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Good luck and stay at infusion to make sure you are ok

Hum it’s great but gave me plaque psoriasis , Remicade raise my blood pressure and wasn’t great about controlling my symptoms. Went for initial dose of stelara and got one of the serious side effects pretty soon after the infusion was almost done – my tongue and throat kind of swelled up, the...

well currently have the stelara still in me (2 mo dose given 8/4) and been on prednisone since then due to the allergic reactions (numbness in side of face, swelling of tongue, numb lips, hard to swallow). Can't tell what is doing what inside except my aches and pains in my joints especially...

So after having the stelara first infusion on 8/4/17 and getting the serious side effect allergic reactions mentioned above (swelling in tongue, numbness in lips and face, hard to swallow), and getting 2nd trip to ER on 8/5/17 as they came back after initial ER treatment of 60 mg prednisone and...

Have not met with or talked to MY dr yet but based on this experience I do not want to try again. When I had Humira no problems. When I had remicade infusion they premed me with benedryl and tylenol. This time they had no premed orders and I told them I had previous orders with other drugs but...

Guerro, Serious Side Effects are : Feeling Faint Swelling of face, eyelids, tongue or throat Chest tightness Skin Rash Common side effects: Upper respiratory infections headache tiredness itching comiting vaginal yeast infections urinary tract infections redness at injection site

Had my first stelara infusion yesterday for crohns and off label upper gi issue. Had major side effects and had to go to the ER, numbness in my face, stiff upper back and neck, tongue swelling, and next day lip swelling. Two trips to the ER on Prednisone and benedryl for a week at least. I am...

Just had my first and last infusion with Stelara at the hospital.. Thank god it was at the hospital. I had serious side effects. My upper back and neck got rock hard stiff, I had numbness us the sides of my head and swelling of my tongue making it hard to swallow a bit, great thirst, and my...

No the giving yourself the shot just stings a little while drug is put in. Just rub your injection spot after and it goes away pretty quickly. No other effects for me. Good luck.

On Remicade I learned that the day after you were supposed to rest completely I can zap your energy and make you feel like you want to collapse

Eleanor Rigby... what is PPI drug? I am on pantoprozole (sp?) I dont know if my insurance would approve Stelara ...especially for upper GI ....but I can find out... they said they would start a case for it... if I could eat more and have a more dependable gut I would.....

Geez, where to start? I had colon cancer in 2011 and my large intestine removed and have an internal jpouch. I was diagnosed with Crohns years ago, also have had UC. Went on Humira at urging of Dr at Baystate, it worked great for a few years then I develped plaque psorasis of my scalp and...

didnt know.... was given pen

So I started Humira about 2-3 years ago for Crohns. It took a little while but it worked great and I could eat whatever. Then I started getting plaque psorasis itching rash dandruff very bad..we tried stopping and restarting the Humira after a few weeks and same reaction. So stopped Humira and...

Just saw my GI and we discussed the two options of Entyvio and Stelara. He says patients have had very good luck with Entyvio...Stelara is newly prescribed for this issue in 2016 so a lot less is known. I would rather something that is specifically targeted for the GI tract vs have an impact on...

I was on Pentasa for years then after colon cancer, put on Humira... allergic reaction to it in year two so switched to Remicade...not as good as Humira on my digestion and it made my BP go sky high. Now choice of Entyvio or Stelara?

Hi everyone. I started on the Biologics for Crohns /UC about 3 years ago with Humira. I had to drop that even though my stomach was awesome on it, I developed plaque psorasis. Now I am on Remicade infusions but I have problems with it spiking my BP so we are stopping Remicade. I also take...

Didn't know that side effect. I already am worried about skin cancers as I have very fair skin and my dad and his mother had skin cancers.. his mom melanoma. :(

Great News!:dance:

I have Crohns after years of Colitis/Crohns and then colon cancer. I did Humira for two years but started having reactions...one was disabilitating knee pain, another was psorasis of the scalp and eyebrows and rash/itching. Now I am on Remicade.. just a few months and working my way up to the...