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I should add that we didn't follow the week 0, 2, 4 schedule. Mine were a little closer together- may have had something to do w/ the low counts.

About two weeks ago I finished the third loading dose of Cimzia. I thought that the side effects were much less than that of Humira, which I couldn't tolerate. I caught a cold that really wiped me out. Turns out my white cell count had dropped to 2.5. It taught me to stay on top of my lab work.

it should have been a perfect day It should have been a perfect day... A white Christmas in Georgia?? For where I am; happens about every 100 years. My Cimzia was due this weekend- so I thought I'd split the dose by taking one shot last night and one tonight; hoping to help out with the side...

Hi Spencer- While I am fortunate to have fairly good medical/pharmacy insurance, my co-pays on many of the meds I have tried have been hard to cover. I also looked for generic alternatives. Pentasa is a variation of the drug mesalamine. The drug itself is available in a generic..however... it's...

Hi Jayme- Having a doctor that you can talk to about your concerns is certainly an advantage. My mom also has Crohn's, but my sister has never had any GI toruble at all. While there can be familial patterns, it's far from a cetainty. Enjoy this time while she is little; it goes so fast. This is...

Kelly, The school should be providing much more for your son other than being willing to gather his assignments and move his locker. A 504 plan can provide many accommodations to make school more productive and less stressful. As part of that 504, your son's teachers would have to be familiar...

After a 35 year ordeal with Crohn's, my mother never goes near toilet paper. Her surgeon recommended a spray to use to clean the area and then pat gently with gauze. After my fistulotomies, I would draw a hot bath to be re ready to get in to.... toilet paper can be evil:devil: Good luck with...

Sorry that you are having such a hard time. Your story is familiar to a lot of parents and patients here on the board. Our pediatric GI thought it was all in my daughter head also "emotionally based symptoms". He even told her that he was doing the CT to prove to her that there was nothing wrong...

Thanks for the tip! I would not have thought of going that route- but it makes perfect sense. The cold weather here this week- with lots more on the way has made everythiing hurt a little more than usual. Hope you are feeling better soon!

This is another great example of how everyone pitches in with what information they have. Like you said Mountaingem, patients having to educate themselves... with great support forums like this, we'll have those docs outnumbered in no time :wink:

I am having a hard time finding a doctor for both myself and my daughter than really understands that CD is a systemic disease with extraintestinal symptoms. She has strep today (got sick 12 hours after my cimzia loading dose :thumbdown:). Her joints hurt, she can barely get out of bed, her...

I talked to my GI about my daughter as she was beginning the first of her flares- we were just piecing together her CD. He recommended that I let her go out in the back yard, play barefoot, and eat dirt. He is from another county and is adimant that westerners have an unhealthy obsession with...

Call your doctor ASAP. Could be nothing, but many blood clots start as painful/tender lumps in the legs before traveling to the heart and lungs. I don't mean to scare you, it may very well be nothing.... but any changes warrant a call to the doc. Catching them early on in the legs make them much...

Ahhhhh.... Better life through chemicals:thumleft:

Mine were low, too. But the ratios were good. In fact, my GI said "well, if you didn't have crohn's, you might live forever". At least he has a sense of humor!

I've experienced a few. When I was on Humira I felt like my body had completely changed. I had the rashes and peripheal neuropathy (tingling). My lower back would hurt, but I always figured it was from the inflammation. The neuropathy went away about 3 months after dc'ing the Humira. Best of...

Yes, yes, yes. Sometimes I'll panic trying to remember if I've had my labs done recently when I feel the chills creep up. It feels like my temp is shooting up, but it actually hangs out around 100 or so. Night sweats are usually worse with a flare. My 9 yr old daughter gets them, too. I try to...

Bless your heart! That stinks. I don't know if the two are related or not, but I have found so many things that seem to occur in conjunction with a crohn's flare- or that have an autoimmune component. One of my favs is episcelritis. I basic look like I have pink eye for a few days until the...

It wasn't too bad... but the needle kept coming out. The medicine is so thick, you really have to keep the pressure on. Started yesterday. D worse today, other than that I feel the same

I know that there are some out there who inject their own Cimzia. After waiting to get over an infection, I am finally ready to start. The company doesn't have a nurse who comes to my area to train (at least that is what I am told), and I'm headed out of town for the rest of the week first...