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  1. emmaaaargh

    Update on my life

    Hi, everyone! I hope you're all okay at the moment. I realised that I've not been posting very much as of late so I wanted to give you an update as to where I've been over the last few months. A lot has happened so I'm also hoping that typing it out will let me sort it out in my head! So I...
  2. emmaaaargh

    Iron infusions!

    Hey everyone!! So I'm set to have an iron infusion within the next few weeks, and I was wondering if anyone else'd had one and how it went. I'm having Ferinject - the new, fast one that supposedly takes about 15 minutes at most - but I'd also like to hear your stories on basically having...
  3. emmaaaargh

    Just feeling down again.

    I just felt the need to vent again. Which is weird, because usually I am really happy, and I only get sad for short periods. Usually at night. But that's not really relevant right now. :thumright: So after I started taking Aza in July, I had a few ups and downs and in October (I think) my...
  4. emmaaaargh

    Question about Infections

    Well, a while after I was started on Aza, I started getting D, which was kind of odd because D was never really one of my flare symptoms, barring before diagnosis. It would sometimes go, and then come back, and I'm just dealing with it. Today we got a letter in the post from the hospital saying...
  5. emmaaaargh

    Just kind of upset I suppose.

    I haven't posted here in so long! At least I've been checking every day :ysmile: Okay here goes, before I explode... I'm having a lot of issues with nutrition right now. When I was on steroids everything was perfect! Sure, we were spending more money on food, but at least I HAD an appetite. I...
  6. emmaaaargh

    A question or two

    I've been on Azathioprine for coming up to two months now. I don't feel spectacular, but I don't in any way feel as bad as I did before my stint on steroids. Could this be because my dosage isn't high enough? My doctors put me on 35mg to start with and I've been there all this time. Apparently...
  7. emmaaaargh

    Are you *serious*?

    I think for the sake of simplicity I'm going to refer to my doctors as Dr. P and Dr. V, here. That way I get to keep my privacy, but without all the annoying "other doctor" and "other other doctor" business. :) So - as some of you know, Dr. V is my consultant at a big hospital in the city. Dr...
  8. emmaaaargh

    Starting aza soon!

    I went to my doctor's today and got handed a prescription for iron and azathioprine. Apparently, I weigh too little for the dose to be taken as a tablet (I weigh 41 or so kgs - and I think I'll be on 35mg?) and have to take it as a suspension. Ew! Has anyone ever had the suspension, and what did...
  9. emmaaaargh

    Kind of worried!

    This isn't so much a vent as a kind of frightened babble, I suppose? Tomorrow I have an appointment at the joint gastro clinic at a hospital nearby - with my gastro (who I don't like very much) and another doctor I've just started seeing (who is really quite nice). Since I've been on...
  10. emmaaaargh

    Freaking out a little bit.

    Hi everyone! It seems like the only time I post in here is when I'm asking for help. Ugh, seems so selfish of me... but whenever I want to reply to a thread others have posted, I end up thinking what I've written is stupid and erasing it! Anyway, enough of my rambling. So, about five minutes...
  11. emmaaaargh

    What a week it's been!

    I'm more than a little frustrated right now - it's been such a long week! I went in for my colonoscopy on Tuesday and about half an hour before I was due to go for my anaesthetic a doctor came around to confirm the procedure. I suppose the first thing to tick me off was that I was never told...
  12. emmaaaargh

    Yet another colonoscopy thread!

    Okay, so this is my second colonoscopy (last one was in 2007) but I don't remember much of my first since I was about 9. It's also the first time I'm able to do the prep at home and I'm freaking out a little bit. I start on Senna and Picolax in about an hour and a half, but the thing is when...
  13. emmaaaargh

    Hello!

    Hello, everyone. I'm a long-time lurker just summoning up the rest of my courage to finally join here (I'm pretty shy)! My name is Emma, and I'm from the UK. I was diagnosed shortly after my 9th birthday, which was relatively quick from what I've seen of others who had symptoms for absolutely...
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