• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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    Covid-19 & the 3 'risk groups'

    Well worth checking out a very interesting article RxISK.org about medications which compromise COVID 19 victims. Some very everyday drugs on the list could cause a devastating response to this virus.
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    Family history of Crohn’s.... anyone??

    No family history. It was discovered during an autopsy that my mother had Diverticulitis. I wasn’t diagnosed till 52 years old! No Doctor in UK has ever asked me if it runs in my family? All I’ve been told is that doctors do not know what causes some people to develop Crohn’s.
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    Covid-19 & the 3 'risk groups'

    All the publications in the UK inc Gastro associations and Government clearly state that people on our type of drugs are at moderate to high risk versus the rest of the population. Furthermore it isn’t a collective generalised warning, each drug is individually named. It was discovered that...
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    Covid-19 & the 3 'risk groups'

    Let’s all wait and see if the Chinese publish the outcome of all the Coronavirus victims who were on the same type of immune modifying drugs that we‘re on. They already know the answers. If not, is there any way the pharmaceutical companies could be made to disclose this information? Don‘t you...
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    Scared and stressed

    Hi I have Crohn’s and constipation, that’s why I slipped the net and wasn’t diagnosed until I was 50 years old. My GI consultant referred me to the hospital Dieticians and one visit changed my life forever. There are 2 types of fibre-soluble and insoluble. Insoluble is bad fibre which will make...
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    Covid-19 & the 3 'risk groups'

    As I said in my post the only thing any of us need to know and have a right to know is precisely how much immune system are we left with whilst on these immune changing drugs. Anyone noticed how quiet the big Pharma companies are? You can’t get help from them, you can’t reach your GI consultant...
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    Covid-19 & the 3 'risk groups'

    Hi it was my GP, I’ve not even attempted to get hold of my consultant-too busy. Regardless of what me or anyone may say Amgevita cannot work WITHOUT compromising our immune system. The drug is specifically designed to disrupt our immune system. That puts us at HIGH RISK period. The fact of the...
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    Covid-19 & the 3 'risk groups'

    Because I’m on Amgevita (I was previously on Humira) I have been told that I’m on the SERIOUS RISK LIST and must self isolate for 12 weeks. Mixed messages from medics are freaking people out. I also don’t think that GP clerical staff, through no fault of their own, fully understand these highly...
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    Covid-19 & the 3 'risk groups'

    Hi I stopped my Amgevita injections last week after the pharmaceutical delivery driver who came to my house to deliver Amgevita told me he’d just delivered to someone with Coronavirus. I have notified my consultant through my specialist IDB nurses. The IBD nurse emailed me back to tell me they...
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