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  1. O

    Double-biologic therapy with Entyvio to control extra-intestinal symptoms

    Thanks for sharing your daughter’s experiences with two biologics. I’m sorry she’s had such a hard time with getting her arthritis under control. Should the Cimzia be helping with her arthritis but it doesn’t and only helps with her Crohn’s? I ask because I have the opposite reaction where the...
  2. O

    Double-biologic therapy with Entyvio to control extra-intestinal symptoms

    Does your son have peripheral arthritis? And is he on the MTX to help with arthritis, prevent antibodies or just to boost the effectiveness of the biologics?
  3. O

    Double-biologic therapy with Entyvio to control extra-intestinal symptoms

    Interesting you’re on Entyvio and Stelara since that was an option I’ve been given and may try if Cimzia doesn’t work. Have you noticed any improve your being in both? I hope upping your 6mp helps. Is your GI concerned at all about your being on two biologics and 6mp? Is that plan to stay on all...
  4. O

    Double-biologic therapy with Entyvio to control extra-intestinal symptoms

    Did you have any other EIM’s with your Crohn’s like iritis or uveitis? Just wondering if Stelara works for those. I’m glad Stelara is working well for you.
  5. O

    Double-biologic therapy with Entyvio to control extra-intestinal symptoms

    I just accidentally replied to Scipio when I was trying to reply to you. My response is below. Sorry about that.
  6. O

    Double-biologic therapy with Entyvio to control extra-intestinal symptoms

    Oh sorry, I was trying to reply to MLP on that one.
  7. O

    Double-biologic therapy with Entyvio to control extra-intestinal symptoms

    Yeah, this new GI that told me about Stelara being more gut specific was the first I had heard that. My other GI and rheumatologist both suggested Stelara as an alternative to Entyvio, but this new GI said she would add Stelara to Entyvio as an option. She mentioned something about Stelara’s...
  8. O

    Double-biologic therapy with Entyvio to control extra-intestinal symptoms

    How is your son’s arthritis with Stelara? My GI said Stelara might be an option but it was more of a gut-specific biologic, not as gut specific as Entyvio, but she was concerned if I tried it for EM’s that it may not work. Hmm, where did you hear Cimzia doesn’t work for arthritis? I thought...
  9. O

    Double-biologic therapy with Entyvio to control extra-intestinal symptoms

    Hi Kitz, What other biologic are you on with a Entyvio, and how long did it take to resolve your extra-intestinal manifestations with it? Have you have any side effects? And how long have you been on both?
  10. O

    Double-biologic therapy with Entyvio to control extra-intestinal symptoms

    I doubt this will get many if any responses since it's uncommon, but does anyone have experience using an additional biologic with Entvyio? I'm on it now and it's kept my gut in check for years but my extra-intestinal symptoms, mainly arthritis and iritis, have been flaring for about a year and...
  11. O

    Tacrolimus experiences

    I did some searching and it doesn’t look like many people are on this, but I thought I’d check anyway. Can anyone share their experiences with this drug? Most importantly how long did it take to kick in and did you have high potassium levels on it? I’m actually on Entyvio which is working for...
  12. O

    Which is worse, long term use of prednisone or long term inflammation

    I've been in a flare that doesn't involve my gut (Entyvio is taking care of that) but involves arthritis and iritis. I started on a really high does of Prednisone, 80 mg and I was supposed to taper very slowly, 80 mg for 2 weeks, 60 mg for a month, but I couldn't handle the side effects and so I...
  13. O

    Methotrexate for arthritis and iritis: how long for it to work

    I’ve read that Methotrexate can take from 6-12 weeks to work, and I’m wondering for those who are on it, how long did it take for you to notice a difference. I’ve been in a flare for 9 months with the main symptom arthritis with intermittent iritis, but this last iritis flare seems to becoming...
  14. O

    What to expect from fistula surgery

    My first anal fistula showed up after an abscess I had in 2011. Since then the abscesses seem to keep moving up my left butt cheek to where I've had 4 abscesses now all stemming or connected to the same fistula. None of mine have never healed up. I am feeling fine otherwise and seem to be in...
  15. O

    Is draining an abscess always necessary?

    I have had several abscesses before, two which developed into fistulas. One of the fistulas I have has seemed to have branched out and created two abscesses. The abscesses I've had before were so painful that I had to have them drained right away or else they burst on their own. The most...
  16. O

    EEN worked first time but doesn't seem to be working now

    I did exclusive enteral nutrition for 6 weeks about 2 months ago. It brought my CRP into normal levels after being in the 50s and got rid of my arthritis swelling and pain as well. Unfortunately when I added foods back in, I got symptoms back right away. I tried to go back to EEN for a couple...
  17. O

    Do strictures cause pain?

    I have Crohn's colitis, and I had a flare recently where I have tried exclusive enteral nutrition to calm it, and I'm also on Imuran. Surprisingly the enteral nutrition worked brining my CRP down, and I've been in the process of trying to add foods back in, but keep having relapses. I have...
  18. O

    Adding back foods after EEN, how to know if you need to go back to EEN

    So I have completed 6 weeks on EEN, and thank God it actually worked for me! I tried to do the LOFFLEX diet but got symptoms back within a few days, so I went back onto EEN for a couple days and started the elimination diet where you add one food back at a time. I was doing OK but then tried...
  19. O

    Enteral diet with extra intestinal symptoms

    I wasn't sure if I should start at new thread for this one but anyways, I've been on my own enteral diet (maltodextrin, coconut oil, protein isolate and vitamins) for 2 weeks now. I have Crohn's colitis and am also on Imuran, which was working well for about 4 months. I get arthritis with my...
  20. O

    How long to use enteral nutrition when also using meds

    Hi, I have Crohn's colitis which hasn't been very easily controlled since I first was diagnosed. I flared a large part of last year and was finally hospitalized last summer and put on IV steroids and TPN while we waited to see if Imuran was going to work. (I have already failed Remicade...
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