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    Heard from Doc today

    OMG. I'm so glad she was able to enjoy time with friends (and even a taco!!). She deserves so much credit for handling the medical/dietary end, which we all know is no easy task, especially in social situations, and for never losing sight of the joy!! I know you must have been worried and look...
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    Heard from Doc today

    I'm so glad things are improving for O!! It sounds like her GI is on the ball and methodically taking her on a healing path one step at a time. I hope you both have a great (and so well deserved!!!) time with friends and family!!
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    Heard from Doc today

    N also hated drinking the peptament at first. He started with the peptamen Jr but it was bothering his stomach, which we later attributed to the Sucralose since he cannot tolerate any of the artificial sweeteners. So he moved to the adult unflavored one and did much better on that and got to...
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    Recurrent C.diff and Nausea

    I agree with you, that he probably did not have c diff this last time (when he was treated for it for 2 months!). He did not have diarrhea at the time. And he doesn't this time either. I don't know if they took blood when the did his scope, and I'm not sure where or how they tested for the c...
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    Heard from Doc today

    Ohh crohnsinct! I am so sorry you are having to go through all this hospital ordeal. It's enough trying to figure out a best course of action, but exhausting having to argue with a team of doctors/residents who are not all on the same page, and probably have limited understanding of how O his...
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    Recurrent C.diff and Nausea

    omg.......this worries me no end. I wonder if the doctor did 2 months instead of 2 WEEKS by mistake! The way they found he had c-diff was immediately after his colonoscopy. They must have taken a sample right then and there, because within a day, they said he had c diff. All his biopsies...
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    Recurrent C.diff and Nausea

    Hi Maya! Thank you so much for checking in! I'm so sorry your daughter has had so many problems with C.Diff. I hope this new test is negative. I think the Riflaximin is easier on the body, and hopefully she will feel better soon....it's too much for a young person to deal with! How long...
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    Heard from Doc today

    Oh my goodness crohnsinct, I am just catching up to what has been going on with you and your daughter....you have been through so much! She sounds like such a strong young gal, and I know it is so difficult to stay strong (for both of you), not only with feeling lousy, but also though all this...
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    Recurrent C.diff and Nausea

    Hi crohnsinct! That is interesting that O is experiencing something similar.......I'll be interested to hear what they tell you. I'm so sorry she is an inpatient at the moment....I do hope things get better for her soon! Regarding Celiac, he has been tested. They unfortunately did not do an...
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    Recurrent C.diff and Nausea

    Hello everybody...It has been a long time since I have checked with the forum. My son finished college last May....it was a struggle the first three years, many problems with food, weight below 100 pounds, symptoms.....His last year everything seemed to get better. Though he has never been...
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    Is Remi same week as colonoscopy ok?

    Hello and I'm sorry I've been away so long. N is off in college and seems to be fairly stable and taking care of all his medical appointments. He is supposed to get his remi treatment next week, but he is also scheduled for a colonoscopy next week. Any problems doing the scope (Friday) the...
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    Question about Gastric Emptying Study

    Quick question......for the gastric emptying study, does the patient get to come to the waiting room between pictures, or do they normally have to start in the x-ray room the entire time. Is it done standing up or sitting? It appears from what I've read that there are several ways of doing...
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    Adding Methotrexate ...Questions

    My son just told me they called from the new GI's office to tell him his bloodworm is normal and that he has NOT built immunity to the remicade, which is a relief. They want him to start methotrexate, and leafing through several threads it appears to have quite a few side effects (I know some of...
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    New GI

    Yesterday we saw my son's new GI since we were not comfortable with the last New GI, and it was a good visit!! The initial part of the visit was with the PA who had taken the time to read his medical record!! She addressed all of our concerns, mainly his inability to eat a reasonable amount of...
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    So many questions...WBC and Remi,scope, Docs...

    So I've been in my usual high state of anxiety about N's never changing health status and my equally usual misgivings about assessments/recommendations from MD's. Here is the scoop. A month ago I made an appointment for N to see an adult GI where he goes to college so that he would have...
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    New Doc Wants to do an Enteroclysis?

    Hi all. I am in the process of moving N from a pedi GI to an adult one where he is attending college and we met him last Friday. He wants to do a "small bowel enteroclysis" to see how his bowel is emptying and probably to check his bowel overall. N's main symptoms are the same as always...
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    Med treatment or diet for partial obstruction?

    My son was recently in Israel and called saying he had tremendous pain around his bellybutton area, had urgency to go to the bathroom but could only do so very, very little, and it was a clear yellow liquid (sorry for detailed description) This was happening at 30 minute intervals. So he stuck...
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    Urgent question about immodium

    Hi all, quick question. My son is flying back from Israel due to a major flare, pain,etc. he wants to know if he can take immodium because it's a long flight and he's going often. He is worried he might feel worse because he feels he has narrowing of his intestine. He is flying out in one...
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    In Israel and in trouble

    Hi all, sorry I haven't been on the board much lately. N has been away for his first year in college and doing fairly ok, although I had to hire someone to cook and bring some meals to his dorm since he couldn't find anything to eat he had taken a turn for the worse. Well, he signed up for a...
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    Remicade in college question

    N is going off to college in 3 weeks:eek2: and am trying to find a place for his remicade treatments. I found a place by phone that does infusions, seems respectable, can draw labs, is staffed by a nurse practitioner and several RNs. It is Not associated with a clinic or doctors office. He...
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