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  1. M

    It's been a while...

    Scheduled for surgery on 16th December. No biopsy results yet but I have an appointment with the surgical team in two weeks, so I'll query those then. I'm unsure what exactly they did to me still, my nurse doesn't even know! So I'll demand (politely) answers in my consultation and I'll be...
  2. M

    It's been a while...

    Update - They couldn't do a lift procedure. They left me without treatment for so long that I needed some kind of stitches (not a seton) inserted first. The surgeon refused to answer most of my questions, I've been fighting with the hospital since I woke from my surgery for answers and they...
  3. M

    It's been a while...

    So it's nearly a year since I've posted. Last time I posted, I was being referred for either a LIFT or advancement flap. I was supposed to have a LIFT in February but due to corona, it was cancelled. Cancelled again in September. I'm scheduled to have it done on Wednesday pending a negative...
  4. M

    LIFT procedure/advancement flap/Crohn's - head's a bit of a mess!

    Hi guys, thanks so much for the replies! So far, we're going ahead with a LIFT. it should be in the next month or two. No active inflammation at the moment so fingers crossed. I'm going to ask about that flap procedure with the muscle grafted from the leg if this doesn't work. I don't mind...
  5. M

    LIFT procedure/advancement flap/Crohn's - head's a bit of a mess!

    Thank you so much! That's really thoughtful of you, seriously, thank you ❤️ I hope you're getting better now!
  6. M

    LIFT procedure/advancement flap/Crohn's - head's a bit of a mess!

    No solid diagnosis, no. My colonoscopy was clear a year ago (bar biopsies, they lost those results), they're saying i "likely" have it, because i have all the symptoms, but they're not pushing for more tests (bloods, fecal calproctin) until after surgery. I wasn't aware the advancement flap...
  7. M

    LIFT procedure/advancement flap/Crohn's - head's a bit of a mess!

    Thank you. They examined the lump and did a digital examination and said there's no sign of abscessing, but didnt tell me what it actually is. I can ask my PCP for a CT scan but the waiting list for that is approximately two years (socialized healthcare). I wasn't aware advancement flap had...
  8. M

    LIFT procedure/advancement flap/Crohn's - head's a bit of a mess!

    Hello, me again, with more questions again! So I've had a complex fistula since April 2018. Seton placement has failed, so the surgeons were recommending a LIFT procedure. After another examination yesterday, they suggested advancement flap surgery instead, or possibly living with a Seton...
  9. M

    Back again with another potential abscess

    That's great! I know it's making you feel crap but if it's reducing, that's fantastic!
  10. M

    Back again with another potential abscess

    If it's in the esrly stages, id be inclined to ask your GP for an antibiotic while you wait to see your specialist.
  11. M

    Back again with another potential abscess

    I'm so sorry you're feeling so down about it, i 100% understand that. It's embarrassing and nobody understands because it's not something we speak about and hospital staff forget the humiliation factor! You know your body and you know when something isn't right, so please don't avpid doctors...
  12. M

    Back again with another potential abscess

    Nothing has really been going on! Had Seton placement surgery in July but that didn't work (the fistula is too complex) and most other options will leave me with incontinence issues, so I'm on a waiting list for a LIFT procedure, which apparently is a surgery with a 60% success rate, and a very...
  13. M

    Back again with another potential abscess

    Ah cdaisydo, I'm so bloody sorry to hear that! You must be feeling pretty anxious :( I've heard of abscesses being healed with only meds in some circumstances, usually if it's caught early. There's every chance it could work for you. If not, and it's small, a quick incision and drainage...
  14. M

    Is bleeding normal?

    Thank you for this. Unfortunately, this isn't an option in the country i live in, and isn't even being considered for trial here as far as I'm aware. I'm very sorry the LIFT procedure didn't work. :( I'm desperately hoping it will for me.
  15. M

    Is bleeding normal?

    Had surgery this morning, draining Seton placed. Unfortunately the fistula runs through literally all of my muscle so a cutting Seton or fistulotomy aren't options. So I'm being booked in for a LIFT procedure in October. I know nothing about this procedure so I'm gonna Google it but yikes...
  16. M

    Is bleeding normal?

    Five years?! Wow! Does that mean you're stuck with a draining wound all that time? That's an absolute nightmare scenario for me to imagine, I'm struggling massively with constant dressings and sanitary pads and it's only been a year and a few months! I don't even have a GI doc lol, they...
  17. M

    Is bleeding normal?

    I've actually looked into having my treatment in the UK but unfortunately it's not possible. I could do it and my own health service would reimburse all costs, but I'd need 20 thousand upfront to cover it all and my savings are only a couple of thousand lol. Thank you for your reply! I'm...
  18. M

    Is bleeding normal?

    So i have an update. Back in January, they asked me to lose another 12lbs very quickly to get surgery in a smaller hospital. I did it - my losses stand at over 100lbs now and I'm nearly at a healthy BMI. But I've still been waiting because of medical staff striking! I'm having...
  19. M

    Is bleeding normal?

    Hello, me yet again. Quick question. Is bleeding normal with a fistula? Long story short - abscess surgery in April, wound wouldn't close, turns out I have a complex fistula connected to the opening in my skin from the abscess site. I had a colonoscopy which ruled out Crohn's, but I'm...
  20. M

    First colonoscopy - tips please ? :)

    Hi there, I received some great support on the abscess/fistula subforum so thought I'd try here too. :) I'm due to have my first colonoscopy on November 2nd to test for crohns/UC. They want me tested because my perianal abscess turned into a complex fistula. I've also had bowel issues since...
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