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  1. Catherine

    Heard from Doc today

    I know O disease is much worse that Sarah. But Sarah was very luck to avoid emergency Surgery. If O is going to have a chance a successful reconnection down the track she wants planned surgery. Planned surgery less school missed. Shorter recovery time. Can she plan surgery for the end of...
  2. Catherine

    School or college reopening Fall 2020 immunosupressed

    Our school holiday end on Monday, with only years 11 & 12 going back in Greater Melbourne. Schools in most country Victoria went back. Prep to 10 have a extra week holiday and return to remote learning next week. Restaurants are back to take away only. No visitors are allowed in our...
  3. Catherine

    Silent Crohns

    She has been off all medications for 18 months. She decided to stop Imuran in January 2019. So the theory is imuran was working. The monitoring is the key. If the calprotectin level go up they will more fast. Biologics? Have been discussed. She doesnot like taking medications at all and...
  4. Catherine

    Silent Crohns

    Update. Sarah is starting a new job on 22nd. She has made a full recovery. She is in no pain all. She is full clinical remission. Back on Imuran 50 mg daily. She is also taking phyllium husk daily and will need to take it for life. Calprotectin level has come back at 8. The plan is...
  5. Catherine

    Much Ado About Nothing! eh!

    I am luck to still have a job. I go into the office everyday. We are not set up work from work. There are more people out and about. Our number of cases are quite low. 18 cases of virus were dx on Tuesday in Victoria. Our state in currently testing anyone who wants a test. Over 100 000...
  6. Catherine

    Much Ado About Nothing! eh!

    Two of my 3 are at home. My husband has been enforced into retirement. Sarah is living in Melbourne as the hospitality industry is completely shut down. Her youngest sisters are doing university from home. There is talk that K university will start face to face classes in June. Our schools...
  7. Catherine

    Silent Crohns

    Crohnsinct I have no control. Surgeon visit went well. Recovery had been really good. Surgeon says the she has had a really good result, she was very close to needing emergency surgery. Biopsy show clear Crohn's and also clear margins. Also appendicitis but believe that from Crohn's. She...
  8. Catherine

    Silent Crohns

    Sarah's back living with her boyfriend. I am going with her to see the surgeon on Thursday. Seems well.
  9. Catherine

    Silent Crohns

    She was release on Sunday. She is well although not recovering as quick as she way like.
  10. Catherine

    Silent Crohns

    The injection are a daily shoot to reduce clotting, once a good day for 30 days. The drain come out yesterday. Sunday, tomorrow is the new discharge date
  11. Catherine

    Silent Crohns

    Day 4 was better. Day 5 the drain come out. Pretty good day Tomorrow I am going to learn how to give an injection by messenger!! 30 days of injections every day. Should be coming home Sunday.
  12. Catherine

    Sibling being evaluated

    I think the FCP is too high. With small bowel disease would ask for MRI.
  13. Catherine

    Silent Crohns

    Day 2 wasn't a good day. She had a shower but had problems, nausea and the glitters. They thought was too pain relief and try to reduce it but it left her in severe pain. She feels she gone backwards and upset with all the tubes. They did start her on clear fluids.
  14. Catherine

    Silent Crohns

    Thank you
  15. Catherine

    Silent Crohns

    Yes she was lucky it was still planned. Technology is good. Video call, texting and hone call with Sarah. 5 days as inpatient. Today is day 1. Thank you.
  16. Catherine

    Silent Crohns

    Sarah is fine, she was doing video call to us the day of surgery. She pain is well controlled. She was surprised by the number of tubes attached to her. Five in all. The nurses tried to get her walking today, they had standing for 30 seconds before putting her back down. This was the worse...
  17. Catherine

    Silent Crohns

    She had surgery this morning our time. They removed 50 cm on bowel in all. I am not sure of the breakdown between large and small bowel. The surgeon said they is plenty of small bowel left. 2 resection were done. It sound like the fistula between large and small bowel is gone. Bowel in very...
  18. Catherine

    Silent Crohns

    Prep last night bad. We at ER from 12 -4 am this morning. Morphine worked very well, her first time taking morphine. She checked in hospital at 6.30 am. Surgeon call advise, two resections, keyhole surgery, remove 50 cm of bowel. An abscess was also found.
  19. Catherine

    Silent Crohns

    We are no sure there will even be one. We will know late Monday our time. Her sister boyfriend father has contacts with all the supports groups. Both father and son have IBD as well. R's boyfriend has been told he better monitor his disease very carefully so am not go through this again.
  20. Catherine

    Silent Crohns

    They are alway your child know much how old they. She wanted her partner there more than me.
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