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  1. S

    Crohns Marijuana Canibus Medicine Support Group

    I've been using it for cancer, but it's not a painkiller for me, nor does it help the crohns disease.
  2. S

    FECAL TRANSPLANTS: A Guide

    I wonder how long we will have to wait for this treatment. Probably years knowing the UK at least. But any news is good news.
  3. S

    FECAL TRANSPLANTS: A Guide

    Wow, sounds interesting. I hear that Prof Brorody in Australia has claimed the Crohn's Cure, according to the Daily Mail. Yeah, just as i'm fighting cancer along comes a Crohn's cure, just my luck. Let's all be hopeful.
  4. S

    FECAL TRANSPLANTS: A Guide

    Omg, isn't that a bit of a first? Grateful for the information.
  5. S

    FECAL TRANSPLANTS: A Guide

    Really interesting, Wildbill. Thanks for the update
  6. S

    Dealing with PEG pain

    I still have E028Extra and bland foods too. It is always difficult to reintroduce foods, but if tolerant fine. If not, back to the bland basics. what i had was similar to MRSA but very slightly different.
  7. S

    Dealing with PEG pain

    I had MSSA in mine for 18 months, was agonies. I don't really get leakage although it does get inflamed so i use sudocrem which settles it down. Had mine since 2003. so sad yours is a problem. Can you drink the modulen with flavourings?
  8. S

    Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

    Bergy, I heard that drugs stay in the system for three days. So I could get into trouble for drug driving (not that I go out much). Also, it's illegal here although they do sort of allow for personal use only.
  9. S

    Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

    It's been 5 days since I started cbd with thc. I think things are different already. I'm not visiting the loo anywhere near as much. I'm not sure about the pain relief though. Mind, my Crohn's isn't good at the moment. Hasn't been for a long while and I have a lot of inflammation with my...
  10. S

    Stricture and diet

    Hi, Am just wondering about having a stricture removed as my new gastroenterologist insists I wouldn't need liquid feed anymore and I would be able to eat anything and everything. However, I've had these removed before and still cannot tolerate lactose, fructose, grains, fibre and fats. I'm...
  11. S

    Liquid food with sweetners

    Hi all, Does anyone else have acne from sweetners, not to mention the headaches. they have even started putting sweetners in Questran and other meds. I am sick of acne and my body has had enough of sweetners. Does anyone actually have a liquid food without any sweetners please? Thanks in...
  12. S

    Tpn

    So, do you people on IV eat anything, and do you have diarrhoea if you just have IV. I really feel I need to give my whole digestive tract a break. I've been on liquid feeds for around 13 years and still suffer in the whole digestive tract. Any advice please. I so want to be diarrhoea free...
  13. S

    Clogging peg tubes.

    Hi, does anyone have those clogging tubes. I never quite know how to fix it when its beeping away at me. What do you do when the thing is beeping and somewhere in the tube its blocked?
  14. S

    Arthritis and skin

    Hi all, :sign0085: I am suffering quite badly with my joint pain and often, on one elbow, i get a nasty red flare but this one is different from the other red flares. Does anyone else have a red flare where the skin is so sensitive that if i turn over in bed, or shift my sleeve up, the skin...
  15. S

    PH level

    Hi, I am wondering if any of you know what my dietician meant when she said my ph level (stomach acid measure from PEG) was only 0.5. She told me to mention it to my gastro bloke, which i did, and he said it makes no sense to him whatsoever and he didn't know what she was on about. Do any of...
  16. S

    Mushy Mouth

    Hi, As far back as i can remember i've suffered what i call mushy mouth. that is that even brushing with a tooth brush erodes a layer of skin and leaves it really red and sore. Also, i have to be so very careful as to what i put in my mouth because if its slightly sharp it seems to gouge out...
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