• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Search results

  1. xX_LittleMissValentine_Xx

    Flatulence filtering underwear!

    So surprisingly this has come up in convo between myself and my bf not because of the one of us with a bowel condition!! Was actually quite funny because bf had been suffering really badly! It is soo gross! Then as a matter of coincidence I was reading a women's fitness magazine and towards the...
  2. xX_LittleMissValentine_Xx

    Infliximab for another year!

    I saw my GI today and I'm very happy that I am allowed infliximab for another year. I had asked about this before on here, and it seems that in the UK, NICE guidelines suggest you use it to get into remission, so the situation is assessed after a year. I was worried considering I am a year...
  3. xX_LittleMissValentine_Xx

    Yearly review of infliximab UK

    Hi everyone, I had an appointment with my GI two weeks ago, and mostly I am doing really well on infliximab. I said I wasn't quite feeling as well since I had stopped Azathioprine too but he was reluctant to use combination therapy due to the increased cancer risks. He said we always have that...
  4. xX_LittleMissValentine_Xx

    I have split with Aza after 5 years together!

    Last night I said goodbye to Azathioprine after spending 5 years together. We have definitely had our ups and downs over the years, but Aza was just not giving me enough. There has been a new.... medication in my life for the last 6 months, infliximab, and so far we are going strong, so far so...
  5. xX_LittleMissValentine_Xx

    Petition against patented food.

    Here is a petition to sign against big companies such as monsanto patenting away our food chain. http://www.avaaz.org/en/monsanto_vs_mother_earth_loc/?tlzxyeb I know this has come up in a few discussions around here so thought it might be of interest to some people. Who knows if it will do any...
  6. xX_LittleMissValentine_Xx

    [Submitted] Elimination Diets

    Many people with IBD eliminate a number of foods or some food groups in order to reduce symptoms. Do you think there are any specific diets which are better than others in reducing pain or symptoms? (SCD, low residue, etc.) Or do you think it is mostly an individual basis?
  7. xX_LittleMissValentine_Xx

    Visit to Endoscopy unit in my area

    Hi everyone My local crohn's and colitis UK group have arranged a visit to the endoscopy unit at my local hospital. Its for those who have IBD or their families. Basically its supposed to be a "behind the scenes" thing where you get to see it from the other side. My mum and sister are really...
  8. xX_LittleMissValentine_Xx

    Blood test showed enough Aza in the blood

    So I had a phone call from my IBD nurse today saying my blood test results have shown I have more aza in my blood than I need, so from now on I only need to take 20mg a day now. I find this a bit strange. 20mg is such a small dose! Everyone already comments on 40mg being a small dose. So how...
  9. xX_LittleMissValentine_Xx

    Working in a clinical setting

    I am going to be volunteering in my local hospital soon. I have already had my training for it. I'm really excited about it. Its going to be working with patients at meal times to encourage them to eat more, or to help feeding them. I'm really looking forward to this because it is relevant to my...
  10. xX_LittleMissValentine_Xx

    Pain already coming back

    Hello, So its only 10 days since I finished taking pred. All was going ok, until I woke up at 5am this morning with quite bad stomach pains, and I had to get up to go to the toilet and I had diarrheah. This hasn't happened to me since before I went into hospital in December. I still have a long...
  11. xX_LittleMissValentine_Xx

    Fistulas, Fissures and Abscesses Support Group

    This is a support group for those of us who deal with Fistulas, Fissures and Abscesses.
  12. xX_LittleMissValentine_Xx

    Just waiting on a start date!

    I just had an appointment with my GI, I'm ready to start infliximab as soon as they get me an appointment. I'm not sure how long it will take. I'm hoping its soon since I have been waiting almost a year! I asked about staying on Aza, and he said he will keep me on it for the first six months. I...
  13. xX_LittleMissValentine_Xx

    Aloe Vera? Mum falling out with her friends...

    I'm a bit upset because my Mum keeps falling out with her friends over me. One of her old friends from college has recently started her own nutrition business. So she says. I have a degree in nutrition and I'm a registered associate nutritionist. I looked into her new business and found out its...
  14. xX_LittleMissValentine_Xx

    A bit Fed up

    Just thought I might have a rant/vent. Health wise I don't really have anything to complain about at the moment, steroids going ok. Not sure how effective my surgery has been, just waiting on appointments in feb to find out about the next steps. But life wise I'm seriously fed up at the moment...
  15. xX_LittleMissValentine_Xx

    LMV's Gym Thread

    So this is a big thing for me because I have never enjoyed exercise, been to the gym only once in my life with a friend. I've found a gym 5miles away where I can go as concessions while I'm unemployed, which is great! I only have to pay £17.50 for the year, and then £2.50 every time I go, as...
  16. xX_LittleMissValentine_Xx

    What foods cause bloating?

    I was just wondering your opinions/experiences with this. When I'm feeling ok (like I am now) I can eat whatever I want without any pain or diarrheah and only go to the toilet about once or twice a day. But the last few weeks my tummy has been fairly big and round. Not too uncomfortable but just...
  17. xX_LittleMissValentine_Xx

    Fistula Surgery yesterday - A few questions

    I went in yesterday for my scheduled EUA. The surgeon told me that they were going to have a look, they might place a seton, which is what I was expecting. Or that they might cut it, but they don't usually like to do that, they usually only do it if it is fairly low down. They told me after that...
  18. xX_LittleMissValentine_Xx

    Just had a five night stay in hospital!

    Hey everyone! Just wanted to give an update because I have just got out of hospital. :( Basically I could just feel myself getting worse, I was in a lot of pain, and I was still going to work, getting through on paracetamol. I called the IBD nurse and she said to see how it is going after a few...
  19. xX_LittleMissValentine_Xx

    Appointment next week, will I get any answers...

    After my two week course of antibiotics I have an appointment through the post for a week today. So far I haven't had any evidence of the surgical appointment they also mentioned to me. So I'm seriously hoping I don't turn up for them to say "hmm... you should probably see the surgeon" I am...
  20. xX_LittleMissValentine_Xx

    Sore Bottom?

    I know this has come up a few times before, but I couldn't find anything. I have a sore bum atm, I think mainly because I have perianal disease and I don't know how much can be done for soothing/pain relief?? At the moment it is very painful when I go to the toilet and afterwards. and actually...
Top