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    Recurrent C.diff and Nausea

    Hello everybody...It has been a long time since I have checked with the forum. My son finished college last May....it was a struggle the first three years, many problems with food, weight below 100 pounds, symptoms.....His last year everything seemed to get better. Though he has never been...
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    Is Remi same week as colonoscopy ok?

    Hello and I'm sorry I've been away so long. N is off in college and seems to be fairly stable and taking care of all his medical appointments. He is supposed to get his remi treatment next week, but he is also scheduled for a colonoscopy next week. Any problems doing the scope (Friday) the...
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    Question about Gastric Emptying Study

    Quick question......for the gastric emptying study, does the patient get to come to the waiting room between pictures, or do they normally have to start in the x-ray room the entire time. Is it done standing up or sitting? It appears from what I've read that there are several ways of doing...
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    Adding Methotrexate ...Questions

    My son just told me they called from the new GI's office to tell him his bloodworm is normal and that he has NOT built immunity to the remicade, which is a relief. They want him to start methotrexate, and leafing through several threads it appears to have quite a few side effects (I know some of...
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    New GI

    Yesterday we saw my son's new GI since we were not comfortable with the last New GI, and it was a good visit!! The initial part of the visit was with the PA who had taken the time to read his medical record!! She addressed all of our concerns, mainly his inability to eat a reasonable amount of...
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    So many questions...WBC and Remi,scope, Docs...

    So I've been in my usual high state of anxiety about N's never changing health status and my equally usual misgivings about assessments/recommendations from MD's. Here is the scoop. A month ago I made an appointment for N to see an adult GI where he goes to college so that he would have...
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    New Doc Wants to do an Enteroclysis?

    Hi all. I am in the process of moving N from a pedi GI to an adult one where he is attending college and we met him last Friday. He wants to do a "small bowel enteroclysis" to see how his bowel is emptying and probably to check his bowel overall. N's main symptoms are the same as always...
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    Med treatment or diet for partial obstruction?

    My son was recently in Israel and called saying he had tremendous pain around his bellybutton area, had urgency to go to the bathroom but could only do so very, very little, and it was a clear yellow liquid (sorry for detailed description) This was happening at 30 minute intervals. So he stuck...
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    Urgent question about immodium

    Hi all, quick question. My son is flying back from Israel due to a major flare, pain,etc. he wants to know if he can take immodium because it's a long flight and he's going often. He is worried he might feel worse because he feels he has narrowing of his intestine. He is flying out in one...
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    In Israel and in trouble

    Hi all, sorry I haven't been on the board much lately. N has been away for his first year in college and doing fairly ok, although I had to hire someone to cook and bring some meals to his dorm since he couldn't find anything to eat he had taken a turn for the worse. Well, he signed up for a...
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    Remicade in college question

    N is going off to college in 3 weeks:eek2: and am trying to find a place for his remicade treatments. I found a place by phone that does infusions, seems respectable, can draw labs, is staffed by a nurse practitioner and several RNs. It is Not associated with a clinic or doctors office. He...
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    Urgent (kinda)should he do his MRE question

    Hi All. About three months ago N started having pain in the usual bellybutton area, just a few times, some bloating, a bit of blood (mostly from a hemorrhoid) loose stools....he had been given Lexapro and we decided that was the reason. That and the fact that it was almost time for his...
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    Anxiety/depression - Any advice on taking Lexapro when you have Crohn's?

    My son who is 18 was just prescribed Lexapro for anxiety/depression. He is very worried, as am I, about the many side effects. Has anyone had any experience taking this medication? If so, are you taking the generic form or the brand name? Aside from the psych effects I'm worried that it will...
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    Anxious/depressed kids with CD

    I was just wondering if any of your children have suffered with anxiety or depression and are taking meds for it. My son was just prescribed lexapro and I'm very worried about the side effects, especially nausea, and appetite loss (amongst many others!) when he is already so underweight. Any...
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    Tooth decay, use of fluoride and whitening strips

    Just got back from the dentist with N and was told that he has two new cavities (he had 3 six months ago) and was given a fluoride gel to put on his teeth each night. I have read that fluoride can cause GI problems and have caused some to go into flares. I have not seen any scientific studies...
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    13 weeks between remicade treatments...worried

    As a quick update, 4 weeks after Nico had his resection, he came back positive for c-diff. He was given two weeks of flagyl and told not to take his remicade infusion until after he tested again. I moved his remi infusion two weeks up and was scheduled to take it today if he came back free of...
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    C-dif questions!

    Sorry to be posting with several threads but the story goes on...and on. Last week Nico had 2 days with diarrhea and lots of blood in it, so i called the GI and he ordered a stool sample. After adding oatmeal to his diet, the D stopped. A the same time he started taking 6mp as his maintenance...
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    Blood three weeks post surgery?

    Here we are on the roller coaster again! Yesterday we saw Nico's GI and surgeon for a follow up, and all was fine. Then shortly after dinner Nico went to the bathroom and had bloody diarrhea. We weren't 100% sure it was blood so we waited till today and tonight again, and quite a bit worse...
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    Pre-op bowel prep question

    My son is scheduled for a bowel resection on Wednesday and we were told to start a clear liquid diet starting Monday morning......I was wondering if it would matter he he had a couple of Peptamens in the morning/early afternoon on the monday since I doubt he'll get to eat before Thursday and he...
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    Surgery scheduled.....doing the right thing?

    I scheduled the resection surgery for N for mid March. He is not sure he wants to do it and neither am I. We both go from one spectrum to the next.."YES....it makes sense!!" to "NO, what if it doesn't work!!" I am questioning everything we have done for him since his diagnosis and now don't...
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