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  1. Manzyb

    Ozanimod & Janus kinase (Trial)

    Hello!! I was in an Ozanimod trial. I did the 10 week double blinded study, but due to not improving I “failed” out of the study and they put me in the open label study. I was getting the max dose of Ozanimod for about 4 months before I had to come out of the trial. I had run out of options...
  2. Manzyb

    Vedolizumab/Entyvio

    I took it as well. It was okay, it took a long time for it to really work, but never had any crazy side effects. The only side effects were nasty headaches and fatigue immediately following infusions, but would be gone in a day or two
  3. Manzyb

    Ozanimod

    Hello! I’m about to start a clinical trial with the drug Ozanimod. It was recently approved for MS, but now I’m phase 3 for Crohn’s Disease. Has anyone tried it?! I can’t start until October 22nd as I am now in the “washout” period for Stelara and Tacrolimus. I was just curious if anyone...
  4. Manzyb

    Humira, round 2

    Hey guys! Have any of you been on Humira in the past, been taken off of it, and a couple years later been put back on it? About 7ish years ago I took Humira and it worked absolute wonders for me. I never achieved remission, but I felt much better. When the disease got bad again they upped me...
  5. Manzyb

    Prednisone and pain medication?

    I saw my Gi as a follow up from my hospital stay, and he noticed that the admitting doctor sent me home with Percocets for the pain. I'm on 60mg of prednisone, and my GI this morning told me not to take the pain medications if I can, because that plus the steroids could have serious effects...
  6. Manzyb

    Benadryl for nausea?

    I've been reading that anti-histamines can help with nausea. I'm currently maxed out on nausea meds for the day and was thinking about giving it a shot. I probably will, I'm just curious if anyone else tries it for nausea.
  7. Manzyb

    Changes in menstrual cycle

    has anyone had this happen? My first dose of cimzia was last Friday. I'm about a week late on my period and have taken a couple of pregnancy tests and all were negative. Anyone else have late or changed menstrual cycles?
  8. Manzyb

    Quick update to my seemingly never-ending cycle

    Since my surgery last January, I've still had problems. My new doctor did all kinds of tests and I am in fact still flaring and not in remission like my last doctor had stated. Last thursday I started getting a worsening "ache" in my lower right quadrant, and didn't think much of it. Friday...
  9. Manzyb

    Changing diet and feeling better.

    Hi there: I got my juicer about 3 weeks ago, and I also got a ninja to make myself some protein smoothies. I usually do a smoothie for breakfast, and a juice for lunch, and our dinners are "clean" dinners. Now, only a week and a half ago I was in the ER needing to get fluids because I was...
  10. Manzyb

    Farmer's market!

    Well, it wasn't a secret that I was not happy to move out here to San Diego. However, other than the beach that makes me happy, I just found an amazing farmer's market! We went this morning and got everything from blood oranges, to avacados, to swiss chard, to FRESH caught shrimp! I'm so...
  11. Manzyb

    I feel like I can't catch a break

    I think I'm just having a pity party for myself, but I've been through a lot the last 13ish years that I've had this disease. I'm now back to vomiting when I eat solid food. It doesn't really matter what it is. I vomited after eating chicken noodlesoup last week. I've since adopted the...
  12. Manzyb

    Husbands

    I should probably vent here, so I don't go off on the husband! I'm pretty frustrated right now. Last weekend the husband had a 3-day weekend and he came down with a cold and stayed in bed all..freaking..weekend. Then was better and worked all week, and now today, it was suppose to be my day...
  13. Manzyb

    Looks like I'm going to try Cimzia again.

    Hey there :) Well, back in 2011 after I had my baby my old GI doc started me on Cimzia. I was already having a really rough time and had strictures in my small bowel and was very sick. I only took the loading doses and then the first dose after that. I was taken off of it pretty quickly...
  14. Manzyb

    Pancreatic insufficiency

    Has anyone been diagnosed with pancreatic insufficiency that also has UC or Crohn's? I'm being tested for it as they think its a real possibility that it can be causing some of my problems.
  15. Manzyb

    Thank you, GI. Someone is finally listening.

    I hope everyone is doing well out there! I've been lurking around a little, but since our move to California and trying to get settled in I haven't posted much. Since my surgery, and starting Tysabri in March I've still been having all sorts of problems having D upwards between 10-20 times a...
  16. Manzyb

    This is frustrating!

    I posted last month how I am supposedly in remission, but still having troubles. I'm still going to the bathroom 10-20 times a day, loss of appetite, can only eat pretty much once a day, and just very fatigued. I finally got my stool sample results back and they all came back freaking...
  17. Manzyb

    C-Diff

    For those of you that have had or do have C-Diff, what were your symptoms? Also, if you were technically in remission with your Crohn's and or UC, did it feel like you were still in a bad flare? Thanks!
  18. Manzyb

    In my head? Seriously?

    I'm having a really difficult time right now. Not necessarily all physical, but it feels like a lot of stuff is just out of my control right now. I've been having lots of diarrhea, abdominal pain, nausea, feeling full, and some vomiting. i had a colonoscopy the other day and they say that my...
  19. Manzyb

    Remission YES!! something else wrong?

    I had a colonoscopy yesterday, and I posted that the doctor said that other than an ulcer on my surgery site, it seems as though I am in remission. I am super happy about this, but also nervous. He believes that something else is going on with me. I'm getting a battery of blood work and CT...
  20. Manzyb

    Umm, WHAT?!

    I had my colonoscopy this morning, and well, I'm in Remission!! Seriously?! Aside from one ulcer being at my incision point from the surgery a few months ago. Apparently, I have pancreatitis for a little while and THAt is why I am still not feeling well, and having nausea and vomiting again...
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