• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. L

    Heat Sensitivity???

    Anyone else here really sensitive to the heat/temperature changes? So excited about warmer weather, especially staying home due to COVID worry and precautions, but this heat is so exhausting! Temp is 88 today and I am zapped. (Waiting on testing to get colonoscopy and have been on Uceris and...
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    Lower Right Burning Pain

    I can’t get any relief. I’ve been on Lialda and Uceris for almost three weeks. The burning and pain comes in waves of levels of pain but doesn’t seem to really go away. Uninterrupted sleep only comes with extreme exhaustion. I think my headache is from dehydration at this point. Can anyone...
  3. L

    perineum hardness/pain with crohns?

    I did a few years ago. Dealt with the fissures for quite a while...Was super painful! Ended up having surgery which turned into another surgery after an abscess formed as well as fistulas. If you haven’t checked in with your GI, you may want to have it checked out.
  4. L

    Diabetes and Crohn's

    Yes, both
  5. L

    Those strange spooky noises...

    When your fur baby hears these loud, strange, spooky noises and begins growling, only for them to be coming from within you. Been a couple years since I’ve been in a full forced active flare. Beginning from scratch on my meds - stopped completely previously. Talks of Entyvio, but hoping for the...
  6. L

    Lots of Pain, Burning, and Heavy Pressure

    Some days, I stay soooo busy that I don't allow myself the time to listen to how my body feels. These last several months so much has happened within my family that I have to put myself on the back burner. I work full-time teaching still, but I am beginning to take on a part-time job as well, as...
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    Essential Oils???

    I am curious to see if anyone has tried essential oils/diffuser to see if it helps with the digestive system. I have a good friend that uses it for everything, literally, and loves it! She has a child with other concerns than of IBD, and swears by the positives of the oils. Just looking to see...
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    Auto-immune Diseases...UGH!

    IBD is awful enough on its own, but geez itjust seems to trigger a million other issues. My list of what's wrong with my body keeps growing and I am growing weary of the issues and the meds. In a colitis flare, a diverticulitis flare, a cryptitis flare...none yet are taming down any. (I've lost...
  9. L

    Viberzi anyone?

    It's been a while since I have last posted, although I do get on here from time to time to see how everyone is doing. It has been a super rough few months as my husband almost passed away due to a rare and extremely serious side effect to a new medication causing DRESS Syndrome. He is on the...
  10. L

    Fatigue is so fatiguing!

    I am on Spring Break this week, extra days due to local illnesses - flu has hit our district hard! I have so many plans to get things tidied up around here, but day one and I have barely gotten off the sofa. Plenty of sleep, but even when I wake up, I am not rested. Exhaustion is never-ending! I...
  11. L

    Taking a break from meds and drs...

    Since I am completely out of sick days, and I am staying exhausted, I have completely cut my Crohns meds and slowly cancelling dr appointments. I haven't taken any specifically for the Crohns in a few weeks now and I really can't tell any difference. I may regret this decision, but I cannot...
  12. L

    Oh, the Exhaustion and Intestinal Pain

    I am soooooooo exhausted. I am trying to stay more active so my body can build strength, but I am whipped and it's only Monday. I just can't seem to regain strength. And the intestinal pain...it feels as if someone is playing tug-a-war with my intestines - constant burning and bruised feeling to...
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    I am so worn down...

    I just want to cry. Body aches - my joints are so stiff and hurting, I mean REALLY hurting. GP ordering physical therapy on my shoulder and I dread that. X-rays came back fine. I knew it would since I didn't injure it. My intestines are on fire with constant lower right quadrant pain. Counting...
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    Feeling like a Puffalump...Do you ever request labs?

    I have been so swollen the last several days, feeling feverish however no elevated temp, flushed, & my right side has sharp, get your attention pains and spasms periodically...and fatigue, goodness! I can feel the swelling all over. Do you ever request labs like sed rate and such to see where...
  15. L

    Does getting sick slow fistula healing?

    I have a horrendous sinus infection (everyone in the family had it over the last 6 weeks or so and I thought I was going to escape it but NOPE). I haven't seen my GP yet because she and my GI are weary of giving me antibiotics because I have a history of recurring C-Diff. I had surgery for...
  16. L

    GI Follow-up...will I ever heal? Feeling a bit bummed

    Yesterday I had a follow-up appointment with my GI, going over meds and the past 1 1/2 months of surgeries and healing (hemis, fissures, and fistulas). He isn't quite sure I am ready to go back to work the beginning of January, so I have to go back to the surgeon for another follow-up next week...
  17. L

    Post-op Follow-up... :(

    Today was my follow-up appointment from my surgery with anal fissures and hemmies. I now have an abscess that has created a hole and so far is draining. Super painful, and I noticed it on Thursday, sent a message to my dr. but didn't get a reply. He gave me his cell # and wants me to take...
  18. L

    Surgery...now trying to recoup!

    So I had surgery on Thursday for the hemorrhoids (internal and external)and the fissures were worse than expected - repaired those and removed tags externally...hubby says I can now say I had plastic surgery on my rumpkus (hehehe...). I had a bad reaction to the anestheia once again and instead...
  19. L

    Fissures, Hemorrhoids, and Surgery

    Well, the hemorrhoids have never cleared and after four months of my GI urging me to have surgery, I saw my surgeon yesterday and my GI again today. Being treated for fissures and surgery is scheduled for next Thursday to deal with all that is going on. After this mess is fixed, then he wants to...
  20. L

    Second Round of Kidney Stone Surgery in a Month...

    This time it didn't go as well. I had rough complications with the medications, and got to come home today. Both my GI and Urologist are in agreeance with them being connected to Crohns, not enough fluids, absorption issues. I still have my hemorrhoid/rectal issues and now I am simply terrified...
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