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Hey @Grant! I was/am on Questran (or knock off versions) for over 30 years (small bowel re-section and then gall bladder removal) I've now had two resections (2nd one Nov 2023) and I've switched to Colesevelam because all the cholestyramine companies had shortages. Debating on staying on pills...

Been there @Lynda Lynda. Just breathe. Try to sleep as much as possible and be thankful there are people trying to help. I hated my latest stint for my second small bowel re-section. Was in for a week. Hated everything and just wanted to go home. Getting stuck in my own head made it worse. Read...

@kiny just to be clear you are 100% on EEN? Meaning you eat NO "solid" foods ever?

My parents both developed autoimmune issues LONG after I was diagnosed with CD when I was 15. My dad developed psoriatic arthritis and my mom exczema and other skin disorders. All 3 of us are on various biologics to control our issues. My brother has not been diagnosed with any autoimmune...

I have ALWAYS felt that my whole Crohn's journey began at an afternoon barbecue unsuspectingly eating uncooked meat when I was 15. Could it be coincidence? Maybe... but I don't think so based on the articles that all mention salmonella and E coli. AND... stress definitely triggers a lot of weird...

All I can tell you is you need to be strongest advocate for your own health. I have had CD since I was 15 (I'm 56 now). I had surgery when I was 20 (small bowel resection) and for 20 years after that felt amazing. But what I discovered in my 40s was that I did indeed have active Crohns again...

...those who clean and maintain rest-stop restrooms and "port-a-johhnies"! A recent road-trip "uh-oh!" had me looking for one of these oases, and when I finally found a picnic spot with a portable on it, I was in heaven when I discovered it was clean and well-stocked. (huge happy sigh!) So I'd...

@Cyoung I'm in Canada too. My old health insurance covered 80% of the cost of my Stelara, and Abbvie covered the rest. Now that I'm solo (got downsized in Feb) Abbvie is covering the full cost for a year. Make sure you let your doctor know if you can't afford it. They'll help you get the costs...

Trial and error. Keep a food log. Honestly... when I simply started paying attention is when I discovered tomato skins (nightshades) were bad for me. It's going to happen slowly, but I find once you actively pay attention to what you had the day before it begins to shed light. It won't be beams...

Re: diet Listen to your own body! I tried a few things (including SCD diet a few years ago). Half of what they recommended in that book didn't work for me. Nuts are bad for me, so nut flours etc caused major problems. Also... nightshades and me do NOT get along. So I limit the things I know...

Welcome!

I guess I'm just frustrated that between my second re-section and previous gall bladder removal, an over abundance of bile and food interactions continues to wreak havoc on my system. No amount of Bile sequestrants seems to control it, and I was wondering if the whole system was out of whack...

So... based on all of the above, would it suggest that going EEN even while in remission is a good way to rebalance the gut microbiome? I just had my 2nd resection at 56 and I don't ever want this to come back. I'm on Stelara and so far so good, but based on the above, would it HELP to go EEN to...

Alhutch, I'm not a doctor, nor do I play one on TV. (your age suggest you can remember those commercials!) A lot of what you describe sounds like "food-borne" issues I've developed as I've gotten older. (I'm 56 | Crohn's DX at 15 | 2 small bowel resections most recent this past November | on...

Hey @Khaley, I was "symptom free" for well over 20 years. Felt great... but in actual fact I'd probably had some flares. Just chalked it up to too much beer and wings. From 40 onwards I got scopes done and there was evidence of stricturing. Humira controlled it for a bit, but wore off. Been on...

Hey Bespectacled, You asked earlier about acupuncture. I have done it several times, albeit not for my Crohn's. I used it for debilitating neck and muscle issues. It worked for me. Amazingly well. But I'm not going to lie... there is a very real "leap of faith" aspect to it. If you try it for...

Hey Entchen, The resection will mean less reabsorption of bile which will cause a lot of loose stools. Questran is a bile sequestrant to help in that dept. However, it may add to the gas and bloating as it's part of the listed side affects for some people. (I am 100% in favour of the benefits of...

As mentioned, don't let it go too long. But another thing to consider is when you go to the bathroom and "wipe more" sometimes sores develop which bleed. Ive had this happen numerous times over the years. If it's drops in the water as well as bright red on the TP then it's most likely a sore...

Thanks for the input Aituk and Cartmore! You've been very helpful. Last night we indulged in our favourite Pakistani takeout: lots of cooked veggies, biriani and Tikka Masala. I took a 3rd pill after dinner as Aituk suggested "to mop up" and today it's been smooth sailing. So again... thanks for...

Hey Aituk! Thanks for chiming in. :) My gastro got me on Colesevelam last week. He actually advised to start with one pill a day and to keep adding until I hit a balance. I'm a week in and finding that 4 per day (2 breakfast / 2 dinner) is helping a lot but not perfect. Like you I was thinking...