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  1. J

    Stelara stopped working

    Just out of curiosity did your daughter try remicade, simponi or cimzia?
  2. J

    Stelara stopped working

    This sounds very promising. I may an “IL” Gal. I never responded in any real way to Humira or Entyvio.
  3. J

    Stelara stopped working

    Thank you. Lots of useful information and ideas. Great!
  4. J

    Stelara stopped working

    Ok. That makes sense. I will point that out to the specialist. Thanks again. Very helpful.
  5. J

    Stelara stopped working

    Another question is coming to mind: I was traveling abroad a week before I was due for my Stelara shot, which is when they wanted to test for antibodies. I had the test a week after I was due for my shot (I delayed the shot until right after the test). Do you think that two week difference could...
  6. J

    Stelara stopped working

    That makes a lot of sense. I was wondering about if there was another reason beyond the antibodies, such as the body clearing/metabolizing the drug more quickly for whatever reason. Thank you.
  7. J

    Stelara stopped working

    I must admit I only feel slightly better in the first week after the drug and then I am struggling (frequent D, some pain). The only good thing is I don't have the crazy pain I had pre-Stelara, which required constant pain meds to manage. So...maybe it's doing something? I found what you said...
  8. J

    Stelara stopped working

    Great, great, great. I have cut and pasted all of your ideas into a word document to bring with me to the LONG AWAITED meeting with the Crohns specialist. I just hope we haven't waited too long to increase the dosage. I am super grateful to everyone.
  9. J

    Stelara stopped working

    I am on 90 every 8 weeks.
  10. J

    Stelara stopped working

    Thank you so much for this information. It has taken my doctor forever to figure out what to do. I am waiting for an antibody test results. As we speak. Nobody has done an absorption test yet. I am going to see a Crohns specialist (vs a general gastro) at the end of the month and will ask him...
  11. J

    Stelara stopped working

    Hi. I have been on stelara for 2.5 years and it seems to have stopped working. Anyone have a similar experience? Theories as to why? I have already tried Entyvio and Humira with no success. Stelara was my dream drug. I was eating very liberally. Could that have made it stop working? Any ideas...
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