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    Surveillance Colonoscopy with Crohns Colitis

    Hi Everyone, My son (age 21) had a scope today (6th in 4 years). He was dx with Crohns at age 13 and it was just in terminal ileum at that time. At some point in late high school it likely went to colon. He was put in Stelara his freshman year of college at age 18. Scopes since that time...
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    Help arranging Stelara injections in San Francisco

    Hi Everyone, My son will be doing an internship in San Francisco (down town financial district) this summer and will need 2-3 Stelara injections when there. He has not been able to give them to himself. Do you know if we can arrange to have them shippped to a medical office downtown and pay...
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    Platelets Low after 2 weeks on Imuran

    Hi Everyone, My son has been on Stelara for 2 years. Initially every 8 weeks and then every 4 weeks for the past year. It was helping but not 100% so we added Imuran 2 weeks ago. His bloodwork all looked good today except his platelets were low... 121 when 150 is low end of normal. Doctor...
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    Adding additional immunosupressant to biologics

    Have your doctors told you that biologics work better when used with methotrexate, 6pm etc. or is the primary reason to suggest this to avoid developing antibodies? My son's doctor wants him to add methotrexate to Stelara hoping it will reduce inflammation in his rectum. The rest of his scope...
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    Suppository Coverage and Outcomes

    Hi Everyone, After 12 years of great insurance coverage, we have had two big issues lately. Anthem Blue Cross denied coverage for hydrocortisone suppositiories saying this is a medication they just won't cover. We are out $850 there. Now they won't cover mesalamine suppositories 1,000mg...
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    Suppository coverage information

    Hi Everyone, After 12 years of great insurance coverage, we have had two big issues lately. Anthem Blue Cross denied coverage for hydrocortisone suppositiories saying this is a medication they just won't cover. We are out $850 there. Now they won't cover mesalamine suppositories 1,000mg...
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    Uceris for Maintenance

    I was wondering if anyone has been on Uceris for maintenance. My son did an 8 week course in August/September and his FCP was 21 - lowest it has ever been. After reading below, our question is would he be able to take Uceris in combo with Stelara and not MTX injections. He would do MTX if he...
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    Oral versus Injectable MTX

    Hi Everyone, My 20 year old son (dx at age 13) just had a scope. He is improved with Stelara every 4 weeks but they are concerned with moderate active inflammation remaining in the rectum and mild scarring (stenosis) in anus. They want him to start on suppositories and add in MTX injectable...
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    Polyp in 20 year old - crohns x 7 years

    Hi Everyone, A nervous mom here...just got back from scope and overall Crohn's in pretty good control with only mild inflammation in proximal ascending colon and moderate inflammation 15cm proximal to anus (going to ask about a suppository for this area) so it appears increasing Stelara to...
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    7mm semi-sessile polyp in 20 year old

    Hi Everyone, A nervous mom here...just got back from scope and overall Crohn's in pretty good control with only mild inflammation in proximal ascending colon and moderate inflammation 15cm proximal to anus (going to ask about a suppository for this area) so it appears increasing Stelara to...
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    Humira v Remicade

    My son is 20 and it appears that Stelara is not doing it for him. They upped Stelara to every 4 weeks and it only lowered FCP a bit, then added in uceris and FCP went to 20. We hoped that the increased dose of stelara would then kick in and we will get confirmation from his FCP later this week...
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    Change Meds, Add Budesonide or Wait Longer?

    My son has been on Stelara for 1.5 years. He begain Jan of 2017. June of 2017 - It worked well and his Fecalcalprotecin was 222 with scope only showing very mild inflammation in cecum January Fecal Calprotectin - 1 1147 and 1 950.... Late March 2017 - Scope showed moderate to severe...
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    Fecal Calprotectin High during sinus infection

    Hi Everyone, My son has been on Stelara for a year and felt great. Scope 6 months ago shows some mild inflammation in terminal ileum and cecum and FCP was low 200's last 2 measures. Just got another one back today and it is 1150! I emailed his doctors but wanted to know if anyone knows if it...
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    18 year old just approved for Stelara

    Hi Everyone, My son was no longer being controlled with methorexate and disease has expanded from terminal ileum for the past 5 years to throughout his colon and rectum per his scope on Dec 21. He has been on 40 mg of prednisone for 3.5 weeks that is getting things under control and also had...
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    ? 18 year old on Humira - need advice

    My son was diagnosed with Crohn's disease at age 13. He is now 18 and a freshman in college. Was put on methotrexate 3 years ago and has been on Entocort a couple of times. Was originally on Pentasa but was taken off due to poor compliance. Fecal Calprotectin and CRP's have been high for a...
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    Red rash on face after 1 week on Entocort

    Is this a side effect of Entocort? My son originally had this around his eyes and now it is gone there and on his cheeks. He feels fine otherwise so I am hoping this isn't a reason for him to stop but I did also email his doctor. Thanks.
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    Taking Entocort in Morning versus Evening

    My son is starting Entocort. He was on it years ago and it did a nice job. He feels fine but his FCP has been around 1,000 for 6 months so we decided with his GI to see if we can get it down to control things better. He only has crohns in his terminal ileum. He is much better at remembering...
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    Considering Remicade for 16 year old boy

    Hi Everyone, How did parents of teenage boys or young adult males decide to take remicade. What is the latest research about the risk with this. My son's Crohn's is limited to the terminal ileum but he just got a second perianal abscess. Surgeon is checking next week to see if there is a...
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    Abscess in same spot as healed fistulotomy

    Hi Everyone, My 16 year old son suffered for 10 months with a perianal abscess when he was 14. After poor management we found a great surgeon. None of his docs including this colorectal surgeon have ever seen any signs of Crohn's related inflammation in the perianal, rectal or sigmoid colon...
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    Pimple?!!!!

    Hi Everyone, My son had a fistulotomy on August 30th and a very large abscess unearthed. It is all healed but there is still a groove that needs to fill in. I have been covering the groove and making sure it is clean after a BM. Last night I noticed what looks like a pimple about 1/4-1/2...
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