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Crohn's Disease Forum

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  1. RHOV

    Remi "Lumps" and swelling

    erythema nodosum?
  2. RHOV

    School Grants?

    There's a scholarship for people with Crohn's worth $10,000. The company that sponsors it is UCB. I applied earlier this year and didn't get it, but I'm definitely applying again next year! And that's the only one I've ever found that's specifically for Crohn's, although there are some other...
  3. RHOV

    Marijuana

    i'm sure the first warning will go to you. and then they will ban you. so there.
  4. RHOV

    My hair is falling out

    my hair is falling out I've been losing gobs of hair each day for the past few months. I know we're supposed to lose about 100 strands each day, but every time I take a shower, I have to clear the drain because hair clogs it. And this is in addition to strands falling out during the day. I've...
  5. RHOV

    Specific carbohydrate diet

    i tried. it lasted a month, tops.
  6. RHOV

    Remicade Club Support Group

    i'm getting my infusion right now. i love free hospital internet. other than my blood pressure plummeting, all is going well!
  7. RHOV

    What time of day is Crohn's Disease most active

    Definitely in the morning! And generally within an hour of eating.
  8. RHOV

    Remicade Club Support Group

    can you send the make-up lady to my next infusion? all i ever get are weird guys with guitars and funny hats.
  9. RHOV

    What age were you diagnosed?

    diagnosed at 15. first symptoms at 13.
  10. RHOV

    And now I've got MRSA... is it serious?

    Do you have an active MRSA infection or are you just a carrier? If you're a carrier, they will probably have to be really careful not to spread it to other patients, and if you have the infection then it'll have to be treated... somehow.
  11. RHOV

    Running out of Options

    what about cimzia? or LDN?
  12. RHOV

    Just a stupid vent

    Can you carpool with someone or take the bus to school? You may be able to get a student pass for public transportation. I'd say keep looking into jobs, preferably something not too strenuous (not the food industry!) that will give you flexible hours and see if you can find an alternate mode of...
  13. RHOV

    Remicade Club Support Group

    I got ear piercings while on Remicade and they took the normal time to heal (about 6 weeks). My piercings do get infected every so often and the infection takes forever to clear up, but I have 3 holes in each ear, which exacerbates the problem. I think as long as you're extra-diligent about...
  14. RHOV

    News Report: Woman in Seattle battles with insurance company

    I especially like how she misspelled "Crohn's disease"
  15. RHOV

    Overwhelming allergy test results :(

    sarcasm much? all of you?
  16. RHOV

    Joint/muscle pain advice please?

    i'm kind of in the same boat as you, sparky! my rheumatologist never specified whether i have RA or just bad crohn's arthritis, but i have had a lot of joint problems. the worst was in my jaw, and i had that "fixed" with a steroid injection. the doc stuck a needle in the joints, washed them out...
  17. RHOV

    Surgery Time

    *HUG* X 1000000000 I wish there was more that we could do for you. We all wish you the best and a speedy recovery! Keep us posted.
  18. RHOV

    Medical alert bracelets for Crohn's Disease?

    someone gave me my wristband when i did the Take Steps 5K last year. I think if you join CCFA (ie, pay membership fees) they send you one for free. And I'm pretty sure you can buy them online! Join your local CCFA chapter and they'll probably send you one.
  19. RHOV

    Medical alert bracelets for Crohn's Disease?

    i used to have the blue rubber wristband too, but i lost it! don't quote me on this, but i don't think anyone on the forum has a medical alert bracelet for crohn's. i have a card in my wallet with medical contact info and drug info, though. i think alert jewelry is more for conditions that EMTs...
  20. RHOV

    Benedryl and Atypical Reactions

    This has never happened to me. Maybe next time they can give you something different? Maybe Claratin or something would serve the same purpose without giving you a weird reaction.
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