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  1. Farmwife

    🤦‍♀️ Calling all moms with daughters. 🙄It's finally happened.

    It's been awhile for me on this forum. But......🙋‍♀️ hello. My little farmgirl is 11.5 years old. We started this journey when she was 2. She was dx at 3 with a subtype of crohn's. Since then she's added more diagnoses but she's amazing and an inspiration to many. But...... please don't...
  2. Farmwife

    Stelara and Farmgirl

    I just got word today that insurance approved for Stelara. :ywow: yup, shocked it wasn't more of a fight with insurance. However, I'm thankful.:kiss: The specialty pharmacy called to start the process of delivery. However with humira I was shown how to give the shot. Is Stelara the same...
  3. Farmwife

    Next Step for Little Farm Girl

    😢 Grace reacted to Remicade again. They gave her a bunch of steroids, Benadryl and such. Tried again and same symptoms came back. The Rheumatologist told us he'd pull it next time it happened but we'll get the new game plan tomorrow. She only got a quarter of her Remicade, So hopefully...
  4. Farmwife

    Chest Pains as a Reaction to Remicade?

    Can just chest pains be a reaction to Remicade? No breathing issues or anything else.
  5. Farmwife

    First Neurologist Appointment!

    Little Farmgirl will be going to see a neurologist for the first time for daily headaches. It's going on 6 months and a few medicines but still no relief. What should I expect from the visit? Is there anything I could do ahead of time to prepare? Thanks:dusty:
  6. Farmwife

    Cold, Flu's, Oh My!

    It's coming! That season of illnesses. :sign0085: My Grace just got her labs back and her white blood cell count (wbc) is the lowest its ever been and her lymphocytes are also very low. Her nurse warned us to do what we can to keep her healthy. I know washing hands and such are important...
  7. Farmwife

    Happy Mother's Day 2017 USA

    I hope all you mom's, grandma and caretakers have a great mother's day And are treated like the Queens you are!:thumleft: What's the best mother's day gift you've received and or The best memories?
  8. Farmwife

    Heart and GI

    Here's a question. :yfaint: My Farmgirl is seeing a pediatric heart doc for the first time tomorrow. I'm filling out her questioner. There is a section asking about gi issues in great detail. They even ask where the disease is located and on and on. Is there a link between bowel disease...
  9. Farmwife

    Another year older and a new Dx.

    My Grace turned 8.:sign0085: She wanted her favorite Mexican restaurant, so she could order chicken nuggets. :ylol: It was a good family party. Everyone bought her some kind of art kit. The next day I found glitter glue stuck on my rear.:yfrown: Looked like I squashed tinker bell. :ylol...
  10. Farmwife

    Chronic Headaches

    Do any of you or your children deal with headaches? Grace is going on many weeks of low grade headaches. She says it's behind her eyes. She's already on allergy meds and does not have sinus issues. Her eye sight is fine also. She likes it dark sometimes. She's still dealing with a gi...
  11. Farmwife

    Merry Christmas 2016

    Merry Christmas to all the Crohn’s Family. May your holiday be filled with much love and good memories. From Farmwife and my little Farmgirl. :kiss: Any plans or traditions please feel free to share.
  12. Farmwife

    Time for a lawyer. Part 2

    Yes you read that right. We got new health insurance about a two months ago. It was supposed to be better Insurance than the Priority Health Plan that we had. It was supposed to be easy for Grace to get her Remicade infusions. Or so we thought. I receive a call on Tuesday that Gracie's...
  13. Farmwife

    Can anything be done to stop hair loss?

    :confused2:So Grace's hair is coming out. It's been about a month-and-a-half now and you can start to see it on the top of her head where her part is getting wider and wider. Grace has hair that's almost down to her bottom, she's waiting for the magic to come like Rapunzel. LOL :( I don't think...
  14. Farmwife

    Seizures, could it be?

    Hi everyone, I was hoping to give a normal run of the mill update but it's not going to be that.:yrolleyes: So Grace gets up from a 2.5 hour nap. She's happy lying down but stands up and then crumpled to the floor. I turned her over and it took a good 2 minutes for her to come too.:eek...
  15. Farmwife

    Chronic Fatigue Syndrome (CFS), anyone else?

    Well we're back from the rehabilitation hospital. Thankfully it was less then a 2 week stay in the program. Grace did great and was such a trooper even when the therapist were pushing her little body to get stronger. Unfortunately it didn't really help the way we wanted it to but they did teach...
  16. Farmwife

    Taking time off work and still keeping your job? Plus Update

    Grace is being admitted next week for a 6 week inpatient, intensive physical rehab program. I'll be with her down state but my husband will stay at home with our 8 year old son. My husband works a night job that he's kept for 6 months. He likes it but he needs to be here for our son. Has...
  17. Farmwife

    Dehydration and IBD

    Grace is still struggling but docs keep saying she's dehydrated. I know she's getting enough liquid both from her formula and extra water throughout the day. Also she shows no outward signs like chapped lips, dry skin and her veins are easy to get blood from. We know her ibd is flaring, so...
  18. Farmwife

    Merry Christmas 2015

    Merry Christmas and happy New Year from my family to yours. May it be filed with hope and perseverance to face all that life has to offer! From Farmwife and the little farm girl. Does everyone have plans?
  19. Farmwife

    Imuran... here we go!

    I hope y'all are well. Fall is here and the farm is slowly returning to a bit of quiet for awhile. Well, until corn season.:ymad: Grace got her first set of cortisone injections in her knees at the kids hospital today. Grace is having a minor system flare (GI, joints, bladder, skin, eyes)...
  20. Farmwife

    Upping Remicade for Little Farm Girl

    New thread for new change. I just wish I didn't have to keep doing this.:voodoo: The plan is to up Remicade to the max. She's also on a 10mg pred burst. Grace's arthritis has hit hard and has already done damage to her knees. Her GI said since she was just scoped a few months ago that we'll...
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