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  1. P

    Inserting aloe vera and l-glutamine into rectum?

    For proctitis or rectal inflammation, has anyone tried (or heard of anyone who has tried), using an application to insert narutal healing substances, such as Aloe Vera gel, L-glutamine or others), to naturally heal the inflammation? How were the results? I have very stubborn rectal inflammation...
  2. P

    Inserting aloe vera and lglutamine into rectum?

    For proctitis or rectal inflammation, has anyone tried (or heard of anyone who has tried), using an application to insert narutal healing substances, such as Aloe Vera gel, L-glutamine or others), to naturally heal the inflammation? How were the results? I have very stubborn rectal inflammation...
  3. P

    Handicap Pass

    Has anyone in the US gotten a handicap pass for Crohn's/UC? How did you go about asking your doctor for it? Do we qualify?
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    23andMe

    Has anyone taken those tests (I think from 23andme) where they test your stool and give you a report of the bacteria found and how it compares and contrasts to one who has a healthy GI track? If so, how was your experience with the test?
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    Thank You

    Hey guys! I just wanted to say a huge, heartfelt thank you to everyone on this forum and also share some words of encouragement from my personal story. The people on these forums have been incredibly supportive, caring and understanding. And, words cannot express how grateful I am to all of you...
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    Advice on patient assistance?

    Has anyone received Remicade or Entyvio (Vedoliuzmab) or other infusions through patient assistance for low income? Patient assistance is providing the medicine for me but not the nurse time and the infusion facility services. Any suggestions on what I can do for this facilities/nurse portion?
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    Natural/Innovative Rectal Therapies?

    Has anyone tried and had success with any natural or innovative rectal therapies? For example, Vitamin E suppositories. I was also thinking of concocting a probiotic vsl3 enema and shooting it up the rectum. Thoughts? Ideas?
  8. P

    Natural/Innovative Rectal Therapies?

    Has anyone tried and had success with any natural or innovative rectal therapies? For example, Vitamin E suppositories. I was also thinking of concocting a probiotic vsl3 enema and shooting it up the rectum. Thoughts? Ideas?
  9. P

    Mongersen

    Anyone tried or heard new updates on the new experimental medicine Mongersen for UC/Crohn's? How was the experience? I've heard it has a lot of promise. I heard its in phase 3 for Crohn's....does that mean it might be released soon?
  10. P

    Budenofalk foam by Dr. Falk

    NEED HELP! Has anyone used the Budenofalk foam by Dr. Falk?? My doctor said its probably the only foam that will help me but it won't be released in the US for another several months (the medicine is approved, but the company has had delays because of production issues). If its released in your...
  11. P

    Vitamin E Enema

    Has anyone tried this for rectal inflammation? Did it help?
  12. P

    Stool Tests - New Developments

    My most recent stool test showed positive for salmonella, shingella, Campy and also showed something that says "miscellaneous ARUP". My past stool tests have never showed any of this. Do you think it means it was missed before or that it is something new I have developed? My symptoms haven't...
  13. P

    How to interpret this?

    I have had severe colonic left-sided inflammation that has not been treatable for around 3.5 years. My colonoscopies have always showed my inflammation in the left side of the colon to be "superficial." However, in my MRI, it said "marked colonic wall thickening spanning from at least the...
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    Gaining lost weight back?

    I have lost a TON of weight and need to gain some of it back. Does anyone know of a good drink mix powder type of thing I can order on Amazon that can give me a TON of calories without being loaded with sugar?
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    New Foam

    Has anyone tried the Uceris (Budenoside) Foam for rectal disease? I guess it is approved in Europe and just no approved in the US.
  16. P

    New Treatments and Clinical Trials

    Hello Everyone - what are the new IBD treatments or new IBD clinical trials that you are most excited for or following? I feel that I keep waiting and hoping for something new but nothing great ever comes. =(
  17. P

    Anyone try something cool like this? Or have any thoughts on it? Seems Interesting!

    It's stem cells, but its quick and outpatient. They use your own cells and inject them back in to heal the inflammation: http://ocregenerativemedicine.com/crohns-disease/
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    Budenoside/Uceris FOAM

    I think it is only in trials in the US but approved in some other countries such as Europe - but has anyone tried/used the budenoside/uceris FOAM? My GI doctor said it is coming soon in the US and that it can reach up further than the cortifoam to rectum and sigmoid. I didn't know a foam could...
  19. P

    New Clinical Trials

    Hey Guys - What are the best, new most exciting clinical trials? I've failed everything and need to try something new. I've failed all the approved meds, and clinical trials such Qu SSI, and worms. I'm not interested in the Chicago stem cell transplant because of the nature of rebooting the...
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    Question for the scientific types

    What do you believe is the reason prednisone doesn't work when it doesn't work for some people? And what do you believe is the reason for why tapering causes many to regain their symptoms? My naive understanding is that the prednisone rapidly "deletes" the inflammation and then for those who...
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