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I've had the works! Gastrocopy x2, Colonoscopy x3, Capsule Pill Cam SEHCAT, and MRI. So my non-diagnosis is most definitely not for lack of searching for answers, and I am thankful that I have had these opportunities. The only findings have been low Folate and Vitamin D on blood tests, Ulcers...

Absolutely, and I hope I didn't come across as insensitive in doing so, I'm just at the end of my rope with coping by myself without treatment. The colonoscopy showed that the ulcers had healed and were no longer present. Although they had been there all of last year (seen on colonoscopy and...

Hi Scipio, I took your advice and chased my consultant up and he agreed that they should have investigated and considered the ulcers further. I am booked in for another colonoscopy the end of this week, and he has said that if the ulcers are still there he will diagnose me there and then and I...

I didn’t receive a biopsy report. The only thing I received about the biopsy was “Aphthous ulceration in the terminal ileum. Biopsies NAD” The “same doc” in this instance did the procedure and will have full access to the results in more detail. I haven’t been told anything other than “Biopsies...

Hi Scipio, thank you for taking the time and for sharing your story- especially after I managed to mess up the post title! I was woken up during my scope as the doctor showed me the ulcers on the screen and said it looked like Crohn's, but the negative biopsy was perhaps the thing that stopped...

Hey, grateful for anyone who may read my story and share some advice. I’ve basically been written off completely by the NHS, mostly due to a clear biopsy. Since then no doctor has been interested at all and extremely dismissive. Notable findings have been 4 aphthous ulcers on terminal ileum...