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  1. crampygut

    Stelara increased muscle & joint pain

    Hi all, just a quick question, I was on Stelara every two months then moved to monthly Stelara shots for the last two years. Since moving to monthly I’ve slowly developed joint and muscle pains that I’ve never had before. The pain is in my lower back, feet and a little in my hands. MRI’s show...
  2. crampygut

    Question for post surgery recovery

    Hi, Writing to all of you who have had previous resections. I have just had my 3rd bowel operation around 4 weeks ago. I had 6 strictureplasties and a resection in the operation which took 5 hours in total to perform- all in small bowel. I really couldn’t eat anything but soups for the...
  3. crampygut

    Number of Surgeries and type?

    Hi all In 2005 I had my first bowel resection removing 20cm large bowel, 20cm small bowel. In 2012 I had my second bowel resection in which the surgeon removed 10cm small bowel and 3 strictureplasties Now I sit in hospital I have just had my 3rd bowel resection Surgery accompanied with 7...
  4. crampygut

    Adhesion vs Inflammation partial obstruction

    Hi Guys I'm so sorry to bother you but I thought maybe you could help me with a question. This is for any of you that have had past bowel surgery resections have you ever had partial Bowel blockages from the adhesions caused by the surgeries and not Crohn's inflammation? If so has it taken up...
  5. crampygut

    Very off situation I'm facing

    Hi everyone, I haven't posted for a long time. Ive been feeling ok for around a year until a few months ago. I've been to see my GI. I've had partial bowel blockage symptoms for the past three months. I start off the day ok but by 12-1pm I start to bloat get very loud tummy rumbles and then am...
  6. crampygut

    Joint pain after loading dose

    Hi All I'm writing in the hope someone can answer my question. I have just been put back on Humira after stopping it two years ago. I just had my first loading dose 6 days ago and 2 days after the loading dose a started to get joint pain in my knees, elbows and hands. Has any one experienced...
  7. crampygut

    Vedolizumab question please :)

    Hi all Yesterday I saw my GI and the results show that I still active Crohns despite being on the 6mp/ allopurinol combo for 4 months. My GI is recommending I start on a trial of Vedolizumab. Just wondering if anyone has been on this drug and if this drug has helped bring remission? I've read...
  8. crampygut

    Nausea and Loss of Appetite duration- Purinethol

    Hi all, I started 25mg Purinethol and 100mg Allopurinol combination around 4 weeks ago. A week after starting the combination I started to feel very nauseous and had loss of appitite that I'm still experiencing. I'm due to up the purinethol to 50mg soon and am dreading it. For those of you that...
  9. crampygut

    LDN and CBD combining safe???

    Hi all, Five weeks after starting the trial drug ( GSK1605786) I just got a call telling me the trial has been cancelled and to stop taking the medicine. So I'm starting LDN this week. Just wondering if any one has found a problem combining LDN & CBD hemp tinctures? I want to start LDN but...
  10. crampygut

    SCD and sleep issues

    Hi all, I was just wondering if anyone that is on scd has experienced sleep quality issues due to the diet? I've been on the diet for awhile and have definitely noticed my sleep is much more broken through the night.
  11. crampygut

    LDN & CCX282 available in melbourne, Australia

    Hi all, I was recently sent to the Gastroenterology department at Alfred Hospital, Melbourne Australia, by my Gastro to get a second opinion on my stubborn Crohns before I start LDN. Well to my surprise the Dr there told me that they have patients on LDN and they also have an option for Ibd...
  12. crampygut

    LDN combined with specific diets?

    Hi everyone, I would just like to ask those of you who have had success with LDN if you have needed to stop eating certain foods or adopt a specific diet like SCD, Paleo, Gaps etc. If so which particular diet was combined or food eliminated, if any, in order to enhance the effects of LDN? Or...
  13. crampygut

    Has LDN helped you end a flare?

    Hi guys I'm currently having a very bad flare, humira is no longer helping so I've decided to try LDN, just wondering if anyone is on it? Has it helped bring a flare under control? How long does it take to work? I am desperate to get this current flare under control quickly because really...
  14. crampygut

    Humira and depression?

    Hi guys, well the time has come for me to try Humira. I have read on some sites that one side effect of Humira can be depression. I was wondering if this has been the case for any of you that are on or were on Humira? My GI said it doesn't cause this side effect but i'm skeptical as I have read...
  15. crampygut

    Down & blue coming off Pred :(

    down & blue coming off Pred :( Hi all, just wondering if many of you got really down and blue coming off the Pred. I'm on 10mg's of pred currently and I've been really down and depressed since dropping to 10mg. I know pred can have this effect sometimes when tappering but its never before...
  16. crampygut

    Pred/Entocort causing Daytime fatigue/ broken sleep?

    Hi everyone just wondering if anyone can shed some light on a really complicated situation for me. I am currently on 15mg's Prednisolone and tappering down 5mg's every 10 days. On 9mg's Entocort (will be on it another 2 months at least. And just restarted 50mg's Purinethol. And 7 days trying...
  17. crampygut

    6MP not sitting well second time around

    Hi all, I was wondering if anyone could help with this question? I was on 6mp around 3 years ago for around 1 year without any side effects at all, didn't really work that well though at the time. Anyway, after trying various other drugs including remicade ( which gave me really bad s/effects)...
  18. crampygut

    Anyone used DMSO for IBD?

    Hi gang, I haven't posted for a long time. I was just wondering if any of you have tried DMSO yet? if so what was the outcome & how did you use it? I am waiting for a bottle of the stuff to arrive from the US. I am flaring and thought i'd give it a go before moving onto Humira. currently on pred...
  19. crampygut

    Remicade and chronic Insomnia

    Hi Gang, I haven't posted for a very long time but I find myself yet again in need of some assistance.......:( I started Remicade middle of septemeber of last year and around 3 days after my third infusion I started to find myself incredably fatigued throughout the day and around a week after...
  20. crampygut

    TSO Worm therapy, please help !!!!

    Hello All, I really need to hear from anyone who has tried the TSO worm therapy. I am about to purchase the TSO product form www.ovamed.org but because of its price I really need to know from experienced users how effective it has been in controlling their disease. Thank you in Advance Michael