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Nicecupoftea..I am so sorry you are having to go through this!i completely understand the grinding down of the spirit by illness. I'm not sure I can offer anything but compassion and understanding to you! I am clinically in remission but my quality of life sucks. I'm either in the bathroom or...

Jami..I'm so sorry to hear you are struggling! I'm hoping cimzia works for you as well! I get my first loading dose tomorrow via mail. I'm tired too girl!And tired of being sick and in pain.. I hope for me starting cimzia doesn't confound the clinical picture because I so want surgery..hopefully...

Cara..that's a great idea to make yourself a sanctuary!i don't have the room but then I live alone except when I'm too sick and end up staying at my folks even though I'm 51!(: somehow it helps to be loved on and to be able to watch unlimited tv! I don't have a tv because I have associated it...

Weirdly, iceberg lettuce used to cause me quite a bit of pain..now it's ok! You have to love crohns..it's like a moving target!

Hi laurajlLh..welcome to this wonderful forum! Crohns and it's treatment can be incredibly frustrating. But the support you get here is without parallel! On the dieting route..for me I found I could lose a lot of weight by doing a high protein low carb low fat diet. I also did pretty good crohns...

Hey jami!yep..we are all different with this disease. I go to a pain specialist here too and it helps a bit. Lomotil doesn't work for me anymore as I has built up a tolerance. Bummer. And questran worked for awhile then I began to get partially obstructed with it. I've also tried OTC miralax...

Hi there and welcome to the forum! I'm kinda new here myself but have had several resections and abdominal surgeries that they are pretty sure have all stemmed from crohns disease. There sr so many innovative surgery methods now such as laparoscopic surgery and robot assisted laparoscopic...

This forum and all who are here mean so much to me!now that I have found you all ..you may never get rid of me!(: it IS the most supportive and loving place and somewhere I can feel I have something to give back especially when I am stuck at home near or most likely IN the bathroom, feeling...

Dear lilwing63, Im really glad you found the forum! This has been so amazingly helpful to me!there are so many things that I have learned here that have helped me body,mind, and spirit..and it's free(: I realize it's so so hard on a fixed income. I am on a fixed income too having had to go on...

Jami..I never thought I would ever want an ostomy but now I am coming to Chicago to lobby for it!im going to the IBD clinical u of chicago and was seen and treated there in 2000. I have had 6 bowel resections and am switching to cimzia from humira this next week. For some weird reason, my body...

I was diagnosed at 49 and am now 51. I probably had it they think since 20 when I had a ruptured appendix and peritonitis. I had several a dominal surgeries in my 20s then my 30s were very healthy..fast forward to 40 when I was in the peace corps in Africa and had been in India for 8 months...

David..that's pretty interesting!who knew?(: I'm Irish descent,polish,and French..

Mayuko..welcome to the forum and the crohns club!(: it is really one club I would have rather passed on but I am so grateful for the forum! I have always loved veggies and for the past 15 years ate pretty healthily. I,too, was a vegetarian prior to my diagnosis but I had to start eating meat...

Hi mecmelly and welcome to the forum! I am so sorry you are having such a hard time. I know remicade and other biologics are scary. I went through the same thing and grapple with it all the time. I wonder.am I exchanging a bit of time that has a good quality for the potential of cancer or any of...

Hi confused expat and welcome to this wonderful forum! You are really going through the mill and it's doubly hard on unfamiliar ground. I kind of went through a similar experience first while living in India then Africa working. The pain was exquisite at times..fevers and I thought it was some...

Dear Campbell..I know that feeling of desperation! You are not alone. Crohns wasn't even on my radar when I was diagnosed at 39 even though I had had a ruptured appendix at 20 with many surgeries following in my 20s. Thank goodness my 30s were healthy years. Listen..there is something obviously...

I am..gulp..51!(: I was diagnosed with crohns at 39 but had first 'flare' at 20 with a ruptured appendix,peritonitis. :rosette1::rosette1:

Shay..I actually have disability retirement through the federal government which is lucky for me. I get my insurance through them too. My health insurance is really one of the best in the us and STILL I have these crazy deductibles! I did hit the crohns lotto this end of year though when I hit...

Oh yes..I believe crohns has been absolutely devastating financially for me! I had to stop working and go on disability..there went my gross annual income by two thirds. I luckily have great health insurance but even so, there are co pays for er visits and doctor visits. Drugs alone cost me...

Dear hope hope! Oh no!! Not having access to health care is awful! Is there any way you could go to France?i know it's expensive and it may not be an option for you. I was in Mauritania in the peace corps when I had to be flown home because of crohns. The only other alternative for me would have...