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Hi! His fistula did heal, but he still has an issue with fissures. He has been on Remicade since April yet he is still getting very large fissures. His docor has decided to move his injections from five weeks to four weeks. She explained that sometimes in children with perianal disease she...

Hi ladies! I've been thinking about each of you and how kind you were to help me at the beginning of my son's diagnosis. I just wanted to check in and see how each of your children were doing. Please know I'm still thankful for all your reponses and thinking about all the feedback I recieved...

Thanks for the quick response. The Miralax really helped him go, and I do believe (hope) that was the issue. He didn't complain of pain today. The doctor mentioned receiving iron through IV doesn't cause constipation the reason why she prefers this method. Thanks again!

The infusion went well yesterday, but my son has been complaining of stomach pains today. I'm not sure if I mentioned he also had an iron infusion. I read that iron can make you be constipated and to give Miralax if needed. With that being said he normally goes everyday and hasn't went. I'm...

Thank you! I appreciate the response! This was helpful to know!

Good afternoon ladies. My mother has Arthritis and also receives medication through infusion. She was surprised to hear that the doctor didn't give me any medication prep for tomorrow. She normally takes Benadryl or Tylenol/Motrin. Do you all have any feedback about this? Should I do...

Thank you! This was all very helpful to know. I appreciate your feedback.

Our children's hospital is now requiring all staff to wear masks. We will have ours on. I'm sending you well wishes and strength for your treatment next week!

Thank you very much!

I'm just now seeing your comment. I'm sorry for the late response. My son never had an issue with constipation. He didn't go because of the pain from his fissures. I did use suppositories but my son hated them so much. He always said they hurt, and I would do it while he was sleeping. The...

Thank you very much for your feedback. At this time my son is not on any medication. He has only been on antibiotics. I'm not sure if there was a miss understanding, but I've always been ok with my son taking medication. I just wanted to wait a few weeks to see how things were going to go...

ok, thank you for letting me know. i will ask her about the formula. i really appreciate your feedback.

Thanks for bringing up so many good points. No, we haven't started Remicade. We were waiting on the insurance approval. He was never given steriods only antibiotics that he is no longer taking since things have improved for him. My husband still has to work outside of our home and is in...

Please excuse my very late response!!!!! The board notification I receive for new messages went to my junk mail. Thank you so very much for checking on my little guy. Life these past few weeks has been so crazy. I know we all feel it and are in this together. My son is doing better. We...

I will take the list you wrote out and ask my doctor if we will be offered the same level of care if we are not transferred into the group. Thank you very much for your feedback!

Hello ladies. I hope each of you and your children are doing well this week. We received word today that my son does have Crohn's. We are hoping to start on Remicade within the next two weeks. I'm being told it normally takes this long for the insurance to approve the medication. We did see...

Thank you this is helpful!!! I so appreciate your feedback. I honestly can't express my gratitude of how kind each of you have been. I will look into everything you wrote out. You mothers are giving me a lot of hope that things will improve over time. I just have to keep reminding myself of...

Thank you so much for your feedback. I'm very sorry to hear about your daughter. She sounds like an amazing girl. I also appreciate her thinking about my son. Yes, I pray once we have a plan through the psychologist and start on medication things will improve.

Thank you very much for your feedback. I sent the GI doctor a note about the proctozone cream. I'm glad to hear your daughter's fissures healed quickly.

i Thank you very much!