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Crohn's Disease Forum

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  1. R

    My new stoma

    Thank you it really does help
  2. R

    My new stoma

    I've got a appointment on the 3rd july with a specialist and i just know what he's going to say he wants to remove my colon and rectum and give me a ileostomy. I've had crohn's now for 14 years and I'm 31 now with 2 young children my life is none existent at the moment, I have tried every drug...
  3. R

    Low Dose Naltrexone (LDN) Support Group

    Thanks For the quick replies nice to know I'm not the only one I've also been having terrible vivid dreams and waking up in a sweat lol but I don't mind that
  4. R

    Low Dose Naltrexone (LDN) Support Group

    Hi all I have a little problem I've been on LDN 4.5 mg now for over a month and I think it is making things a little better the only thing is I'm going to the toilet a lot at night for a pee is this normal just wanted to ask before I go to the doctors
  5. R

    Sticky Stem Cells for Crohn's Disease and other IBD

    Hi Mpatton81 any updates on how your stem cell transplant went did it put you in remission ?
  6. R

    Can i take codeine while on LDN

    Hi all i need some advice,I've just picked up my prescription for Ldn but the thing is i have to take codeine almost every day due to crohn's what will happen if i take codeine while on ldn any help would be appreciated :)
  7. R

    4 years, 4 long years

    HI Stewiedewey Ive had Crohn's now in my colon for 13 years, I'm now 31 I've never been in remission and I've tried just about every medication there is,I'm currently trying Helminthic therapy but I'm unsure if that is working.the consultant i see tries to talk me into having my colon removed...
  8. R

    Sticky Stem Cells for Crohn's Disease and other IBD

    Hi all I'm from the UK and i have the opportunity to try this treatment but i don't know if i should or not as i have two young children and my partner thinks i could die if i try it lol i shouldn't have taken her to the consult.I do know they dont use siblings stem cells for the graphs only...
  9. R

    Advice Needed

    Hi all i have been a member awhile but I'm not all that good at writing so i just like to read i've had crohn's now for 13 years now. And i have tried all the drugs that there is in the uk my doctor is now pushing for me to have ileostomy bag removal of my large bowel.Or they said they could try...
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    Stoma Support Group

    hi dukeis these are the ones i have tried so far ,Sulfasalazine, Mesalamine, Azathioprine, Infliximab, Humira, Methotrexate, and currently,Tacrolimus as a trial.At the moment i am trying to get on the new stem cell transplant treatment
  11. R

    Stoma Support Group

    hi all im 30 and i have had crohn's since i was 17 I've got it in my large bowel i have tried all the meds but nothing has put me in remission so now the doctor i see is pushing me towards having a stoma but I'm scared of having it i just don't know what todo does it change your life a lot...
  12. R

    Anyone on Tacrolimus?

    hi i have been on Tacrolimus 6.5 mg twice a day for over a year now and it works good you do have to take antibiotics with it but i stopped because they were giving me bad headaches.i would advise to give it a try
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