..whilst my first nhs experience in university hospital in London really about killed me..really..they allowed my appendix to rupture as I was misdiagnosed.. The last one was...

Aw Laura!im so sorry you're in such pain!pain can make the brightest day look pretty gray.. I'm amazed that you could do all that and admire your ability to try and push through. And yes, sometimes the pity party is just what you have to do!it may not take the pain away but it somehow gives...

How about this one from an er doctor..'you just have chronic pain syndrome..try some acupuncture and a therapist'..that was last night..oh..the blood in the toilet is a figment of my imagination..along with the 6! Resections.thanks pal!

:rosette1:@nicecupoftea..so true about medical vs surgical mds! I was in the hospital on my vacation in the isle of sight this past April and the two teams had a fight over me! The a & e docktr warned me..then he visited me on the ward and said..see?its all politics! Some things are universal! I...

Nicecupoftea..aren't they all?formiable that is!(: but don't let them intimidate you..I'm a nurse and as far as I'm concerned they can blow that ego tripping out their own backsides!!haha!(: Isn't it funny that even with a quite distinctive history I get that psychology speech??i have to...

No, you should have joined the forum!! I have known crohns disease and have had 6 bowel resections..it's just my clinical snap shot in this period of time doesn't show much. I'm switching to cimzia tomorrow if it comes in the mail. And regardless of what the experts say, here we are.. I do know...