• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. gadgetninjette91

    Week 7 1/2 Of Treatment: Questions About Cimzia

    My doctor has started me on Cimzia and I've been doing the injections going on 8 weeks, due for my next in 2 days. I would say after week 5 I felt something but I'm not 100% closer to 85-90% which is a good start. I know this is highly individual, but how long on average does it take to have a...
  2. gadgetninjette91

    HELP! Retracted Diagnosis, Now Labeled "Severe IBS"

    Hi everyone here, I'm part of the undiagnosed support group but I need to start my own thread so others can see and provide their input as well. I'm in a very bad place right now and could use as much support as possible. Last year I was diagnosed with what looked (colonoscopy/CT scan) like...
  3. gadgetninjette91

    Post-Abortion Flare (Please Don't Judge!)

    First, let me reiterate: if you have nothing supportive to say to me about this or are going to try to preach to me about why what I did was somehow wrong, please take your comments elsewhere. That being said, I don't know if anyone here has ever dealt with this particular issue but regardless...
  4. gadgetninjette91

    Crohn's and Self-Blame

    Hello to all who are reading this now. I'm a fairly new Crohn's diagnosis and I've come to accept it in general, but one thing I still have a problem with is self-blame. Basically, I constantly tell myself that it's my fault that I have this and I did this to myself, I should never have picked...
  5. gadgetninjette91

    My 2nd Colonoscopy: Should I Go Off the Meds?

    Hi to everyone reading this now. So my illness got bad enough that I had to move back in with my mom out of state so I set up care with a new GI. Saw my new doctor today and he (thank G-d) agreed that I've been receiving insufficient treatment, going so far as to say that he "hates" Pentasa for...
  6. gadgetninjette91

    Stress Management Tips?

    Hello to all who are reading this now. I started this thread because I have very poor stress management skills and it's definitely not conducive to any kind of good health or healing. I've been receiving mediocre treatment for my Crohn's and the stressful situations that I face in life on a...
  7. gadgetninjette91

    Crohn's and Eating Disorders

    I am a fairly new Crohn's diagnosis and I have struggled with anorexic and bulimic behaviors for the last ten years. The Crohn's has made me lose about 40 pounds and I know that it is very unhealthy and I need to gain a little bit of weight but the weight loss has been bringing about thoughts of...
  8. gadgetninjette91

    Just Need Someone To Talk To

    Hello to whoever is reading this right now. I received my Crohn's diagnosis about a month ago and have been on (inadequate) treatment since. I have plans to seek adequate treatment, but that's not nearly what is bothering me right now. What's bothering me is people. Specifically, people who...
  9. gadgetninjette91

    Pentasa and Still Flaring

    I've been on Pentasa for my Crohn's (jejunum and ileum) for the last three weeks and am frustrated that it's not helping me more than I'd like it to. It did help at first and kept me solid for a good bit but I've been flaring again for the last few days (I attribute this to stress and not enough...
  10. gadgetninjette91

    Pentasa and White Specks

    So I am newly diagnosed and have been taking Pentasa for a couple of days and I noticed white specks disbursed throughout my stool. I've read that it's normal for this to happen with Pentasa, but I'm concerned that this could mean that I'm not absorbing the meds properly and that they won't be...
  11. gadgetninjette91

    So I Just Fainted...

    Newly diagnosed, just started on Pentasa today, 4 500 mg caps per day. Took my second dose this evening and after doing some reading on here of some peoples' experiences and having a strong emotional reaction (as I know I'm prone to panic attacks but I don't usually faint), I blacked out on my...
  12. gadgetninjette91

    Suspected Crohn's : Diagnostic Lag and Bad Doctors

    Hello to all who are reading this now. I'm 23 years old, female, and have suffered from gastrointestinal distress for a couple of years now in a different way than usual (was a lactose intolerant kid and allergic to peanuts but this was nothing like anything I'd ever felt before.) So I booked an...
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