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Hi Connor We haven't met but I was reading essentially the entirety of this message trail so by the end with this bad news it's like I'm feeling sorry for someone I know already! I'm really sorry things didn't work out for you like with others. I really hope you get a diagnosis soon and get a...

I was reading Dr Chamberlains Q&A, and he mentions the herxheimer reaction. Typically, it's low level sepsis. That's fever, tachycardia, etc. It's the same "side effect" you get from vaccines (some people). Even non-vaccines will do it (obviously, since AMAT does it). Crohn was trying to...

Update is...no more prednisone - still on Humira and methotrexate oral (GI said to, although i didn't really want to go back on this stuff, although I didn't want to say why...ha...imagine her face) weekly. I still can't say whether it is directly doing anything - it may be doing nothing. What...

Not sure if it's a genetic signature, as in gene expression, or immune signature, and where they tested this in the biological hierarchy. I suspect they did a cytokine-chemokine profile (they really must believe in what they are doing, the last one of those I did in some cancer patients cost...

Crohn and a few other GIs in the 1920s, 1930s tried vaccinating people with anti-dysentery serum (dysenteric poly-valent vaccine) and found excellent results, even in patients they knew had never had dysentery. They found that patients who had the best responses were those who suffered from a...

I had the same thing in my last major flare. The pain would be worse than the lower abdomen. They always suspected blockage when I went into the ER with it (3-4 times) and never found a blockage. Pain meds and ondansetron. I too suspected gastroduodenal crohn's, but that was cleared and nothing...

No I wouldn't say it's a vaccine. A vaccine is something specifically spurring the adaptive immune system to respond by developing antibodies to a foreign/invasive antigen. This is more evoking a systemic response with respect to the innate immune system, where following the systemic response is...

I used VSL # 3 and mutaflor. I didn't ingest them. I cultured them for 3 days. In one of the papers, it was something the E coli nissle 1917 was spitting out as it grew that was responsible. So, grew mutaflor. Spun down in a centrifuge (I have access to one). The medium was then autoclaved...

Arthur Hurst, 1921, Guys Hospital Reports. Crohn, Burril, 1935, 1952. Hurst was doing this almost 100 years ago. They theorised so long as a systemic response was induced (the worse the better), the patient would respond. They tried everything they could. Anti-dysentery serum (from patients...

Hi Ron Thanks for your concern! I decided at the last minute to push the medical therapy another 3 months. I was fine with the surgery, and I was confiden everything would work out, but it was nagging in the back of my mind that if I do it, however it turns out, I'd regret not giving it...

It's winter down here and was super cold today (Sydney, Aus). Cod soup or fish stew in general would be soooooo good right now!

So. The picoprep from last colonoscopy (march 21st) put me into a horrendous flare ive yet to get out of (long term, anyhow). The story so far 1st admission to hospital: April 1st : 3 days. Admitted with symptoms of partial/full obstruction plus epigastric pain (very sharp), vomiting...

picoprep makes me flare..i ended up in hospital 3 times in a month after a colonoscopy, which the GI said looked horrible, and what had I been telling him that I was feeling fine for almost 6 months...I told him I felt fine until 3 hours after the first glass. I warned him beforehand, as...

Sleep...I miss unbroken sleep. Truly. Before diagnosis I was only a 4-5 hour sleeper anyhow. I'd give anything for more than 4 hours sleep. I tell the Doctors that, especially the last time I went into hospital for a flare, and they don't say anything. I tell them I'd rather a sleeping pill...

ahh. im back in hospital (2 weeks after getting out from the last flare) and ive always been scared my lady will leave and ill be alone. heart goes out to you guys. dont know how id cope without her. cant swear here, but really, they can go picoprep themselves. there. should be allowed to post...

Essentially going through the same thing as you. I flared and ended in hospital, with surgery an option, and my pushing for dose escalation of humira/exclusive enteral nutrition/methotrexate to at least try and get some healing to minimize the amount resected (which I assume is going to happen...

Hi OzBoz, did you go see your GP/ring rheumy/GI team today?

I'm on 45 mg at the moment tapering after a flare put me in hospital last week. 2 year ago, 25 mg kicked it in the bum within three days. Sometimes it takes longer, depending on the degree of inflammation there. It can also lose it's effect over time at a particular dose. It's only 3 days so...

I found this site helpful. http://www.vivo.colostate.edu/hbooks/pathphys/digestion/basics/transit.html

Ring your GI team and rheumy first thing Monday morning mate. If your on nothing now and your suffering, its time to go see them and start coming up with a plan to get better.