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Crohn's Disease Forum

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  1. J

    Undiagnosed and feeling alone :(

    I think the test for inflammation definitely sounds like a good one to have and I had never heard of it before. Maree I hope all the best for your son, I struggle with all of this at 19 so at 10 I think hes amazing, because being undiagnosed and tested for everything and anything is not easy to...
  2. J

    Undiagnosed and feeling alone :(

    Thankyou Maree I will definitely try to push for more tests regarding parasites :) CatherineM I don't want this to sound odd but I am so glad to have finally found someone with such similar symptoms as me. How long was it after your surgery that you had your burps and pain back? And no not had...
  3. J

    Undiagnosed and feeling alone :(

    Thankyou for all your help Nathan its nice to have support from a fellow undiagnosed :) Jeanne my MRI on my small bowel is tomorrow and I had an upper endoscopy 3 years ago that came back normal but that was before my symptoms got to the stage they are at now. Not had a colonoscopy but think I...
  4. J

    Undiagnosed and feeling alone :(

    They were occurring about twice a week before I started my fortisip only diet and the attacks last for hours and the pain gets worse as the time progresses, I haven't had an attack in about a month but I'm not eating and my medication has been increased aswell
  5. J

    Undiagnosed and feeling alone :(

    Would a parasite stay in my system for 3 years though? Im in the process of waiting for the results of a helicobacter pylori test thing at the moment but apart from that I dont think parasites have been tested for. My blood results do show that I have raised levels of LFT in my liver when I have...
  6. J

    Undiagnosed and feeling alone :(

    My story is an ongoing one that is starting to make me feel depressed and alone. At 19 I dont think spending so much of my time poorly is the best way to lead a teenage life but I have had to accept that I am not a normal teenager and that hurts, especially when nobody I know understands what Im...
  7. J

    Undiagnosed Club Support Group

    Hi all I am completely new to this forum, but for the first time in my life I feel like im not alone in my hunt for a diagnosis. I have been suffering with the same symptoms for over 3 years now and I am still yet to have a diagnosis. It all started when I was 16, I had these horrible burps...
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