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  1. dreamintwilight

    Hyrimoz Biosimilar?

    I 100% agree with you on your last statement about the patient assistance programs not being as organized, clear-cut, or helpful as Humira's program. I had been using the Humira copay card until my insurance at the time was subject to that fun change where they no longer wanted to count any...
  2. dreamintwilight

    Hyrimoz Biosimilar?

    I'm glad to hear you're doing well on your biosimilar so far. Please continue to keep us in the loop how things go! I'll run out of my Humira stash at the end of February, so the first week of March will be my first time injecting the biosimilar Amjevita. Fingers crossed things go well. I've...
  3. dreamintwilight

    Humira stopped due to insurance

    Glad you are on something that works for you! I've been on Humira for over a decade and their patient assistance program has been great. My experience switching to a biosimilar (not by choice!) has not been an easy transition, thus far, so wanted to share the experience for others who may be in...
  4. dreamintwilight

    Humira stopped due to insurance

    Hey @Bird22girl! Just checking in after I filled Amjevita for the first time this year. I still have plenty of Humira before I switch, but wanted to start filling Amjevita as soon as I could to make sure I maintained my stockpile of meds and also to get reimbursement going to help apply toward...
  5. dreamintwilight

    Humira stopped due to insurance

    Yes, let's definitely stay in touch/updated! Feel free to private message me if I miss a response on this thread, but I'm guessing our experiences might be helpful/relevant to others who may be in a similar boat. I 100% understand about not wanting to rock the boat with any changes. I'm hoping...
  6. dreamintwilight

    Lasik eye surgery

    Thanks for updating us! So glad to hear everything is still going well and congrats on your baby! :)
  7. dreamintwilight

    Hyrimoz Biosimilar?

    Yeah, when I let me PCP know about my impending switch to a biosimilar, he mentioned the same thing about if any sort of symptoms seem to pop back up that it should be plenty enough reason for the insurance company to approve a switch back to Humira. I'd rather not have any issues, honestly! But...
  8. dreamintwilight

    Hyrimoz Biosimilar?

    How're you doing now? I'm being forced to switch to a different Humira biosimilar, Amjevita, in January and have been nervous about it since I've been in remission for 10+ years too.
  9. dreamintwilight

    Humira stopped due to insurance

    I'm in the same boat as you. Insurance is forcing me to switch to Amjevita effective January 2025, no longer covering Humira. I've been on Humira since 2010, which has kept me in remission. My GI doesn't seem to be concerned about the switch (and therefore is not inclined to go through the...
  10. dreamintwilight

    What happened to David and many of the old members?

    I joined back in 2010 I think when I first got diagnosed with Crohn’s. I was on frequently because I knew no one with IBD (and was a newlywed in a brand new city with no local friends either!) and this was the best place to find support and information on the Internet! Thankfully, my Humira and...
  11. dreamintwilight

    FDA Authorizes New Long-Acting Monoclonal Antibodies for Pre-exposure Prevention of COVID-19 In immunocompromised

    I just heard about this as of this morning! This is interesting and I will be curious to find out what the availability is for providers/patients. And/or if anyone in the forum has had it yet what their experience is with it.
  12. dreamintwilight

    New study vaccine and immunosuppressants

    Let us know if you find out your results! I, too, am curious how you faired since you were on Humira at the time. 🙂
  13. dreamintwilight

    New study vaccine and immunosuppressants

    The Prevent COVID study sends a copy of the Labcorp results directly to study participants. So I got a secure email from UNC that had the document attached with the exact numbers. Tests are paid for by the study, so no payment was required from me (they told us to indicate a third party was...
  14. dreamintwilight

    New study vaccine and immunosuppressants

    Thanks, Lisa. Seems my particular med combo is pretty suppressing compared to others. 😟 I was hoping to hear from others on here enrolled in the studies also on Humira to see how it varies, but haven't heard from too many participants overall.
  15. dreamintwilight

    CDC: Some Immunocompromised People Can Get a Fourth Dose

    Right! It’s just finally interesting to hear/see “firsthand” accounts of how people’s antibody levels varied since I don't know many people in my every day life who take biologics or meds similar to mine. My mom is enrolled in the same study and jumped from a 7.1 (while on Remicade that wasnt...
  16. dreamintwilight

    CDC: Some Immunocompromised People Can Get a Fourth Dose

    I am also enrolled in the Prevent COVID study, which I believe is the same as your kiddo. I suppose kids are also supposed to be better at building antibodies too though, I believe. So, it would make sensefor their levels would be higher than mine (a 37 yr old)!
  17. dreamintwilight

    New study vaccine and immunosuppressants

    Wow! I’m also on high dose Humira (weekly as opposed to every other week) + 75-100mg azathioprine daily. It would be nice to know if there was a specific trend in terms of antibodies based on each medication type or combination. Like, is it possible for someone else taking the same type of meds...
  18. dreamintwilight

    New study vaccine and immunosuppressants

    Wow, so I knew my antibodies were low to begin with (thanks Humira + AZA!), but seeing how high some of your antibody levels were is amazing! My initial antibodies were 3.4 after 2 doses and after 3 doses is now 14.:confused: I’m assuming mine is so low due to being on combination meds that...
  19. dreamintwilight

    CDC: Some Immunocompromised People Can Get a Fourth Dose

    Interesting! I was just half joking with my GI last week at my appointment that I was waiting to hear about 4th doses for immunocompromised folks as our 3rd dose wasn't considered a “booster.” I’ll have to reach out to her about this, but I’m in the same boat as others and got my 3rd dose in...
  20. dreamintwilight

    Combo therapy and covid vaccine, anyone had a serology test confirming immunization?

    I’m on combination therapy of Humira (weekly) + azathioprine (Imuran). I enrolled in the Prevent COVID study and had my 2nd Pfizer vaccine mid April. My first antibody test was at the end of June. I had a 3.4, which was also indicated as “high” (though obviously not as high as others). I’m...
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