• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. MissLeopard83

    Undiagnosed Club Support Group

    I had my visit today and the doctor was really nice. I went in with guarded optimism and I'm keeping that flow because I thought the other one was really good after the first visit and then he got lazy. After we discussed the labwork I brought in, the dietary stuff I've done, the other tests...
  2. MissLeopard83

    Undiagnosed Club Support Group

    Hi Scipio, I was not tested for cBir on the test, but I have been tested for CRP by my rheumatologist and it is elevated, but I guess not by much because my rheumatologist never thinks it's of any significance. The last test I had, it was a little over 13 points. I'll be interested to see if...
  3. MissLeopard83

    Undiagnosed Club Support Group

    Well, the day is nearly here! I will be seeing the new gastroenterologist tomorrow after a LONG 2 month wait! Please say some prayers that this wait was worth it. Every single review I read online said that he really works well with his patients and he is very down-to-earth, which I think is...
  4. MissLeopard83

    Undiagnosed Club Support Group

    Thank you. I've been really busy with my Master's degree, that's why I haven't been posting. I had to go out of town last month to do my first residency and so the whole program just consumes my time. It's a pretty awesome program and I love it. I'm finally doing something that I love! :)
  5. MissLeopard83

    Undiagnosed Club Support Group

    Hi everyone! I thought I'd check in here and give you an update. It's been 2 months since I've heard anything from the doctor who was trying to get the pill cam authorized and I feel like I've hit a wall with him. He hasn't given me any indication that he is willing to do any more tests or...
  6. MissLeopard83

    Second Scope Test Tomorrow

    I've been posting in the "Undiagnosed" forum but it's dead there so I thought I'd make a separate thread. I saw a new gastroenterologist earlier this month after reporting to my PCP that I've been dealing with worsening abdominal pain, diarrhea, and nausea. I thought my IBS was flaring up but...
  7. MissLeopard83

    Writing a Letter to a Doctor

    I was wondering if any of you had any experience writing a letter to a doctor from whom you experienced poor or substandard care? I'm sure most of you remember my horrible experience with the GI doctor I saw who treated me as though my symptoms were "simple IBS" and didn't listen when I told...
  8. MissLeopard83

    Radio Silence Commencing

    I just wanted to thank everyone for their support as I was going through all of the GI testing for IBD. It was nice to have people that understood - especially those in the "Undiagnosed" group. However, I feel that my time here should come to a close since I do not have IBD (or at least they...
  9. MissLeopard83

    CT enterography

    I visited my GI today for a follow-up after the SIBO breath test and colonoscopy came back normal. I've had an upper GI endoscopy and HIDA scan, too, and those were also normal. I asked my doctor today if we could do a scan of the small bowel since that's the only place he hasn't looked at...
  10. MissLeopard83

    Jejunoileitis - How were you diagnosed?

    After having an upper GI endoscopy and a colonoscopy, the biopsies came back negative. I had a hydrogen breath test for SIBO, but that came back negative as well. I've had GERD since I was 16 (just turned 33) and diagnosed with IBS-M (predominately constipation, but diarrhea episodes happen...
  11. MissLeopard83

    Addison's Disease

    Does anyone have experience with Addison's disease? It's the only thing I have not been tested for that could be a possibility. I'm going to mention it to my GP when I see her next week and see what she thinks. I did a search on the symptom checker under my patient portal for my abdominal...
  12. MissLeopard83

    Hypertrophic Tonsils or Tonsillitis

    I've mentioned before that I've seen both an ENT and a GP about my tonsils. Over a year ago, I noticed that I was having some throat irritation and wondered if it was red/inflamed. When I shined a flashlight back there, I noticed that my tonsils were full of holes and debris had collected to...
  13. MissLeopard83

    IBGard - Does it work?

    Right before my colonoscopy this past Wednesday, my doctor suggested trying IBGard to see if that lessened the symptoms (he is convinced I only have IBS; I disagree). I wasn't sure what it was and I just looked it up online and found it was a peppermint oil capsule that is enteric coated so it...
  14. MissLeopard83

    Awaiting Colonoscopy Results

    I had my colonoscopy done yesterday morning. The GI doctor gave me the preliminary results in recovery, but he took several biopsies of the mucosa and removed a small polyp. His findings state that he did not visualize any inflammation of the colon wall. However, I read that polyps can be a...
  15. MissLeopard83

    First Ever Colonoscopy on Wednesday

    My colonoscopy is set for Wed, the 20th, at 9:30am. I have to arrive at the surgery center at 7:45am (not sure why I have to be there almost 2 hours earlier). I got the MoviPrep about 2-3 weeks ago and read the directions immediately so I know exactly what to do. This is what I got to consume...
  16. MissLeopard83

    High Protein/High Fat Diet Causes Crohn's?

    I'm not sure if I mentioned this anywhere, but my former GP put me on a Paleo diet back in March 2015 when she thought my gallbladder was showing signs of cholecystitis (back when I had no insurance). She also said that it was really good for weight loss. Her orders were to eat a high protein...
  17. MissLeopard83

    Heat intolerance

    Does anyone else suffer from heat intolerance? Currently, we are going through one of the worst heat waves in history and I feel absolutely miserable when I go outside for even 5 minutes. It's not just outside, though. I have to have a fan going at all times or I feel like I might suffocate...
  18. MissLeopard83

    Mouth sores - Question

    As my previous posts indicate, I have not been diagnosed with IBD, but I have a colonoscopy in 13 days to check for inflammation. After reading several threads here, I see that mouth ulcers are mentioned a few times in relation to IBD. I was wondering if any of you get them on your tongue? I...
  19. MissLeopard83

    Undiagnosed; possible IBD or worsening IBS

    On the referral of my new GP, I went to see a GI doc after she ordered an ultrasound for abdominal pain in my right upper quadrant that she thought was gallbladder related. However, the ultrasound did not show any stones - just a fatty liver due to recent, intentional weight loss. Because of...
  20. MissLeopard83

    GI symptoms worsening; No diagnosis received yet

    I'm new here after seeing a GI specialist and getting tested for a few different disorders, I'm at wits' end. I have one more procedure lined up the middle of this month - colonoscopy. It basically started with my GP since I was having pain and pressure (right upper abdomen), which were...
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